Ann, My daughter was 15 when she had her surgery. She tried all the medicines also. She lost almost 2 years of her high school years. She will be turning 18 next week and graduating from high school....
Aunt Betty, I guess I should have explained more, my daughter had uc also. She was checked for everything. None of the medicines seemed to work for her. She was on remicade and it wasnt working. She...
Aunt Betty, Hi, how is your niece doing? Is she at the new Children's Hospital in Orlando? My daughter had pancreatitis from her medicines also, it did take her sometime to start eating again. They...
Congratulations!!!! to the both of you. How happy you must be for him. As a mom with a child who battled this disease also, I know the struggles you went through with him. Can't be any happier for...
Hi, My daughter who was just 15 when she had her surgery had both. They put her to sleep before they did anything. So when she woke up from surgery, she had the epidural, a pain pump and also a...
kazygirl Hi, my daughter also lost some of her hair. She had long hair also. She didn't get it cut off, her hairdresser just kept triming it. Her Dr. told her to take bioton that really seemed to...
Hi, My daughter, who now is 17, has had her j-pouch surgery a little over a year ago. Hers was done in 2-steps. She had the bag for 8 weeks and yes she hated it , but she was able to go out and do...
S I am so sorry to hear about the delay of her surgery. Can't imagine what you are going through. I agree with bye bye also, I thought they did't want you on predisone before surgery. It slows the...
jujumom, Hi, my daughter got pancreatitis from her 6-mp. They did all the test to rule out anything else also. They figured it was from her medicine. They took her off the 6-mp and never had any...
Hi, my daughter, who just turned 17, is just a year from her take-down surgery. she tried all the medicines also. Was going to try humira but her GI doctor didn't give it very good odds for it to...
Hi, my daughter was 15 when she had her temp ileo. I first took her to stores and walked around so she could get comfortable having the bag. Then I started taking her to eat out. Once she new she...
Hi, My daughter was 15 when she had her surgery. Had the bag for two months and hated it. It has now been a year this April since her take-down surgery. Hasn't had any major problems. No urgency, can...
Well, it seems just like yesterday I was writing for advice. Today is my daughters one year since her take-down surgery. A couple of bumps along the way with pouchitis but other then that she is...
Renee, My daughter was 15 years old when she had her surgery. Was taking 15 plus pills a day. She is taking nothing now. Well, vitamins when she remembers to take them. Her surgery was in 2-steps....
run4pancakes, Hi, I am so glad you are doing great. It will only get better from here. My daughter is proof of that. Such great news....
Hi, don't worry about take-down surgery. My daughter who was 15 then had hers in April 2011. Is doing great. No leakage. Goes at the most 6 times a day. Went back to school in August. Goes when she...
run4pancakes, So glad to hear you are doing so great. It only gets better....
Good Luck to both of you. Will be thinking of you...
Hi, My daughter who is 16, like suebear has never had any but burn. Good luck to you with your surgery. My daughter is doing great....
Hi lexi, Its a probiotic. She takes it in pill form. She didn't like the powder that is vsl ds. That is usually covered by insurance. The pills arent. It is expensive....
Hi lexi, Other then vsl#3 and some vitamins because her counts were low. But nothing like she was on before. (only when she remembers to take them). She doesn't even have to take any immodium. She...
lexi, My daughter who is 16, had her take-down surgery april of 2011. Two weeks later, she was back helping with her highschool softball team. My daughter eats anything she wants. She does notice...
Jackie, Hi, my daughter is now 16 years old. Had step 1 surgery in February, and hated the bag. Step 2 was in April . She was home schooled last last year. I am so happy to say she went back to...
Hi, I have been thinking about you since your take down surgery was a couple of days before my daughters. How have you been doing? Have you had any problems? I hope things are going well for you. Can...
sweetpeasmom, Hi, my 16 year daughter is just 6 months post-op from a 2-step. I can not tell you how happy we both our with the decision to have the surgery. I was so against it first. We were at the...
Hi, Good luck tomorrow!!!!! My daughter is 5 months post-op. Doing great. She was only going aroung six times a day at first. Now anywhere from 4-6 times . No urgency. Maybe gets up once at night. If...
Jackie I think once you get home would be better for your friend to visit. First would she be able to stay with you at the hospital, once visiting hours are over, where would she stay if she is...
You will be fine. My 16 year old daughter is just 5months post-op from her take down surgery and is doing great. Have no regrets, maybe one. Wish she would have done it sooner instead of suffering...
Good luck to you on Monday. My 16 year old daughter is just 5 months post-op from her takedown surgery. All I can say is she is doing great. Back to school and living her life as a normal teenager...
congratulations, Today is my 16 year old daughters 5 months post-op. I hope I will be writing with good news on her one year. She is doing great. I so agree with you, I fought it tooth and nails...
My 16 year old daughter has stretch marks all on her back. A few under her arms, the ones on her back are huge. She didn't gain any weight while on it. The sun seems to help them fade. Good post...
Thank you, I thought I was the only one who didn't know what she was eating lol....
So glad to hear he is doing so well. My daughter had some kind of single packs she put in hers. It only lasted about a couple of emptyings. I did notice the smell got a little better as time went...
Good luck tomorrow. I will be thinking of you....
Hi Rachel, I am so glad you are doing so well. I new the day would come for you. My daughter went back to high school this year and is doing great. Don't know if the stress is the same or not. She...
My daughter had hers in 2-steps. The first one took about seven and a half hours. A nurse came in and updated me about every hour and a half to two hours....
I never did ask her doctor why, but she would always ask If she had any sores in her mouth and also would always check and see. Don't know if that is the difference between uc and crohns? Might want...
Hi /community/emoticons/turn.gif My daughter had her surgery at the age of 15. She just turned 16. She had a hard time dealing with the bag. Only had it for two months. She recovered very quickly...
Hi, I Think I read you were going to take him to cc in florida, If they have an er their, I think I would take him their if he has to go today....
Hi, My daughter did homeschooling last year. She missed a lot of school her freshman year. Sick during the summer. I went to the school and signed her up incase she couldn't make it her sophmore...
So happy for her. Hope she heals fast. It can only get better from here. I have been thinking of her...
Hi everyone, Today was my daughters first day of school after being homeschooled last year. She had her surgery this February and her take-down in April. She left for school today smiling from ear to...
How is Dillion doing? Hope he is doing well....
Sorry to hear Dillion isn't feeling well. Has he been checked for stricture. My daughter has had that problem where the surgeon had to go in and dialate her opening. Don't know if you can get those...
Hi, How have you been doing? I read you had a lot of trouble your last surgery. Haven't seen you on here in a long time, must doing pretty good. I read your take-down is next week. Hope all goes good...
Hi Rachel'smom I am glad to hear she is doing better, have been thinking about her. My daughter had an epidural and a pain pump with hers. Her surgeon had told her to be ready to go between...
Chris's colon, I am so glad he is doing so well. I have been thinking of you, haven't seen any posts from you lately. I forgot, did he have his surgery in 1 step. How long has it been since his...
I know you know more then what I do. My daughter, who has a j-pouch has just lost about 8lbs in two weeks also. Was just at the hospital yesterday, Her surgeon, wasn't to worried(I am) she is down to...
I am so sorry for what you are going through. Yes it is the hardest thing I ever had to do was to make that decision about surgery. If your remember my daughter had uc also, she went 14 months with...
Mustlovedogs I am so sorry she is having a rough time at it. You might want to watch if she is having the symptoms as a flare, she might have adreneal insufficient. My daughter got that when she came...