All together I've lost about 3 feet of my large, and 6 inches of my small so that I'm sure is possible, since your large is where it all happens. But wouldn't it have been this way since my surgery...
Hi there. I've never posted on this part of the site before, but I've had Crohn's disease for 15 years and I've had a a few surgeries for it. 3 years ago I was labeled disease free and have been...
Hey guys. Im new to this forum but not new to the site. Let me just give you a little history before i ask my question. I've had Crohn's disease for 15 years and back in april 2011 I got a temporary...
He didnt actually suggest a stool softener :( Nor did he say anything about a blockage which i didnt ask about and im kicking myself. He told me to stay away from complex carbs and stingy veggies....
Hey guys. I wanna thank you first of all for the kind words and how mu ch you have helped me out through this. I saw my doctor today and he said the pain on my stoma side that im feeling is...
Ty Marsky for your reply. I appreciate any feedback regarding this issue as I have no one to talk to and love everyone on this site. I really haven't been eating too much. One meal a day at most and...
Alibee. Really? 7 days? Wow. We're You eating and such? And did you have pain like I was talking about? Omg that actualy really reassuring. Your surgery you had 2 weeks ago was a reversal too? Sorry...
Hey guys. I see my doctor on tuesday. A friend of mine told me that sometimes with ileo reversal there can develop a lot of scar tissue where the 2 peices are sewn together and can cause narrowing in...
Hey. I've had my ileo reversed for 9 days now and taking Tylenol 3 for the pain killers. Mine was not a jpouch reversal. The temp ileo was to allow the rest of my colon to heal up after some of it...
Im not sure. ive never taken immodium. Even with my ileo. i never had so much output that i needed to slow it down. Couldnt hurt to try though i suppose. I was wondering about that but i wasnt sure...
hey smackie I just had my Ileo reversed 8 days ago and so far its not too bad. I was in the hospital for 5 days but for 2 of them i had really low hemoglobin so the doctors were waiting to see if it...
Hey guys. I just have a quick question for all the ileo reversals out there. I have a doctors appointment on Tuesday (it's been 8 days post op for my reversal) and I'm just wondering how anyone...
Hey guys. Been awhile since i posted and I apologize. How is everyone? I just got home from the hospital yesterday with having my ileo reversal done. Yay right? But not so much. The 5 days i spent in...
Cleos. I've had my ileostomy for almost 6 months and when i first got home my stoma made lots of noises too. I was very paranoid to go places in fear of ppl hearing the gurgling noises but it does...
I use Sure Seals also. They are so amazing. I have baths and showers all the time and im still able to keep my pouch on for 6-7 days. I love not having to change it as often without the seals. I do...
Summer... would taking immodium with aldohol be a bad idea? I'm paranoid when it comes to that stuff. Equestrian Mom... I am still on medication. 150mg of Imuran a day and a shot of Humira once a...
Wow thank you for all the wonderful posts. I kind of thought that the dehydration thing would be an issue. tbh i dont drink nearly as enough as i should even now so i'd have to be really cautious a...
Hey Everyone This may sound like a weird question but i was just wondering if it's safe to get drunk while having an Ileostomy. And what risks if any there are or what precautions i have to take. I...
Andorable. Not always. Most people with a permanent Ileo have no colon left. Some do. Mine is only temporary. At least its supposed to be which is why im getting all these tests done to make sure my...
Dan, Yesterday morning when i was about to take the first satchel of the Pico I felt a little uneasy and I was talking to my online friend and was concerned about taking it because i was worried...
Success! I got out of taking the bowel prep. Hopefully i dont go tomorrow and get yelled at haha. But I'm going to stick with the clear fluids today (chicken broth, Apple juice water etc) and...
Yeah I read that a lot of places that it's dangerous for ileostomy to take a laxative. But i didnt really feel any concern until now when i have to take it. I feel so stupid. I had 10 days to find...
Hey guys. I have to go in for some xrays tomorrow. A barium xray to be exact i think where they put some barium in my colon and take pictures... I got this thing in the mail and it said that I was...
Thank You Doreen :) I do know that it can come back. I was disease free once before in 2003 when i got some of my bowels removed and it ended up coming back later on. It sucks. but I'm hoping it...
Hey Guys. I haven't posted much on this forum but I could really use some positive feedback right now. Ive had an Ileostomy for just about 3 months and I'm on the stretch of it getting reversed. I...
Yea! that's what is was I'm pretty sure. I knew it started with a C something lol. I did that today and for the first time ever when the nurse took my blood I wouldnt stop bleeding. It was probably...
All good :) Told my surgeon about it and he said it was normal :) I'm waiting on results for my blood test to check the levels of whatever it's called that shoots way up if you have active disease....
Lol that's cute Stripey. What do you do for work?...
Hey guys. I think i read this somewhere on this forum before but i don't remember the answer. I was wondering if anyone has ever had small red dots on their stoma before? I saw my ostomy nurse today...
Hi Heather. My name is Desaray and I'm 27 years old. I've had crohn's disease since i was 15 and have had one surgery before getting my Ileostomy on April 19th. I know exactly what you are going...
I ordered one about a week ago and im excited about getting it. Does she wear it all the time? The concern that i had about getting one was what if i want to lay on my right side to sleep? will that...
NascaRon. You say you use a skin prep with a Moldable flange and a Sure Seal? My ostomy nurse told me that using a skin prep would make them not stick as good. Do you cover your whole area? From...
Hey Guys. You guys have helped me out a tonne with questions and concerns I have. I just recently started using sure seals and I have to say I absolutely LOVE them. I feel way more confident with...
Are there people on here that have had an Ileo reversal? I just wanna get as much information about it as possible before i am possibly scheduled for one in a few months. I've read on here a few ppl...
Melski, It's crazy how alike you and I are going through this whole thing. Ive had Crohn's Disease for 13 years (diagnosed when i was 14) and the whole time ive had it I've known that people do...
Wow reading all these stories brings tears to my eyes. When i got my surgery 6 weeks ago it was unplanned and I only had about 4 days to mentally prepare myself for what i was going to face. I...
Thank you all for your replies. Summer you say you sit in there for hours? Do you have to change your wafer after? or does it weaken the seal? Which product do you use? I change mine about every 4-5...
Hey again. Im sure this has been touched upon but can you bath with an ostomy? Ive had my ileostomy for almost 6 weeks and i dont know how bathing works. I know you would do the same thing...
Omigosh thank you for the reply you two. I have been drinking 1-2 ensure shakes and i drink them for the taste. They are so yummy! lol. I think they have like 6-7g of protien in them. As for dairy im...
Hey :) Ive been reading a few of your posts and you and I are about the same surgery time (im a little over 3 weeks and you just hit your fourth. Congrats btw) I was just wondering if maybe you and i...
I'm just wondering if anyone else has eer experienced tender skin not around the stoma itself but under the tape of the flange? I use the moldable flanges and under the tape part I have really tender...
Ok. Yeah I think I'll wait on the soups. I'm really picky when it comes to food and don't like a lot of things in soup. Thanks for the heads up. How much prune juice do u think it would take to get...
Yea that's understandable. I don't usually eat 2 at once. But maybe bread for lunch and potatoes for dinner. Wat about soups? If I make some soup with carrots, celery, broccoli and cauliflower with...
How much prune juice do you drink? Also, are there any foods that loosen your output? I don't really understand this whole eating thing yet. Usually I would eat a piece of meat with some rice or...
I've been having low output lately. I've been trying to dink plenty of water a day but sometimes it hard. Is there a problem if my output it low? Could I have a blockage? Its not water when it comes...
Also... Did anyone else get a csection scar when they got their surgery? I still have the stereo strips over mine from when they removed the staples. The nurse told me to keep them on till they came...
What do you mean a blow out? And how would i go about loosening it?...
I had my ileostomy surgery 17 days ago and things have been alright for the most part. A lot of paranoia but ive gotten through it. I still have a little surgery pain and a little swelling. I changed...
Thanks guys. Lately I haven't been experiencing a lot of output. When I was in the hospital I got morphine as a pain killer and it would slow my bowels a lot. But when the effect wore off my bowels...