Notsosicklygirl: Agree with your comments. I had two surgeons tell me I was a good candidate for a j-pouch. But, my body told me otherwise. After needing 24 months to recover from the colectomy, the...
Hey Jlang12, You are asking questions similar to what I asked about 9 years ago. I suffered with Ulcerative Colitis (at least, that's the name medical science gave it) for almost 15 years. A few...
ExcuseMe: My advice - go see a WOCN immediately and get that taken care of. Do not let that little ulcer turn into a big ulcer. I have the same problem with hair. I wish I would have had hair removal...
MsKela - w/regards to your surgeon, WTH?! He/she should know better than to stick their finger in your stoma! Good grief. I had a nurse run their finger around my stoma the day after surgery - it...
clo2014: Uhhhhhh....stoma's are not like getting a hair cut or a makeover, LOL! It all depends on your surgeon and his/her history of performing this operation. My stoma, for good or bad, sticks out...
Just read this today: https://www.popsci.com/inflammatory-bowel-cannabis Though my colon is gone, the body has epithileal cells all over the place. So, I'm definitely going to follow this. And, since...
iPoop - won't this be grand if this at least stops the symptoms and the disease progression? And, to think oh so long ago I was strongly against Marijuana. But time, and search for the truth, have...
To all the UC'ers out there who have had surgery. Have you had experience with sudden hearing loss? I just went through a spell where I noticed odd sensations in one ear. when I went to the...
MayDay82 - I replied to bump this up on the forum notes. As far as "re-doing" a stoma, yes I've met people who have had that operation performed. And, If I were you, I'd look for another...
BumbleBri - I'm a guy so can't help much at all, but found this post: https://www.badgut.org/information-centre/ostomies/pregnancy-with-an-ostomy/ And, just do a google search for it - you'll find...
StaceyUK22 - Hope all is well. It sounds like your patient(?) still has a blockage - the illeostomy did not fix it? Let us know what happened....
lilman: What you are saying does not sound good at all. You should have digested food going into your bag from your ostomy from every meal. There should be nothing - maybe mucus/a little blood-...
Hello ostomates!!!! Long time no see, or should I say, long time no empty bag?! I know, bad, bad joke. Anyway, just curious about filters: I have been using convatec natura, with the wonderful...
clarabella: I've had the same thing happen a couple of times, though no nausea or any pain/cramps. The last time, it happened two days in a row. Heck, I just enjoyed not having to empty but just...
Sick4decades: Wow - you went through the ringer....30 years!!! Well, congrats on your surgery, and hope you recover well. W/regards to the rectal cuff, I have the same. My surgeon left it in for "my...
Peace and Harmony: No issues with the beach, but just one observation...if you're going to bake in the sun, cover your stoma with more than just the bathing suit...a book or something else that is...
UB Tough - how much can a human being take? You've been through enough... I don't have Chron's, I had UC...after almost 15 years of living ignorantly, than living on Prednisone in "dreamy" happiness,...
Charlotte: Take your time to recover - this is serious surgery. It is not like getting stitches for a bad knife cut trying to slice a bagel. I don't know how old you are, or how physically active you...
L Rachel, you could wait to have the surgery until you are almost dead....or, until you can barely stand, feel like passing out every 15 minutes, in constant pain, nausea, etc., but that's your...
baggintx11, first, cool name!!! If your output is still moving, doesn't seem like you have a blockage. Maybe just a little too much pasta el dante? I also, a few months after surgery, had some pain...
UCFREE, Congratulations, and happy new years to boot!!! :yeah: A mother of three, a master's degree, and, oh yeah, you survived a colectomy! Also, you didn't miss anything with Remicade...all it did...
Hello all, and a happy new year!!! A quick question about the Sure-fit Natura pouch. The filter - it's not a type I've been used to, round instead of the two 'black lines.' What issues have you had...
A very tiring and exciting/anxious past few days: We left our little town on the Florida east coast in Brevard county due to concerns about a category 4 hurricane hitting near us (that was the...
Hello all: For those who use convatec pouch, the Natura line disposable, this question is for you: What do you think of the 'new' line with the changed Velcro tab? I made a new supply order last week...
Very, very interesting....almost like a BCIR or K-pouch with a much wider opening...but, they had no pictures about how to empty......I saw some comments about knowing when you would need to empty,...
UC - you are one of several people that have mentioned yoga.....I may give a class or two a try...it seems better than trying to pump iron....
cupcakes - thanks for responding....also, interesting what your Dr. said that '...some people are inclined towards hernias and some are not...' I'm sure the surgery result has an influence on that as...
Karen, thanks for responding....to summarize: I started prednisone in January of 1997...and it was the start at 40mg/day and taper down to 0 over three months..again, and again, and again..tried all...
All, I've been in rehab for recurring lower back pain(see my post in the chronic pain section). Had a long discussion with the physical therapist. The question is: do you undertake abdominal...
Serenitee - good to hear about your recovery. Everyone has to make their own decisions regarding permanent illeo, j-pouch, or BCIR. And, each of us are the only ones who truly know what our bodies...
Moderation - and, drink some water after you are done with the other refreshments....
Hello all: Just a brief history, I was on Prednisone for many a year for ulcerative colitis. Had surgery in 2011 - total colectomy, and have been humming along until... About 18 months ago had a bout...
Christine, Sorry about your rectal cuff troubles. I don't have an answer for you on the aloe-vera stuff. But, I do have a question. If I remember those suppositories, they 'run-out' kind of quick....
clarabella - hope all is better with your husband. I saw your list of foods - watch the mashed potatoes, they might actually block things up, especially if they are from the box. Several folks on...
Silent, Sorry for the pain in your hands. It may be arthritis.....or, if you've been doing this manual labor for a very long time, not sure what it is, it could be nerve related - e.g., carpel tunnel...
Guts - agreed on the belt - caused me many a sleepless night 'till i just quit wearing it in bed - much easier to sleep. Glad the 'mis-aligned' velcro strips did not cause you a problem - i'm going...
07Kr5 - if it's not a sharp/intense pain, you are probably experiencing after effects of surgery....they cut that hole in your abdominal wall and pulled your colon out through it...plus a few other...
ByeByeUC- congrats and VIVA ITALIA!!! :turn:...
07kr5 -10 days? you just had surgery! Your insides are still adjusting to your colon being taken out of you. as time goes on, your output will thicken - don't we all just love talking about poo?! At...
enjoygolf- you said you are in Marietta,GA area? Is that close to Jacksonville, FL? I'm asking because I almost had surgery at the Mayo Clinic in Jacksonville - they have several good GI doctors that...
Imad - good to hear you are a few days past surgery...you feel well because of the morphine! :-) And, they probably put 60-80mg of prednisone in your IV drip (you should ask...). If you can get...
Christine, since you are curious about my surgeon, if you happen to visit the central Florida area, e.g. - Disney or Orlando, you should make an appointment to the "Colon and Rectal Clinic of...
cupcakes girl - three questions: 1) what type of probiotic do you use? I've noticed when I eat yogurt late at nite (the 'liberte' brand) my output in the morning hardly smells, 2) the 'Perfect Choice...
CarenZ - thanks!!! :turn: I will take a look at get a sample to use....
This has been talked about before, I'm just checking in to see if anyone with a permanent illeo has found a better, not perfect, but better means of odor control. What odor control product do you...
Guts - let me know what happens...i kept that one on for 24 hours and decided to change..it was opening with no effort at all the next morning, so I pulled a spare from a box I've kept...I could tell...
GC - looks like you've made a decision - good for you! Give yourself time to heal after the surgery - lots of time..... w/regards to your post about your Dr. saying "could be chron's..could be...
Anybody receive the convatec natura drainable pouch in the last 3-4 weeks? I noticed the two Velcro strips do not line up exactly. I went ahead and put one on this morning when changing wafer and...
Christine, I don't mean to be facetious, but I'm a guy.... :turn: Christine - on a more serious note, you're post states all the tests you've had....if they've given you an MRI, scoped anus/vagina,...
Sunny13 - you have a different situation than a lot on this thread..if I don't have output after 8 hours, there is a problem. As far as what I am proud of post ostomy (you mean something I'm happy to...