Equestrian, I use convex light and do not take fiber supplements. Basically, my output goes according to what I eat. So sometimes it's thick and sometimes it's thin. I am allowing myself to eat...
Run4 Just read a bit more of your blog. I went through a very similar experience with UC and prednisolon, it made things quite dramatic for me emotionally but in the end didn't even do the trick with...
Hi run4, I actually don't have the brightest stoma nurse and generally have to figure things out myself, which isn't a bad thing. I have an illeostomy, which is less complicated. It seems I will get...
Hi Trying, well you got back to the forum quick enough! Why didn't they make the pouch this time? I was on prednisolon at the time of my colectomy, and that is why they are letting that heal before...
It leaks when it's not liquidy, because it comes out of the stoma and stays there. Then more comes and can't get out, so the liquid seeps down and dissolves the seal. But toda raba, I'm going to ask...
Hi, I've been an unusual colitis patient in that I kept my weight stable throughout all the flare-ups. My doctor told me to maintain my weight, which is the upper end of normal, throughout the...
Hi, I stil have my ileostomy and won't have a j-pouch until winter. But what I know helps is: 1. Taking pectin -ask doctor 2. eating bananas 3. eating poatoe chips (really firms up stool) 4. eating...
The last time I wore jeans, the stool piled up on the stoma and stayed there, so it leaked. Same with pantyhose, although sometimes it works, sometimes it doesn't....
I'm not wearing a belt, I don't see how that could help from leakage flowing out of the stoma and under the seal. I don't use a wafer, so I only have one part, and it never falls off or comes lose,...
This is part of my leakage issue but I'm posting separately because it has more to do with clothes. I have been buying super large panty hose so that I can still pull them up over the bag. I hoped...
Hello all who answered and thank you, I have to admit I was lazy about drinkin enough this weekend. Instead of drinking the 3 liters, I drank barely 2. S that's what happens... I have a one-piece (no...
Hi, I thought I had gotten the perfect, reliable bag systm together, using a convex-light with a protection ring from Eaken. worked reliably for weeks, except for about on seal leak week. But today...
The stoma nurse said it's totally normal when I feel rectal pressure and have to pass mucous, she said it would happen continually until I have the J-pouch. But sometimes I pass blood along with the...
Are sureseal rings the same as the Eakin rings? Or do they work better? I use convex light bags with an Eakin ring, but yesterday I still had leak because stool was clumping on top of the stoma and...
Would it help to drink the maalox?...
What is Maalox? I had no leakage problems for 3 weeks after the procolectomy. Then I went to a rehab clinic for 3 weeks in which I had constant leakage problems,these cleared up when I got home...
Hi, thank you for writing. My surgeon put six months between first and second OP's, so I'm wondering why he though 4 weeks between 2nd and 3rd. I can't imaigne he was just saying that to keep me...
I would say you really need to have a second AND a third opinion. I got three, and the third was from a gastro who usually wants to give meds and not operate, and she said I should have the surgery...
Hi momof, Basically, surgery is done when a person has reached the end of all the medications they give for uc, and the last one stops working. It sounds like it's time for you to discuss surgery...
Hi Melski, I think I know how you're feeling about talking about it. I noticed I kind of withdrew socially a few weeks before the op, that means, there were maybe three friends who knew about it, and...
Hello Melski, I can imagine how you're feeling. You don't need to feel alone. Most people with colitis don't have to have the surgery, at least, not so quickly. It's usually after a few years, but...
Here's my second question of the day: My colon was removed by laproscopy on April 5th. The plan is to have the second operation six months later, for forming the pouch. So while that could happen in...
Hi, looks like you've just the the surgery only a few days ago. I can completely relate to your questions, and I think that when faced with the procolectomy, our biggest questions are about intimacy...
Hello, I just signed up today, after looking around the net for a few answers regarding ostomy bag size. The last 7 or 8 weeks have been total stress, but mainly because of the kinds of thoughts I...