My daughter was diagnosed at 10 but looking back all the symptoms she had prior, were an indication that something was up. When she was 4, she had severe joint pain. They originally thought she had...
What is the maximum dosage for Synthroid? I started off at 25 and now I'm at 125. I need to go back for more bloodwork to check to see if my levels are ok, but it seems like every 3 months the meds...
I can empathize with you. My 14 yr old daughter who has Crohn's and other mental health issues, with one being depression, has had a hard time the last few months. We are on wait lists every where....
Thank you! She still had no output this morning so her surgeon had us come in right away. I guess this morning a little boy passed away from blockage so the dr wasn't taking any chances. When I heard...
Now I could just be an over thinking, over-worried Mom lol However I'm worried about my daughter. She's been med free and no major issues for some time now. She had her surgery in Feb '09. Anyways,...
Thank you. I've never had my cholesterol checked. For the most part I do eat healthy due to my daughter having Crohn's and ensuring that she and the other kids eat healthy. I know I don't get enough...
6 months ago yesterday, my Dad passed away suddenly from a heart attack, 4 months exactly prior to that my Papa (Dad's Dad) passed away, combination of heart and age. In '95 he had a quadruple...
Thanks for the replies! :-) Sami used to be on Remicade and methotexrate, but because her disease was so far gone, Remicade didn't work and surgery was our only option. She had been on prednisone for...
I was diagnosed with it a month ago and was put on Synthroid 75mg. How long does it take to work? The dr said I should start feeling better after 2 wks, the pharmacist said 6. I still have no energy,...
Sami's blood work has shown consistent high lipase levels. Her dr said that the 6-MP could be damaging her pancreas. Her dose has now been lowered and hopefully because it is lowered, it doesn't...
My 12yr old was constantly irritated around the stoma. We found out she was allergic to the paste, so we switched to a strip paste and use pieces of eakin seals to seal any dips she has (her skin...
So a horrible gastro virus is going around my house. I had it for a week and just getting over it. All 5 of the kids have it now. Imagine 5 vomiting children and 2 backed up toilets, not a pretty...
I honestly don't even know what a J pouch is? Is that what they mean when they talk about reconnection? I get frustrated sometimes because I don't know what to ask all the time, or I get confused...
Thank you everyone. Summerstorm, I think the hope is, is that someday they can reconnect her. But it confuses me because when she had the colectomy done, the surgeon said it would be unlikely. She...
My daughter had a flexible sig done last week and she only has a rectal stump. The only prep was clear fluids, ice sherbert, jello (no red and purple dye ones though) and broth. She was allowed the...
Thank you everyone =) I was wrong, the one scope was not a colonoscopy, it was a flexible sigmoidoscopy. Makes sense now, as she doesn't have a colon. That scope showed the stump is really badly...
Sami is going in tomorrow for colonscopy, ileoscopy, and endoscopy and for more biopsies. They will be checking on the progression of her disease and to see if she will be able to keep her rectal...
I'm in Canada and my 12yr old will be getting it as well as my other 4 kids. The kids will be in a clinical study for it. They are conducting the steady to look how effective the vaccine is in...
That is wonderful news! I'm happy for your daughter!...
I'm sorry to hear about the loss of your friend Sniper....
As all of you are knowledgable and seem to vary in age range, I thought it would be best to ask ppl who know what it is like to live with an Ostomy. As my 12yr old matures into teenage then adult...
I don't know what terminal Crohn's is. Unless it's referred to that way because there is no known cure for Crohn's. I don't know, just guessing. Correct me if I'm wrong but from my understanding it...
My daughter had to get multiple blood transfusion because she bled everyday for months. I remember how weak she was from it. The blood loss even affected her breathing because she didn't have enough...
When my daughter flew to Ontario this summer we had to pack her paste, drops, and powder in a baggie and tell them before it went through the scanner that it was medical supplies. Same with her meds...
The ostomy supplies she uses are the New Image from Hollister and the strip paste is also from Coloplast. I don't know if I can get them to change as I believe they are the only ones covered. I get...
My 12yr old had a total colectomy in Feb of this year and now has an ileostomy. When she removes the flange it's always red and rashy looking. We originally thought she was allergic to the paste and...
I don't have Crohn's but my daughter does. I'm a stay at home mom for now. Finding an employer who is understanding about needing time off for various medical and therapy appts for the kids, is...
I just have a question. What's the difference between these eternal nutrition drinks and drinks like Ensure or Boost? If there is something different I can try for Sami that she may drink that would...
Thank you for your reply. She did do group therapy numerous times. Her longest stretch was for about 9mths when she lived in a Pre-Adolescent Treatment Program. She also has been in a children's...
I have a 14yr old who was diagnosed with GAD when she was 10. She has never been medicated other than when I've had to call the police on her (paramedics had to sedate her). That sounds horrible I...
Hi, I'm new to the site and am I ever glad I have found it! My question pertains to my 12 yr old daughter who had a total colectomy done in Feb of this year. She was dx end of Aug 07 with Crohn's...