I was told prior to the op that the butt wound would be the slowest to heal. It was pretty uncomfortable for the 1st two months. After I had the stitches removed (3 weeks after op) I visited the...
Congratulations ByeByeUC of your anniversary. I am 4.5 years past my perm Ileostomy op & if I had known how good I would feel, I would have saved myself the grief of 19 years of UC. Is there life...
Hi Annadee and Brt4545, I am so glad that you are doing so well. I am sure you both are embarking on a much better, healthier , freer life as each day goes by. Just a example of how I now enjoy...
Hi BeatleGirl, I can absolutely agree with CarenZ post. I had UC for 20 years, had a miserably time, tried to keep going with work & social life - it was damn hard to do - eventually I had to give up...
Hi Annadee, Its certainly a hard thing to do, to face surgery and all it entails. After 20 years of UC & avoiding surgery for 15 years, I had no choice but to agree to surgery. I couldn't work...
Hi annadee I was told by my surgeon, & I found it to be true, that the butt wound would be the hardest to heal. I was dealing with the whole op in one go so I cannot single out the effects of...
Hi Embersglow1, I understand that 'Abdomino-perineal resection' is term you are looking for. I had a panproctocolectomy,end ileostomy & Abdomino-perineal resection in May 2010 after many years of UC....
I havent given my stoma a name but as I have a thing about words & anagrams, I would probably go for Tomas....
hi x5800, as others have answered all your question, I'm gonna be brief. I had UC for 20 years & it held me back to a huge extent. By 2009 I was sprinting to the loo 20 times a day (if only it was an...
Hi Up... I have updated my email address on my profile so please feel free to get in touch & we'll meet for a chat. If you put the kettle on i'll bring the choccy bikkies. I think you can see my...
Upsadaisy, I'm just down the road between Doon & Cappamore. For those who don't know the local geography, thats about 5 miles away. I was also operated on in St Vincents, my surgeon is Des Winter...
hi upsadaisy, I hope you are feeling a bit better, we might be neighbours, I've moved from Dublin 3 weeks ago to east Limerick. I found this marvellous site just around the time of my op in may 2010....
I wouldnt be one for naming body parts but on giving it a little thought & as I like wordplay & anagrams, I chose Tomas for my stoma....
congratulations Blueglass on your anniversary, i think it really is important to mark & celebrate each year of what is for many of us a new life. i put my op date into my cell phone calendar to...
hi renee, i had UC for 19 years & had to give up work because of it, the final year of it was hell, i was going about 20 times a day too, eventually with colon cancer on the near horizon i was...
hi, the question of showering & having to dry the bag comes up as a topic here from time to time, i also cannot be bothering with drying the bag when i shower between bag changes so i use a square of...
hi cfg, i think you are doing the right thing in getting your head around what might be the eventual outcome for your health i.e. surgery & a stoma or a pouch. there is a huge amount if info here in...
hi ritas, i had my colon & everything below that removed & my butt sewn during my end ileo op in May 2010, the butt healing was flagged to me as likely to be the problem as far as healing was...
i certainly do not wish to mock anyones sincerely held beliefs & i am open to alternative & complementary medicines/ treatments but i do think it is easy for others to glibly offer 'better' solutions...
if anyone feels the need to say 'happy christmas to you' in the traditional/native Irish language (Gaelic) say 'Nollaig Shona Dhuit' pronounced 'nulleg hunna ditch' -- please do use this freely as...
Happy Birthday to you Cecilia & many happy returns, ?? did you do anything special to celebrate the day, you do know that the 40s are the new 20s !!...
?? is it too early to wish all of us ostomists, future/ potential ostomists & carers for ostomists a happy Chistmas, if it is too early then i'll hold off 'til later in the week otherwise Happy...
although my UC is gone i continue to have PSC, for this i have been prescribed a vit C & calcium tablet ( in addition to Ursofalk), last time i visited my consultant for my 6 monthly visit, he...
hi salamore, i'm sorry you had such a bad day, i remenber only too well during my 19 UC years that many activities were ruined by the dire need for a bathroom, i had my perm ileo & butt sewn up in...
i think it is a good idea to think through the chat you might have with airport security so that you are prepared if pulled aside and i may be naive but as you will not be doing anything illegal (...
hi jackie, you have been having a tough time recently & its only natural to be upset & emotional, you, I and all the great posters here have been through an experience of sickness, surgery & the...
hi brian, sorry to hear that you are still having problems with the wound, when i have travelled away from home i have brought twice the amount of supplies usually required for the duration,...
hi crosby99, i do a fair amount of excercise, i just love the buzz from it, badminton 4 hrs a week, cycling 25 miles a couple time a week, i also do a lot of DIY & garden work, as example i've just...
hi, badminton is my game, especially in the dark winter evenings, 4 hours a week , otherwise cycling, kayaking, hillwalking give me the exercise buzz i love. unless you have a particular problem to...
hi doreen, during a car crash last summer, apart from a few bruises, the only injury i sustained was a bleeding cut on my stoma, i think the seat belt did this when tightening up on my lap. the cut...
hi, luckily my butt wound healed completely after about 3 months, i gave it aonther 3 months before getting back to cycling. now its 18 months since the op & i never think of this wound, i now...
i got back to driving about 4 weeks after surgery but for quite a while found it difficult to twist around when looking all around for traffic at junctions - also i found the seat belt pressing on my...
i second the vote for velcro - have been using the Danzac version for 18 months & had no problems - except when in a rush twice i forgot (!!!!) to close the bag at all - i wont be doing that ever...
hi dreamer06, the IA (Ileostomy Association) which covers the UK & Ireland will most probably be able to help you. Have a look at http://www.iasupport.org/default.aspx for contact details or join...
hi Rose, this is the link to the product i mentioned, http://www.cmostomysupply.com/cm_html/p_stomshow.html , you may have to cut & paste in to your browser - i dont know how to get the link to work...
hi eva lou, i understand your predicament, you have thousands of questions but all the answers seem to be different for each individual, i felt the very same before my perm end ileo last year, ??...
thanks all for your replies - my stoma nurse agrees with you - we're a bit battered and bruised here today but glad to have been able to walk away from a nasty one - hopefully thats the bad luck for...
some advice please - i have a couple of small incisions in my stoma tissue which is bleeding a little - the location is just where the top meets the vertical sides - its is not sore and only bleeding...
Hi WonderT, its funny that after time i have forgotten the details of the few weeks after surgery, your post reminded me of my butt experience !!! After a couple of weeks my bum stitches were...
esoR, i just love the idea that your recipe can time travel into the future & empty food not yet eaten - used properly a person could get all the emptying for the day done before leaving the house in...
hi geegeegee, i agree that it is hard, very hard to get used to it all, you have just been thru a major surgery that most others never have to suffer , your body is still in shock from the drugs &...
hi jen, i wish you a good few weeks before your op & that the event itself is a total success. re the bum wound, i'm sure you have already found tips etc here, just to tell you the advice i was given...
i may be wrong but it sounds like you are enjoying your stay in hosp !!! ?? how does the experience so far compare to what you were expecting ?...
hi Joe, when you are given choices of different surgery options it is not easy to decide because we have no experience of the possible outcomes & we are not medically trained, it simply is a question...
Its great to hear that things are going well for you W'turd, i am sending you good vibes for continued progress & recovery to vibrant health very soon, cheers & best wishes...
hi, my brother did an organised group 3 day juice detox last year & the must have equipment he had to bring with him was a lot of 'soothing' loo roll, he spent a lot of time in the loo, it went right...
hi shaz, well done, you'll feel like a new woman when you have reached your target - i'm sure you are already feeling the benefit of your progress to date - my weight has thankfully gone the other...
hi wonderturd, i hope all goes well on the 12th - also to Ironmum hope everything goes well on 11th. - i was so glad when my dr said there would be no prep before my end ileo op - just fast from...
Brian I hope you have a good result with the Microcyn - believe me I dont consider you to be complaining at all - you need to get it off your chest & we here have been thru it to some degree - you...
hi Brian, you have my sympathy, you have certainly been thru the mill, i would be inclined to agree with Blueglass about getting another opinion as your current drs are not doing you any favours -...