Mine started as UP then within a few months progressed to Pancolitis. I know have an ostomy....
Thank you all for your input! I feel like I can proceed with confidence. Thanks again! I'll let you know how it goes....
Hi all, I am almost 7 months out of surgery and my well intentioned mother bought me a private Pilates session. I had done Pilates prior to being sick, but not regularly. Now I am terrified of...
Hi Romary, I was recently on Diflucin and had really watery output for a few days after the course. If it happens, no worries. Just drink more. Glad to hear the yeast is clearing though!...
Thanks amused for that tip re: the app. I am going to download it now. I always use a 590 ml Rubbermade water bottle so, in theory, I know how much I am drinking. However, after about the third...
For the first time since acquiring the bag, I forgot all about it yesterday. I looked down on the bottom shelf in the grocery store and noticed a strange bulge in my yoga pants...at first I was like,...
Glad to hear you are on the mend. What are these breathing exercises of which you speak? I had no idea they helped with recovery! Keep feeling and getting better!...
Happy Birthday Harriet! Very exciting! So inspiring to read about someone having an ostomy for so long! I plan on being a lifer myself and look forward to the day when my Stanley turns 35....
Good luck Jackie! I am glad you have come to the decision that best suits your situation! But please keep us ostomates up-to-date with your new internal pouch exploits...you are a treat to have on...
That is so exciting! See, there are still nice guys out there. Keep us informed of the progress with the relationship!...
Hi there, I too have my rectum and the resulting diversion colitis. My doc says that the rectum will eventually have to go, but that I can take some time. I will probably have to have a scope every...
I didn't have a choice re: the surgery and prior to becoming deathly ill with a severe uc flare I was terrified at the thought of it. All that fear was for not though because I love my life now. I...
mom2panda, I was eating everything in sight after the first 6 weeks, but then in October I had a blockage. Not sure what caused it but the last few things I ate that may have contributed to it...
Diva, Your story made me laugh and reminded me of an incident I had at the grocery store. My mom or husband have been helping me shop and lift the heavy bags because I am still havnig adhesion issues...
Hi Enigma, I think I know what you are trying to say in regards to speaking to someone from the nation of Israel. Is my interpretatin correct in thinking you were trying to say it is nice to meet a...
Congrats on part 1! As mentioned before the output at first is horrendous. I remember my husband gagging and yelling at me that he could smell it through the door. Since then I have used M9 drops...
Sorry Jackie the date didn't work out, but seems it was a good thing with the leak and all. Let us know when you have your second first date (l0l)...I am living vicariously through you!...
Hi all, When I had the surgery I was told to eat and drink separatley. When I questioned this the dietician told me that it was to reduce thin and high quantities of output to avoid dehydration. I...
Thanks for the input on the output (lol) B'Dereh! It actually happened while I was awake and watching tv. I was wearing loose pj's and did not have anything on my lap that would have constricted the...
Thank you Dan. I have yet to get around to adhering any vents to any pouches as yet because I kept having leaks (which I hope I have solved) so I didn't have the chance/time to orchestrate the...
Blueglass, you put it so beautifully and accurately...it is like a physical punch when these thoughts/emotions wash over me. My husband keeps saying things like "it is over now, just focus on the...
Thanks for all your input. I am worried about my pants...blueglass, I wear some below natural waist jeans where the top of the pouch sticks out a bit (I usually fold it over), so that may interfer...
Thanks all...guess what? I was saved again last night. I can't figure it out. Two leaks in the same place two nights in a row. I am going to be on watch tonight and try to figure this thing out....
Thanks for the input! I have a covered bag...do I still need the alcohol? How do you make the little holes?...
Anyone use these? I just got a pack but have yet to apply. Any tips? Thanks!...
Good advice!!! I will look into that. Thank you....
Thanks for the info!!!...
I just wanted to share this tale with all those who don't "picture frame" their flanges. I was told to do so just last week by a friend and fellow ostomate. He even gave me the tape (Smith and...
Thank you both. I have a suspicion it may be PTSD. I went down hill fast in May and by July had an ileostomy after being told in early May that I shouldn't worry about needing a pouch. I'll talk to...
I was standing at the kitchen counter today and I realized who much my life had changed since my surgery. On one hand I felt such a sense of wellbeing and graditude for having survived and thrived...
That is great news! I haven't been around long enough to know your full story, but having encouragement from a doc like that must be such a relief. Hopefully once you are up and around more the other...
That is a great tip. Do you know the name of the other, less expensive product?...
Hi Jackie, I did some research re: the fertilty question. It is true that you have less of a chance of having trouble conceiving because you had your surgeries laproscopically. Traditional open...
Jackie, I sent you a message to your email earlier today on this topic....
I have the exact same thing. My doc called it Diversion Colitis. I was told I could use the suppositories I used to use or Cortifoam. The Cortifoam is working just fine for me. Before I started using...
It has been said before, but I agree with everyone that it is a very personal decision. I didn't have a choice...I had to have emergency surgery, but if I had been told earlier that I would feel...
I just ate lasagna with mushrooms the other night...mind you I didn't eat any large ones, but I did ingest several and was fine. This wasn't the first time I ate mushrooms though...I have had them on...
Thanks Jackie. I was on here before but on the UC thread...I had a subtotal colectomy with a temporary end ileostomy. I am in the process of deciding if I want a jpouch or not...leaning towards not....
I had a subtotal colectomy...they left a part of my sigmoid colon and rectum in case I want a jpouch in future. The part they left is called a rectal stump. The end of this (where they cut away the...
Blueheron, that is a great tip (re: having a closed pouch in case of a traffic jam)...I am so going to got get me a box and keep them in my kit. Thanks!!!!...
I haven't had any pouch or stoma-related dreams, but since my surgery I keep having dreams that I am back in school...I miss an assignment, I am late for class, I am sitting in a lecture and not...
Welcome! Glad to hear that you are doing so well. Did your doc say it was ok to take Advil? I was told that I couldn't take it ever again...I'd check that out. Sounds like you and I have had very...
I haven't had an ileostomy for that long, but do have the mooping issue (I call it mucatating). I was told that it would continue so long as I have a rectal stump because I have Diversion Colitis...
I lie down. I learned to do it that way and it has stuck. I remember I tried to do it once sitting in the bathroom shortly after surgery and almost passed out...I think it was from being still too...
So glad it cleared for you...I was in the same boat last month. Horrible. But I didn't have an NG tube...maybe stupid but I just couldn't bear the thought of it. After the blockage cleared (it was...
Wow, blueglass, it sound like it has been a rough go. I find that the support of a loving partner is soooo important. My hubby was instrumental in getting me through my rough patches; I am glad you...
I had a boil once on my inner thigh. Awful. Sounds about the same as yours Christine...I did the hot compress thing and waited until it came to a head...like blueglass said the thing will drain and...
Yikes Trigirl! That sounds awful. Had a similar experience at the end of October...not sure what triggered the event but the cause was an adhesion that completely closed off my bowel. Somehow,...
Hi Jonesie, I hear you about the accidents. Luckily mine is acute rather than chronic (for now at least), but I have had two flare-ups this summer, which makes me a bit stressed out as the incidents...
Hi again, I totally don't believe that stress and diet aren't a factor. I sometimes think the medical professon forget about the simple solutions because they are brainwashed by the pharmaceutical...