Amazing! Good for you, Pancakes! Doesn't it feel good to be on this end of things?! ~Lynn...
My daughter struggled with lack of appetite after the second surgery and got down to 78 pounds from about 100 lbs going in. She got on cyproheptadine (periactin) to increase her appetite, and we got...
Congrats and have a great time! Thanks for the support you've given to Rachel and me! xoxo...
So wonderful! Glad you are to this point. And March 19th is a lucky day - I met my husband on that date! I will be sure to think of you then and wish you all the best! ~Lynn...
I'll be interested to hear other responses. My daughter had take-down surgery in late August and her j-pouch has been amazing. We took her back to college in January after a 15 month medical leave...
That was it exactly - she was taking in so little nutrition initially that her abdominal incision came wide open - we packed that thing for 6 months until it finally healed up (with a little extra...
Glad to hear you're doing well, Pancakes! I'm keeping you in my thoughts. Say hello to the nursing staff up there from Rachel and me!...
Oh - so sorry I didnt' see this until now. She also took it three times a day. Is down to twice a day now. Try the Carnation VHC - that really worked for Rachel. She put on weight when she added that...
Best wishes and good good thoughts to Jackie and Pancakes and anyone else! May your results be awesome! xoxo...
Each Benecalorie came in kind of a small yogurt container and was a thick white substance. Rachel said she could definitely taste it (bad) and it was somewhat gritty. She just couldn't tolerate it...
Hi there, Mollyseven - lucky I peeked in here today because I rarely do these days. Rachel was put on Cyproheptadine which is also commonly called Periactin. It is given to children with cystic...
Hope all went well and that he is doing okay. You are all in our thoughts....
Hi. Haven't been on here in a long time. My daughter Rachel had three step this year and had takedown in August. She's doing very well and heading back to college in January after a 15 month medical...
It sounds like you're doing great! Glad the output has slowed for you but sounds like things are on track! We're thinking of you each and every day. Glad to see you're going home! xo Lynn ...
I just caught up with your blog the other day as Rachel and I were wondering when you were having your surgery. We will be thinking of you and wishing you the very best, Pancakes! I know it's a long...
Sorry to hear you're having troubles, blueglass. Weekends and holidays are always when our issues arise also. And I hear you on trying to get wounds to heal. Rachel's midline incision has been...
Thinking of you today blueglass and wishing you all the best. Here's to no more surgeries after this! Thank you also for your wise and kind words to Rachel last week - so much was spot on. We...
I remember feeling the same way. I was at my yoga class a week or two before Rachel's first surgery and I was trying to find some calm in me somewhere. I remember doing corpse pose at the end, which...
We were talking to a doctor friend of ours over the weekend about what Rachel experienced going from 8 Imodium a day to none, and before we could even tell him our suspicions he said, "Opiod...
So glad to hear! I think of his success story often and so enjoyed the video you posted earlier this year. Good to see him enjoying himself so! Thanks also for the kind words you had for my daughter...
Awwww, so sorry to hear this, Blueglass. I'm sure it's the last thing you expected. At least you now have answers as to why recovery has been so slow for your wound and hopefully this will take care...
I'm glad you had things checked out, Dec. I say when in doubt, check it out. I hope things get easier for you. Rachel (she's ElddireMsihT on here) had her second surgery for the formation of the...
Have you contacted your surgeon regarding this? I would ask them about it. Cuffitis is usually diarrhea with blood - this doesn't sound like it to me. You just had surgery so I'm sure there is...
I'm ElddiReMsihT's mom (from above earlier post) and i've got to say that it's a tough thing for a mom to see their child go through the ravages of UC and through hard surgeries. My daughter was...
So very glad to hear that Brandon is doing so well! I bet you're smiling even in your sleep, Pam! I know I am! /community/emoticons/turn.gif Here's to smooth sailing the rest of the way. It sounds...
Yay! Pam, I'm so happy to see this post! So glad Brandon is feeling good, getting sprung, and taking charge of things. You're through the hardest part! Keeping a good mental state is important. I'm...
My daughter started with Hollister - really liked how they worked - but developed allergies to the adhesive in them. She switched to Coloplast as they are considered one of the more hypoallergenic...
Pam - everything's going to be okay. You are in good hands at the CC. Brandon will come out of surgery later today and he will no longer be flaring. His sick colon will be a thing of the past. It's...
My daughter had the three-step. The first surgery took about 3.5 to 4 hours. Second surgery was similar in length. Final surgery was about an hour and a half - longer than typical because she had a...
Hi MotherofTeenwithUC. Rachel had three step surgery at the Cleveland Clinic in Cleveland with Dr. Jon Vogel. Her first surgery to remove her colon was in January, second surgery to create Jpouch was...
She's doing very well - way beyond our expectations! She's being discharged tomorrow! We have a long drive ahead of us (5.5 hours) and we're hoping to beat hurricane Irene! Luckily we're only...
Rachel (ElddiReMsihT) had her take-down surgery on Wednesday at the Cleveland Clinic and is doing very well. Gut finally woke up today and she is looking forward to getting off the full-liquid diet....
Hi worried mom and pancakes! I'll make sure Elddi sees your posts - she hasn't been on here much lately. She's having take-down surgery on Wednesday! We leave for Cleveland for pre-op on Tuesday....
My daughter (ElddiReMsihT) is having her take-down surgery in two weeks on August 24. Our concern is how much pain there is initially? Everyone mentions gas pain - is it intense? A few times since...
Glad to hear you are using the disability accomodations - we found it so helpful. Rachel was able to reduce her course load because of disability status which was really helpful. They bent over...
Hi. My daughter, who goes by ElddireMsihT on here, is having her reversal on August 24 so she'll have to check in with you all to see how things are going. She had to leave her freshman year of...
Congrats and here's to moving forward. Your stoma will also get smaller over the coming weeks - daintier!!...
What a nice idea! Hugs to all of you! ElddiReMsihT and I could use a few hugs, too. Takedown surgery has been pushed back until August while she gets some weight on and gets rid of an infection in...
Thank you so much for that! It really lifted my spirits to see! We're still having some troubles here recovering from surgery #2 of 3. ElddiReMsihT is still working on getting the appetite back as...
So happy to hear it went well! Good luck on your continued recovery - I'm sure it feels fabulous to be done with the surgeries! Can't wait to be there with my daughter! Keep us posted....
Thinking of you today and looking forward to my daughter being where you are in the process!...
Betsaronie - just wanted to wish you the best on take-down tomorrow. We'll anxiously be waiting to hear how it went. ElddireMsihT has her's scheduled now - July 20. Can't wait!...
We are now walking a mile and a half a day!! If you'd told me that a week and a half ago I wouldn't have believed it. Amazing what a little nutrition can do! From here on out it's HEALING for...
So good to hear that everything is going so well, Pancakes! I can't believe you are running already! How wonderful! Things had been rough here until recently. Rachel was finally put on an appetite...
My 19 year old daughter is going through the surgeries (has had two of three steps) at the Cleveland Clinic. A lot of people on this forum have gone there as they are the number one place in the...
Dee - you are so right! This site is a blessing. It's also a huge help to those who are caregivers like me. I appreciate all the support, too. Good luck with your surgery. It is okay to be freaked...
Thanks all. Worried Mom - glad she's doing so well. I just read another post you made and it is wonderful - not even on Imodium! I'm happy to report that the appetite stimulant has worked! Rachel is...
Took Rachel to her primary care physician yesterday and he put her on an appetite stimulant. She was down another 3 pounds since that last weigh in. He wants us to get at least 1600 to 1800 calories...
Blueheron - thank you for sharing that. It sounds so familiar and gives me hope. I know we've pulled her out of worse and I keep telling her that this is going to be the last time we have to build...
She went on TPN because she was losing so much weight due to a bad flare of UC. They decided to give her gut a rest and gave her all of her nutrition thru TPN. Our local ER misdiagnosed sepsis....