I'm usually on a different chat forum because I have my own major medical issues but I saw this one and just had to make a comment. My 23 year old son was diagnosed with Epilepsy when he was 8. He...
Hi everyone, I haven't been on this site in months either and I was a little bored right now so I thought I would check out how everyone is doing. It's been 7 months since my take down and I'm doing...
I enjoyed reading all your comments on this....you guys are always so good with advice. Hang in there girl. Good men are hard to find but they are out there. I'm 59 and went through a terrible...
I found the instructions on Bluegrass string where it said she posted three pics. Here's the instructions I followed.It's at photobucket.com, login crohnsdisease, password 6mp3asa :)...
Hi guys,I followed your instructions and signed up to the Photobucket album. I posted two pics of me that was just taken this month after my Surgeon and my Oncologist appointment. It's been 4 months...
Thanks everyone for your comments....I'm just finally getting a chance to write back again.I "do NOT" have a jpouch. I saw my Surgeon 2 weeks ago for post-op (which went pretty good). I asked her...
I've been on and off of this site so many times and I truly love it and love reading everyone's comments when I get a chance. I wish I would have known about this site when I had my first...
I had my take down surgery on December 29th. The take down surgery wasn't very long but the surgery 6 months prior where they removed my perforated colon completely took almost 7 hours. I know you...
Hi had my colon completely removed and then the take down surgery 9 weeks ago. I've stayed away from beans because of diahrea problems. I've had people (non colon friends) say that beans are hi fiber...
Ok, I had my take down on December 29th and I have so much diarrhea that it isn't funny. I had to stop eating fruits, veggies, beef, Mexican food, Chinese food or I lived on the pot and my botton was...
Maybe I'm a little different then some of you because my Colon was removed due to Diverticulitis which perforated my Colon a year ago. I had a bag for a year and after 2 more surgeries I finally had...
I got severely dehydrated a couple of months ago and didn't know what it was. I was getting terrible leg cramps and charlie horse cramps. People told me I needed more Potassium so I was eating...
Hope you are doing better. It was 4 weeks ago today that I had my take down and I still struggle with gas and diahrea but NOTHING compared to how I felt the first few days after surgery. My prayers...
I started having gas stirring around after about 36 hours and then on my 3rd day some BM started coming. On the 4th day they let me have clear liquids, all I really wanted was ice water, I ate the...
So glad you addressed this question, I was to afraid to ask because it's only been 3 1/2 weeks since my take down and I have terrible gas and diahrea right now. My husband is very understanding. We...
WOW.....I wish I would have known about the sure seal. I had so many problems keeping my bag on. The best thing that finally worked for me was the belt and then the abdomen binder over it. I'm so...
I agree with what the others just said. I no longer have a bag (take down was Dec. 29th), however, I remember getting the bumps and fungus and they gave me an anti-fungal powder. Yes I was able to...
I love reading all your comments. I wish I would have found this site before the take down. It looks like most of you had a take down because of Crohn's disease. I had a bad flare up of...
One of you asked me if I have Jpouch or connected directly to my rectum. I was connected directly to my rectum.....I guess that's good but it's still a BIG pain. I didn't even know what the Jpouch...
Boy does this bring back memories of having an elisotomy bag. I had so many problems, I wore the two piece most of the time, it seemed to work the best for me but what finally helped the most was...
Thank you everyone for your comments. You have all been so helpful. My Surgeon did email me back and said I can increase the Metamucil to 4 times a day and if it doesn't get any better in a week then...
I just had my 3rd surgery in one year just two weeks ago today. A year ago my Colon perforated suddenly because of Diverticulitus, they removed 2/3 of my Colon and put a bag and drain on. 6 months...