I don't understand how Prednisone can make you feel panicking one day and great the next. What do you mean you don't want to discuss this with your doctor "because they're talking about putting you...
Have you been tested for a bladder infection? I cannot believe a hospital would have you take Flagyl, knowing you were allergic to it. That's a huge liability risk they set themselves up for. I don't...
Yumi, my daughter had facial hair growth that went away after stopping Prednisone!...
I'm so sorry you feel this way. It is a very isolating illness. Wow, you've already been on and off Entyvo? How long were you on it? Until you get rid of the CDiff, you'll continue to feel poorly,...
We were never told this! Now I'm in a panic :(. My daughter has been on Humira for 11 months and she's always had a lot of moles. What is it about Humira...is there a proven link between Humira and...
My daughter had 2 step....colectomy & JPouch formation and temp ostomy 9/30/11 and then had take down 3 months later 12/28/12. Good luck to you!...
White blood cells increase during infection and inflammation. Not sure what "6-30 HPF" means...
Dramamine might help....
Prednisone wreaks havoc with your body! It is very, very normal to have anxiety, depression, panic attacks, etc while taking it, and even after you stop taking it. My daughter couldn't sleep when she...
Endocet is the same as brand Percocet. I agree 1000% that all generics are NOT the same. I have to call around every month to find the pharmacy that carries Endocet. I have used others and they...
I would either ask your Dr for samples and tell him you cannot afford it (it is going to cost you hundreds). There an older form of Lyrica called Gabapentin (sp?). It doesn't work as well, but it is...
Wow...I totally understand your concern. I cannot believe she has been throwing up for 4 weeks! That poor girl :( She probably fell because she has no strength since she hasn't eaten in so long. I...
This doesn't surprise me! They probably don't make any money off of the DS, so they don't want to be bothered with it. Just transfer your prescription to another pharamcy...
I forgot to add that my husband was 46 when he was diagnosed. We first took our daughter to Cedars Sinai in Los Angeles. They have an incredible Pediatric IBD center. We agreed to be part of a...
My daughter was diagnosed with UC at age 10. Six months later, my husband was diagnosed with Crohn's. He went for a colonoscopy at the urging of our daughter's physician. He should have been...
Your story sounds just like my daughter. She had her colon removed almost 1 year ago and had a rescection exactly 3 months later. Everything went really well with the resection and she's doing great...
When my daughter got REALLY sick, she would always throw up and she had UC. Why do you think it is more than UC just because she is throwing up? I would think with the IV steroids, she would be...
You don't need a prescription for it, but I get the feeling it's time to find a new doctor!...
It sounds like your Dr. is just trying to cover all bases. Your son would definately NOT be running around the park if he had C Diff. Maybe take another test next week?...
My daughter was on Pred for many, many months and had all of the same symptoms you have. When she was totally off for 2 weeks, her Endocrinologist ran some tests to make sure her adrenal glands were...
It sounds like your symptoms are from the prednisone taper. I agree about getting another opinion about Mesalamines. My daughter developed pancreatitis after taking too much mesalamine...
It's always good to hear success stories :) I am glad to hear you all are doing so well. My daughter had her take down on 12/28/11 and all went well. She did get pouchitis about a month later, and...
From what we were told, it's pretty much "anything goes" the first few weeks after takedown...meaning gas, many bowel movements, pain from healing, learning what foods you can tolerate and not...
My theory is take advantage of the time you are feeling good! Why disrupt that with a colonoscopy? :) It all depends on what your Dr. recommends, but personally it would be on my "to do LATER" list...
I have heard good things about Benebiotics. I HATE paying $60 for VSL (insurance doesn't cover it) and I'm not convinced it works any better than the less expensive ones...
My daughter had reversal done about a month ago, so obviously wevare not experts! She has very few issues with leaking. She feels better when she exercises. She has pouchitits right now, but she...
A physician who offers his/her patient steroids, remicade, etc IS doing what they feel to be the best treatment. Going to an MD and expecting them to be informed about how acupuncture can help UC, is...
My daughter has been on Cipro for 9 days, but yesterday she started feeling really bad again...like she did before her pouchitis diagnosis. Up all last night pooping and in pain. She even said "I...
Trojan While alternatives are great (we tried many alternatives), I think you are over generalizing when you say it's a shame that Dr's "run through their list of drugs and then on to surgery". That...
The dreaded pouchitis has turned out to be no big deal! She was feeling better after her 1st day on Cipro. Amazing how quickly some meds start to work. We meet for a follow up with her surgeon on...
Rice, rice and more rice!...
My daughter had "weird stomach aches" for about 6 months before she had her first flare, we thought it was lactose intolerance, but it didn't matter what she ate. Thanksgiving 2008, she started...
Haven't tried that product, so I have no advice! My daughter is VERY anemic and started taking Bifera and has noticed her energy has gone up. It is a newer brand, kinda hard to find...
Time for a new doctor! This disease is stressful enough, you don't need to add a dr you don't feel comfortable with. I can't believe she hasn't had you get any blood tests! That seems really weird to...
Congrats!! I think it was 2 days before my daughter had anything by mouth and by 3 days, she was eating solids. I hope your recovery continues to go smoothly :)...
All signs point to pouchitis :(. She felt a little better after 3 Cipro doses. She hasn't been taking probiotics since her 1st surgery in September, so I want to get her back on probiotics...VSL is...
/community/emoticons/cry.gif Flu-ish symptoms started on Sunday. Last night she was up every other hour (pooping). Our Dr. called in Cipro and she just took the first pill. I really hope she can...
I don't understand how you are going to poop...they will take out part of your colon like a resection and then you will still poop out of your rectum? That is too bad the GI Dr. Walked out of the...
A&D ointment works great for the sore tush!...
How do you know Immodium is causing bleeding? I would think the fiber would be the cause. My daughter just had jpouch surgery and she takes immodium and probably always will. I don't think it is a...
Hi Florida friend :) Kristi...I am in southern California. Message me!...
Oh gosh..what happened? My heart goes out to her family...
We used Hollister 2 pc bags with sure seals. The adhesive spray and powder was a huge help. I would recommend the shower first and then the bag change. She WILL get thru this! Email me if you need...
Omg...do not eat salad! That is way too much for your body to handle right now. Stick to cooked veggies for now...
Sorry, just saw the lomotil comment. Try immodium instead. Lomotil didn't do much for my daughter when she had her colon, and it's prescription...over the counter meds are so much easier!! No waiting...
Are you taking Immodium or anything to slow your system down? My daughter takes 3 pills a day and she never goes more than 8 times a day...usually 6 You can also add pectin or things like metamucil ....
When is your birthday? My daughter had her takedown on dec 28th and she is doing great. She averages about 6 times pooping a day. She doesn't feel the need to stay close to home, and this is huge for...
This happened to my daughter a few times...not fun! Thank goodness it wasn't in public and thank heavens for washing machines!!! :)...
So sorry you have had such a rough time. I hope things calm down for you soon. Best of luck with nursing school!...
Hi! She is doing well :). She's been fortunate in the fact she hasn't had the massive trips to the toilet...maybe 10 at the most and that is rare. Her incision is icky looking, but dr says it is...