Hello all! I haven't posted on here in a very long time. But I will never forget how awesome this online forum was for me during the hardest years of my life during my experience with Ulcerative...
Hello all! I haven't posted on here in a very long time. But I will never forget how awesome this online forum was for me during the hardest years of my life during my J pouch experience. I wanted to...
I have found that it really, truly, depends on what you eat. If I eat vegetables all day long then I will empty my j pouch probably about 4-5 times. But if I eat oatmeal and a banana for breakfast,...
I always told myself to wait 4 weeks until I tried sushi (it's my FAVORITE food ever!!) But I always order the wraps with soy paper or rice paper instead of the seaweed, most sushi places have that...
Hello everyone! I haven't been on this site in awhile, I've been super busy getting back into school and work and everything. I actually graduate with my B.S. in 8 weeks, I can't wait! This time last...
Hey guys! Haven't been on here in awhile. Hope everyone is doing all right! I've had my j pouch for 3 months now, and I am seriously loving it. Are there any other j pouchers out there though who...
I was on remicade for 3 years. When my body started rejected remicade they started me on humira, which did nothing for me. It was pretty much after my remicade stopped working that I decided taking...
It's now 6 weeks post op from my j pouch surgery and I've been having some strange pain in my belly. It's lasted for 2 days now. It started Wednesday night about an hour after I ate a sandwich from...
Yes I'm no expert but I would say maybe start taking daily vitamins and stay hydrated. Exhaustion is the worst, I feel for you! Hope you figure it and get better :)...
What are some safe alcoholic drinks to ease into after the j pouch surgery... Is wine easiest on the stomach? Or liquor? Or beer? I don't want to overdo it but I wouldn't mind enjoying a drink every...
I had my j pouch surgery 3 weeks ago and I still feel like my stomach is occasionally super bloated! Does this go away in time, or does it fluctuate with what I eat? And if it fluctuates with what I...
I had my surgery 3 weeks ago. I haven't had a whole lot of problems with runny stool and diarrhea, which is what I guess causes it the butt burn. But I do have occasional itchiness and dryness. My...
Marianne that is the best news ever, thank you!...
What exactly is pouchitis? I was told by the nutritionist at the Clinic before I was discharged from my j pouch surgery that this will be something I need to look out for, basically for the rest of...
I am slowly beginning to start living to eat! I've mentioned this before on other threads. Now that I have my j pouch and I don't have to take any more medication I consider my diet my natural...
I lost 20 pounds post my surgery but I am slowly gaining it all back. Are you making sure you're eating a lot of cheese and bread and peanut butter and other thickening foods? Be sure to DEFINITELY...
Leaking issues can make the whole thing so much more of a hassle than it needs to be. I had a temporarily loop ileo for a couple months that leaked so bad whenever it wanted that I had to change my...
Okay I know I keep asking about the kinds of food I can eat but I always seem to find myself making rationalizations for soft foods even though they appear on the DO NOT EAT list that my surgeons and...
This actually happened to me. My surgeon told me it was nothing to worry about. I've had reversal since and everything seems to be working okay so I don't think it should freak you out too much. It...
Yes I agree with this completely! Right when you think you are tackling everything with all you can, something can always happen. Glad everything is okay with ya though!...
Yes pancakes! This is exactly what I am going through. It actually is kind of DIFFICULT to empty my j pouch. I seriously never thought that would be the case. I was preparing myself to have no...
I am not one to burn bridges with anyone, ever. I personally have a really really hard time doing that. I'm truly proud to say that I don't have any enemies, and while some people have drifted apart...
Yes I know that my posture sucked right after surgery from walking so much but being hunched over, since I couldn't completely stretch my stomach up the way I normally would walk. (But my posture is...
Yes I have a handout of a ton of foods to eat or not eat. But I was told to eat a lot of thickeners at the very beginning to prevent quick frequent trips to the bathroom so early on. Maybe I am being...
Never thought I'd be asking this... but is it possible to have constipation with the j pouch? I've only had mine for a week, and I'm not sure if it's gas pains or if I am just actually constipated....
I have just recently started dating someone new. I started dating him with my ostomy, and he seems to be sticking around even though I am now going through recovery from the j pouch surgery. He is a...
THat is so awesome! Being off a lot of medication feels so great, especially when you notice things like this. That's very cool....
I was told by my surgeon that diet post my j pouch surgery is similar to post diet after my previous 2 surgeries. He said to imagine I still have the bag, except the bag is just now inside of me....
I was told by my surgeon that the rectum essentially is just an extension of the large intestine, aka it's an extension of your colon. I had the 3 step surgery done not because it was an emergency...
I am so sorry you are going through such a frustrating time with this Bdereh. It sounds like to me you might be eliminating something more than just what you eat. The only thing I can relate this to...
I am moving up to a GI soft diet this morning. I am on oral pain meds (vicodin, which the nursing staff tells me is the milder of the oral narcotics I could be taking) and it seems to be working. It...
Okay I am now being taken off my pain pump and onto oral pain meds. I took a shower this morning and it felt so phenomenal to let the water run over my wound and not have to worry about bag...
So it's day 2... I caved and started using my pain pump again last night at about 3 oclock in the morning. I woke up and felt a throbbing pain near where my stoma sight used to be. Doc and nurses are...
I am no longer in any pain but I'm still hooked up to my pain pump. I have been walking seriously all day long. The only time I am sore at all is when I get up to move after having sat still for an...
Does anyone know how long it should take for my bowels to wake up?? My surgeon expected me to be up and out of here by tomorrow, but it's already 6pm now and I haven't had a single BM. I am on full...
So it's my first day without my bag at the clinic. Had my takedown surgery yesterday around 3 oclock. All seems fine, but my bowels are not awake yet. Nausea seems to come and go. I have been feeling...
That's what I was curious about. Beans and high fibrous food, with my bag now, give me so much output and it is not very "formed" output either. I am wondering if this is similar output that I will...
Thanks guys, this all makes me feel so excited about my future! I am truly starting a new life after this recovery is over, I think. New diet, new people, new fresh healthy lifestyle, I'll be able to...
You are up and walking around at the mall just 5days after your takedown?? That is so awesome!!...
I also have been considering becoming vegetarian beginning immediately after my takedown surgery. I hear from many people that this is cleaner healthier diet, and I don't eat much red meat anyway....
The time is finally here. It seems like I'd never see this day coming but in 5 days I will be having my take down surgery. I have been reading so much from everyone else's successes on this forum and...
With my end ileostomy, I changed my appliance every 3-4 days or so. When it wasn't time to change it yet, I always took my bag off and left the flange on while showering. I hated waiting for the bag...
I've always been told mushrooms are very hard to digest, and so is red meat. So to agree with Sue, I say you threw up because of that, not because of the butter. Have you vomited from eating other...
Congrats! Get plenty of rest and keep us posted on how you're doing! We're all excited for you!...
Haha I wouldn't say I have nightmares about it, but it's gotten to the point that corn and popcorn are the only two foods that I KNOW I NEED to stay away from. I can tolerate everything else,...
All right this may be a stupid question but I wanted to ask anyway. When I was sick with UC for 15 years I was told to stay far away from fiber in my diet. Whenever I ate anything too fibrous it...
I drink Gatorade too, but if you don't like Gatorade I also drink pedialyte (sp?) the apple flavor packet tastes awesome. And I too drink a vitamin supplement, I am a fan of the nestle chocolate...
this is hilarious thanks for sharing!...