Thank you I will have to look into that :)...
:shakehead: oh my goodness that is not good! I hope it isn't that either for her sake! Does she get Remicade by any chance? It's supposed to help. And they said cyclosporin (drug for people who have...
Omg that is going to feel like forever... My wound/ostomy nurse said that its one of the top 5 worst cases shes seen... I need to quit making everyone's top worst lists.. My GI doc, my surgeon's, the...
Thanks I do get Remicade its been on hold bc I had surgery and an open wound thats slow to close and heal. But I think its time regardless for it. My GI doc is supposed to call early next week about...
I saw my wound/ostomy nurse yesterday and she diagnosed me with pyoderma around my stoma. It hurts so bad and I am pretty sure that the layers of skin are separated between the ulcers. She has me...
Chronielass- were your fistulas painful? If they were, were they painful all of the time? I have been taking my oxy for pain 3-4x a day but the pain has increased this past week that it isn't helping...
I will not agree to another ostomy this time around. It is so much easier to deal with changing gauze and abdominal pads than a whole bag setup... Ugh. I have thought about that. I will be very...
Thank you. I hope I can finish too. It's my last chance or I'd have to do the whole program over completely which I have no intention of doing. My husband and parents are the best my husband spent...
I am in my last semester of nursing school. It was very stressful before I got sick and diagnosed with Chrons. I had to take a year off because of how sick I was and all the surgeries. I take it one...
I've been on Remicade for over a year. The fistula formed in August last year. I got c diff in December which made it bigger and the output ridiculous. It has slowed down, but also depends on what I...
I had an appointment with the physician's assistant that works with my GI doctor because I couldn't get an appointment with him for the times that worked for me. She talked to me about increasing my...
The office can't get me an appt with my GI doc til 3/26 and his PA until 3/6... I may just go to the main hospital where they should have capabilities to do the HIDA test... I don't want to suffer...
Is it just me or do some doctors treat you like you are "crying wolf" when you go into the ER frequently? I came in and was given an abdominal ultrasound of my gallbladder and offered tylenol for...
It is cool to hear how it is different from country to country. Sorry, I've been told I shouldn't be in pain to the pain meds I was being given should be more than enough without breakthrough meds...
I can pass a 6 mm kidney stone with ibuprofen and a heating pad and have done so on more than one occasion without narcotics. So I'm not a stranger to pain before my problems with Chron's started and...
Has anyone had a surgery where they broke up scar tissue in your abdomen? I'm getting a fistula repaired hopefully in May, if not sooner.., and my surgeon said he would be breaking up the scar tissue...
No the gallstones have never been addressed really they were just found on a ctscan and xrays for other problems. They haven't caused a problem... yet. And I'm trying to gain back the 30 lbs I lost...
thank you. I did call my surgeon and left a message for him to call me back. I know I also have gallstones so I don't know if that could be part of the problem too because there is pain in my upper...
I had a temporary ileostomy until July when I was reversed. A week later an abscess formed and a fistula resulted from that process from the reconnection site to a scar right below what is left of my...
My reversal is tomorrow and I am excited! I don't think it's sunk in because I'm not that nervous at all yet... What can I probably expect after the surgery? I'm also getting a fistula repaired......
I go to an appt with my surgery to discuss the reversal again tomorrow. I really hope it goes well. I found a different company that carries the supplies That worked before and all seems well since i...
I hate leaks. I hate changing the bag in the middle of the night due to a leak. I hate being paranoid about doing certain things like bending over because it seems to loosen the bags seal when I do....
This past week the temps where I live have been in the 90's and of course my bags decide to go on the fritz. I was getting 3-4 days out of a bag and now I'm lucky to get 12 hours to a day out of one...
I did speak to the dean. Its 'against their policies to give an I.' Thats some crap right there... Yes i can see being a better nurse because of it. Idk if im ready to deal with everything i'll see...
Haha i do the same thing only it doesn't stick lol. It's taken me 3 months to gain 8 lbs. i've kind of accepted i'll be extra tiny for awhile and started to buy clothes that fit better. As for my...
I should have graduated in december to be an RN... I was four weeks away from graduation when I was hospitialized... This was my first flare of this crap and I lost half my colon already. How do you...
I did call them. They told me to take benadryl didn't help. Sent a prescription for a higher doseof prednisone kid of helped... Took an allegra and bam the itching stopped and they went away. My docs...
I can eat. I can eat a lot too. I'm just wondering if it was the small area affected in my small intestine thats the culprit? Or being down from November to march/april that did it? I was on tpn amd...
They went through my stoma during the colonoscopy and said about 40cm of my small intestine was affected and want to have another remicade treatment to see how well i do. Bah. Take it out. I have 1/2...
I've lost over 40 lbs with this first flare... went down to 89lbs on a 5'2 frame, which I was not built to be. I'm up to 97 after almost 3 months. My GI doc said it will probably be until...
I'm getting re-evaluated for a takedown of my ileostomy in July and I was freaked out by knowing staples will be in me forever. I'm glad to hear they get encased in flesh... kind of freaked out by...
My colonoscopy before my takedown surgery was not so good. It showed Crohn's was in my small intestine towards the end. Not much at all from the pictures I saw... Looked a million times better than...
I flew back in May. I got a note from my doctor saying that I need to be permitted to carry on my supplies on the plane. I pre-cut a few bags and left my scissors at home though. No my bag did not...
This rash seem to get worse on pressure points (like my sode or back where i sit or sleep on) and around the waistband of my pants. Its moving around... I do not understand it and hope it goes away...
Cortizone pills are making it much better and they are going to probably premedicate me before my infusions now. I think I never got the hives begore because I was on predinose in high doses for my...
A week ago I got a remicade infusion. Today i started to get itchy and the past few hours a red raised itchy rash thats pretty much everywhere... Has anyone ever had this? I thought it might be...
Wow you're really lucky to be alive! And thank you! I have a few of those. My bags about the level of where my belly button used to be. I was cut and glued back together right across there. And then...
Allbluezoo- i found a tankini at target the other day that the top seems long enough. I'm hoping a skin colored belly band under it will keep everything hidden. I also bought a one piece im not sure...
Ikeaveney- i hope your reversal goes well! Why would they put your stoma in a crease?... They had the ostomy nurse come in and pick out where mine would best be placed. That is a crappy deal. :/ i'm...
I was just diagnosed this past december... From november to march I was in the hospital 3 out of four months... Not all at once. 2 1/2 weeks after my first colonoscopy and I was a direct admit to the...
The one instructor that did help me out with finishing the lecture part last semester was awesome. I know they are busy right now with finals. (it's aggravating watching people who were a semester...
Its funny u ask about an advocate bc there isnt one. My advisor knew less than i did about graduation application, etc. Her, the dean, the bursar have all shown how much they care by not answering my...
Ah im just worried i'll have flashbacks or something from all of this taking care of someone. Being in the hospital alone gives me the chills... Traumatic is a good word to describe my stays... Idk...
Thank you! I'll have to pick one up next time i make it out :)...
I can't swim yet, and doubt i will until probably thanksgiving. So it'd be more for concealment at this point. Its great to hear your relationship got stronger too! These things are definitely a make...
Subzeromambo- i do have PT that comes to my house. I need more of outpatient but can't do it yet because i have a home care nurse. Theres not much else PT can do for me at home. Bluegrass- thank you!...
I've been out and about. Friends over, my reading goes in and out depending on my mood, i've watched enough tv since november i basically turn it on for noise anymore. I want to scrub down my house....
I don't even know my local ostomy assoc. the wound/ostomy nurse at the hospital said call anytime so i might give her a call. She was fantastic. I loved her. She gave my husband an ostomy doll who...
Holy smokes i wrote a lot. Sorry....
I'm afraid to try different bags because everytime I have they leak because the wafer/thing that sticks to me is different and does not stick at all. My visitng nurse ordered more of the barrier...