Thanks!!...
Thanks. It is only when I'm sleeping. Jen...
I have open incisions with two surgeries. Both to drain fluid and infection. In fact, the second one they originally closed until I was diagnosed with an infection then he pulled some staples and...
Good Luck!!! Jen...
I'm in recovery from takedown... Two months out as of today. I really haven't had much of a problem with leakage. I did have an accident in the hospital when my intestines first started working...
Thanks!!!...
My doctor ordered prescription strength Advil for me in the hospital. And told me to take Advil or Aleve with my percocet during recovery. Weird!...
I have had my take down surgery with JPouch. I'm in recovery from surgery. What meds can I NOT take with the JPouch? I've been told I'm okay to take pretty much anything I want as long as I don't...
I don't know if this helps or not but... A friend of mine at work had a BIG hernia for years. It was never painful or a 'problem'. Her doctors told her that since it was so big, they choose to leave...
I had some pain but nothing like the first two surgeries. I also had a lot of complications with the first two surgeries and basically none with the takedown surgery. (I have a JPouch) Yes my doctor...
Oh yeah... And this is the second time in as many weeks as colostomy/ostomy has been worked into a TV show I watched. The second show using it as a joke is why I thought I would ask for opinions. Jen...
Am I the only one who notices how often Ostomies are put into jokes on TV and such now. Like tonight on Psych? I'm not sure how to take it really. Glad to get "out" in the open and people used to...
Oh one other tidbit... I wake up in the morning so thirsty I can't do anything until I get something to drink. Keep some water or something by your bed. Especially if you find yourself getting up at...
I had an end ileo from March to Nov. I got up to empty in the middle of the night sometimes. More so in the beginning. It slowed down toward the end so that I only had to get up in the middle of the...
ByeByeUC. #8.. You said right after take down, you were going 10x a day but that didn't last too long. Roughly, how long is not too long? weeks or months?? I'm facing takedown next month and the...
oh.. and how my stoma healed this way... My GUESS (repeat, GUESS. I'm not a doctor) is that they took out the little rubber bridge too soon. My stoma area was still a hot mess when they cut the...
Using a convex wafer now. Talked to ANOTHER ostomy nurse, she said that because skin where the stoma is more flat than anything, the belt could actually cause the wafer to fail. Convatec is sending...
Thanks for the ideas!!! What I mean is imagine the stoma opening as a mouth. the bottom "jaw" or bottom half the opening healed to the skin instead of having any stoma tissue between the skin and the...
I swear the muscle contractions moves the skin under the wafer and loosens it. I hold the bag too. :)...
Subzeromambo -- OT--Does walking/running increase your output/bathroom breaks since takedown?...
Clots really wouldn't surprise me so much considering how the pouch is made. I would mention to the doctor like you are planning to be safe. No one mentioned clots to me specifically but...
My surgeon warned me of both blood and possibly some poop that may not have made it to the "end stoma" I had before surgery but past the loop stoma he created in surgery. I found out my loop is 2...
One question!!! The sheet... Can I treat my RED HOT burn with the powder and skin barrier layers as I have been before I stick the sheet to it? Or would that lessen the life of the sheet? I'm scared...
I'm loving that longer shirts are in style for women right now. I will be wearing them all during my ostomy time and while I'm healing from take down. (swelling..bandages for the open wound were the...
Good Luck Mom2Panda. If the nurse has any new ideas, I'm all ears if you don't mind sharing with me!!! I got some of the best ideas from a guy I work with. He works in IT now (computer stuff) but he...
Are those protective sheets like BIG eakin seals? I think I may have a sample of one from when I had skin sensitivity issues with my wafer itself when I first got my original end stoma. Are they the...
I did "crust up the skin" the red skin with powder and skin prep layers leaving the rest of the skin alone. I did put the Eakin seal on the skin and held it there for a while to get it to seal to the...
Good luck Rosemary. I did do the powder/skin barrier layers then eakin seal. That's what is gone now.. :(...
BTW--TakeDown is 2-19 and I had the barium enema test thing yesterday and my JPouch appears to be ready and the radiologist couldn't find any leaks... I just need to get to 2-19 but I'm doubting I'll...
The opening to my loop stoma is attached to my skin. Getting wafers too close to that opening makes the output go straight under my wafer. Therefore about an 1/8 of an inch to 1/4 an inch is...
My loop is also giving me fits. I was spoiled with a "perfect" end stoma before the JPouch created and Loop. Good Luck. I have 5 more weeks with it and with a lot of prayer and maybe some more...
I have a loop as well. I left the hospital with orders of a Low Residue diet but with no specified amount of time. As time went on, I asked my home care nurse about it. She suggested I try other...
The opening of the stoma is even with the skin. My stoma is a Loop stoma and I'm not sure if they didn't keep the rubber tubing they were using as a bridge in there long enough or what when it was...
I had three. They kept the rectum until they created the pouch in surgery #2. It was explained to me why but I don't remember all the reasons. Take down will be #3. they want to make sure the pouch...
When I had the "textbook" stoma, I had lots of leakages with the hollister system the hospital gave me. But I was told by my stoma nurse that they were "middle of the road" because that was the only...
One more question about Friars... I see they have alcohol. I would think that means they are NOT "no sting" when put on raw irritated skin. Am I wrong? some of my "no sting" stuff stings. :(...
I had a regular end stoma for 6 months. And I have to tell you, most days I could recognize what was coming out from what meal it was from. Some things just don't completely break down like you may...
80'sChick. I'm having an issue because my stoma empties out right on my skin and since it is temp Loop, they won't do anything until take down which will probably be in Feb or there abouts. I can NOT...
A friend of mine has had her bag for 21 years. She does everything I did before I had my surgery. She gets bathing suits with ruffles, or a good tankini where the top flairs out and overlaps the...
When they had me walking, I had two of those hospital gowns on. One open to the front, one open to the back but only tied at the neck. They always had ties at about my waist level. I tied my drain...
Same thing happened to me. They put me in the two piece hollister system in the hospital and right now, it is the only bag that is actually staying on for more than 12-18 hours. (Before this...
After they removed my colon, I did not have a drain tube exactly. They left every other inch of my incision open to drain infection. My operation was an emergency and that's why they did that. Don't...
And thanks for letting me know I"m not the only one......
Thanks!!! And thanks for telling me the difference between the kegels and the rectal exercises. I guess I'll be doing both since I'm healing everywhere down there from both the JPouch creation and a...
That's Great!!! Congrats on the improved stoma!...
I asked about this on the JPouch message board but haven't got a response. Has anyone had a problem with anal leakage between surgeries 2 and 3?? I'm having an issue with the mucus when I'm asleep. I...
Thanks!...
I have a question... what is Friars and what do Ostomates (did I spell that right?) use it for? Jen S...
In your shoes, I would ask my GP doctor for a name of a GOOD GI. I'm sorry I can't offer any other helpful ideas....