rosemary hope you are managing to do some of the above? Remember sarah (ironmum)??? You may recall she spent a few months on basically a liquid/loose diet until she got a new stoma, and she is doing...
gosh no wonder - that is terrible. it is what i thought but thought how could that happen. then no wonder you cannot get on with things. roll on the take down. if no take down then a re-do of the...
mystique i am sorry to hear of your problems. Sounds like you have tried everything, and i cant believe your scn are not helping you. mind you i have experienced similar. Can i suggest Hollister...
Well good luck with that - change is as good as a rest as they say. well i may be saying goodbye oakmed hello coloplast. fed up with see through bag and have just found out coloplast are more...
mystique i cannt understand why you cannot cut the wafter to fit snug around the stoma - obviously you are getting leaks and anyone would - its a well known fact that a snug fit is what prevents...
hello sorry to hear that. i use a one piece so cannot comment. if your stoma sticks out just a little then you may need convex flange. ensure the fit is snug around stoma. you may need to use eakin...
Hello i am always getting the itchies around the flange - the best one i have tried is Oakmed (although a british brand) but now i am now trying out coloplast as oakmed is a clear bag where you see...
When they went in the surgeon said the muscle was too weak there - i suspect because of prev surgery. if the muscle is too weak then there is a chance of hernia. so i guess he erred on the side of...
Hi i can understand your distress and unset. I am relatviely short (5" 3) and not long in body. When i had my first stoma i knew nothing about site placement etc. however i had a fantastic young and...
YES... go the London Team.. hurrah and yay...again!! /community/emoticons/turn.gif /community/emoticons/yeah.gif ...
hi i also have a suggestion - hollister Adapt do conformable washers which are convex shaped, not flat - that might be good for trying flat bag....
Ditto all the above rosemary - just seen this thread.... sorry you had to endure such a long surgery but sounds like all will be well. hope you feel better today. xx...
Thanks christine and subzero. Your stoma sounds better placed than mine christine although mine is now just slightly below navel - my last stoma was about an inch below the navel - i have a low slung...
thank you. i am glad you dont have the cancer anymore and as time passes hope will get used to things....
Hello You may remember i had another ileo done in july - I went back to it as i could not go to the loo and had pain every day. the previous ileo was on the right and i was fine with it. But since i...
Thats great sarah - did you see Knowles after all? Glad he was nice. x...
Just to clarify, it is fine for people to post how good they are doing etc..etc in their own post but .... it is when I have posted about something I am not doing well or coping well with , and...
We all come here for help/support. I have found everyone 99% great but sometimes found some to be unwittingly a little tactless in their 'support'. When in a fragile state i dont need people...
i suppose it does depend where your navel is - mine is situated quite low on my waist compared with most people. The stoma is now about level with the navel; before it was sited level with the bottom...
UC free i am also petite and like wearing close fitting clothes; i am still trying different bags ...what bag to you use ? My main issue is that my stoma is a little too near the middle this time and...
sarah sorry to hear you had to go to hospital you poor t hing /community/emoticons/shakehead.gif with obstruction. i also doubt it could be the pseudo obstruction which he said is rare. From what i...
yes just ensure you get someone who is experienced in stoma surgery who will not botch it up. i cant understand why the original guy who botched it has only just said come to the ER for him to take a...
dear Rosemary i hope today something is happening for you and i think and pray all the time - it seems the only way to go with this ridiculous legalality - so be it then if you can only get your life...
i just dont get it with the legal system in US. do you feel you can wait that long until the litigation is over? what if it was an emergency - who would deal then? this is an emergency far as i am...
Dear Rosemary you should not be going through this on your own - i am so surprised the drs that did this have not referred you on to someone who does stoma revisoin all the time. i continue to pray...
thank you for that , that is so nice. i will ask God to help me cope. thank you. x...
Praying for you Dusti. xxxxx...
thank you for your help. when i changed bag monday morning after 22 hours wear my skin looked clear although it felt like it was leaking. i thought it was fluke then changed again after nearly 24...
hello I am 5 weeks post op tomorrow and my leaks started on day 3 after my surgery. I was put onto a convex bag after a week. the reason i think is because suture came out right below where output...
hello louise wow i totally forgot about your admission. I am sorry you are exposed to such 'horror' stories. Just cause you read it here does not mean it will happen to you. I had no problems first...
Hi all Well been 4 weeks post op now. i used an old convex WElland bag with a thick Adapt seal and it gave me 24 hours wear twice. I am still changing daily as i cant seem to know if i am leaking or...
Rosemary you are doing the right thing not going back to your original surgeons - what you said about them not having certain qualifications etc - you most def need a qualified colerectal surgeon...
Sounds good. Well you have passed gas so not long now until bowel movement. probably next 24 hours or so....
hello jackie glad you are sort of up and about. they wont discharge you until you pass gas as that is a sign everything is started to wake up etc. the same was said to me the day after my op when i...
Hope you are not in pain rosemary and feel better today?...
hello Alcie well with myself stinging is when there is contact with sore skin - be it poo or anything else. or if you dont have sore red skin breakdown then it is probably an intolerence to a...
That is nice to know. thank you. yep i am an emotional wreck since this op - i have been told it is because it is a reoperative procedure that explains the problems. my last stoma i had no problems...
My stoma nurse came today and firstly cut a new template which is now a very snug fit. said coloplast convex do not put enough pressure around the actual stoma, which i need. so she put me on...
hi again. I am afraid i have not although like me many spend years trying to sort themselves out before realising quality of life will not alter and surgery becomes the only option. Many have...
thanks lolly. i had mine open sarah had hers laparascopically. it all depends on what your surgeon likes to do they all have their own choices for whatever reasons. my discharge summary details i had...
hello. many people have gone through this here. however each surgeon does things different. some dont remove the large bowel and just give an end or loop ileostomy, or go straight ahead with the...
hello louise i know you are scared . You dont have your large bowel and you cant go to the toilet normally and function normaly. you are similar to me (however i did not suffer to the extent you are...
Hello everyone I came home last wednesday after 8 days in hospital so it has been two weeks today since surgery. Had i not had complications then i would have said i recovered fast from this surgery....
hello sorry to hear of your plight. i wonder if not eating or drinking after a certain time in the evening? also cutting back on the fruit and see what happens. or you may need to go more during the...
Hi i think all foods are okay as lng as you chew well .. also ... how come you have a hernia? If my memory serves me right you had revised stoma surgery?...
Janie it is true - how can the rectum be responsible for such grief!!! My surgery is tomorrow 3 July - i go in at 7am. Right now (in the UK) it is 11am as i type. no idea of what time zone everyone...
IS THIS SPAM!...
Thanks Val. Glad all has worked out for you. No the temp ileostomy was the only time i felt well. It appears that i have outlet rectal issues and may be other issues. I was never told this, and had i...
Hi Well you may remember me too. Glad your surgery worked out, i cant understand why mine did not. I had surgery - twice - and i am due to go back to the ileostomy next Tues 3 july. My reversal did...