Congratulations on your upcoming takedown! You've made it this far! :) I had my takedown done last May (8 months ago already!) I hope some of my answers to your questions can be of help to you.1) I...
You sound similar to the way I was right after my takedown. I remember sitting at home the first couple of days worried there was something wrong because I would go so long between bathroom trips-...
I've never taken melatonin, but I know a little bit about it from the Health Food store where I work. I hadn't heard it might not be good for people with auto-immune diseases. I'm actually not sure...
I had an abscess after my first takedown that had to be drained surgically, but came back a few months later, and was drained without actual surgery. I know the pain you mean. I got a CT scan both...
I am so happy for you! Congratulations on the progress you've made, and the new life you've gained. I had my one year anniversary of my first surgery last month, and I celebrated by doing all of the...
This is sort of unrelated to what you are actually asking, but I noticed in this post as well as in some of your other posts that you mentioned having pain when you lay on your right side at night....
I have only tried dried cranberries so far, and haven't had any problems. I always try to chew things like that really well. They probably do cause my stool to be a bit looser, but I don't mind too...
Congratulations on reversal! Like Sue said, it's different for everyone. I actually had reversal twice- had to go back to ileo. 2 weeks after first time because of complications, which shouldn't...
I think about this sort of thing all the time. I had my one-year annivesary of step one recently, and I wondered if I will ever go through a day without thinking about these surgeries/my jpouch/the...
I had my takedown exactly 5 months ago today. I consider myself fortunate that it has been fairly smooth sailing for me since then. I did have pouchitis toward the end of the summer, but it was much...
Wow, everything you made for dinner sounds delicious! For me, the combination of all of the vegetables would probably make things more liquidy- I don't take immodium or psyllium, though. I've found...
I have found granola does the same thing to me... just plain oatmeal multiplies into a lot of extra bathroom trips, as well. Our young jpouches are still learning, though, and hopefully in the future...
I'm sorry you're still not feeling well. :( If it is strictures, they definitely could contribute to a blockage, methinks. I would think a scope would be able to show a stricture, since it's a...
Wow, I'm sorry that happened to you, but at the same time I'm glad you finally found what will hopefully be the answer to what's been going on (I've been reading your other posts about your...
Whoa, I'm so sorry that you had to go through that. Does your doctor have any idea what may have caused the blockage? I hope you are feeling better soon and are not too shaken up by this....
I just did clear liquids the day before and, of course, nothing after midnight the day of surgery. Like others said, nothing stayed in me long anyway because of how sick I was with UC. Actually, when...
I've wondered if I will have issues with adhesions- my first three surgeries were all, of necessity, open incision in the same spot. I try not to think or worry about it, though, as there is not much...
I actually have brown hair, was wearing a black and white striped cardigan, and am 21- so quite the opposite of the person who came out before you. :) I was there at 1:45, though, only waited 5-10...
I did have all of my surgeries done by Dr. S., and really trust his judgement/experience. I did very well under his care, even with the abscess/leak issues I had in February and March. Yesterday's...
Rose, Your friend's idea that maybe he was using the silver nitrate on the scar tissue forming on the cracks is a good one- I didn't even think of that! Anyway, uc_free is right, Dr. S. is very very...
When I first had my ostomy I, too, was worried about laying flat on my back causing a leak, so I would sleep on my back with a lot of pillows behind my back and head, sort of inclined, like Another...
Well, I don't think the silver nitrate would have anything to do with the stoma being more active/diarrhea. It is a caustic agent, which is what causes the cells it comes in contact with to shed or...
Oh, Rosemary... I really, truly hope things start improving for you soon. I don't understand why the last surgeon would tell you to go to the ER in order to see him... isn't that what his office is...
I'm two months post-takedown and am doing very well- I had some pretty serious issues (recurring abscess) in between surgeries, but the fight has definitely been worth it. I am already at a point...
I know lots of others have already responded to your initial question, but I just wanted to chime in and say I do not regret my surgeries at all! I had a temporary ileostomy for 6 months and have...
I am so sorry to hear you are having this trouble again. :( I am also very surprised to hear about how these most recent surgeons handled things! I expected more/better of them. Keep your head up-...
This used to happen to me when I had my ostomy- both the bag full of air at night and the liquid poo in the morning. I always figured the liquid stuff was just because there was nothing solid left to...
I've only eaten a few at a time so far, and have had no problems. I do see them later on when I go to the bathroom, but that's not a big deal. I think if I ate a lot of them at once things might get...
Hooray! I'm so happy for you! I'm two months post-takedown and quite satisfied with my jpouch as well. :)...
I had really bad gas pain in the hospital, but haven't had any since being home. I understand what you mean about the intense pressure and urgent feeling when you have to pass gas- I definitely had...
Congratulations on your reversal! It's normal for it to take a few days for things to get moving. My first takedown it took three days, and then this last reversal in May I think it took 4 days to...
I had a pain pump for my first two surgeries; the pain was a little difficult when I first woke up, but by the time I was out of recovery it was no problem. I had an epidural for my third surgery,...
Well, bread and cheese are both things that can thicken output, in my experience, though tomato soup certainly wouldn't. Even now with the jpouch, I will eat bread if I want to slow things down a bit....
That's so good to hear, Rosemary. I was getting worried with your other thread... hopefully that was just some random bump in the road that you have gotten past and will not have to deal with anymore!...
Haha, after posting I saw that I had repeated some of the things Marianne had suggested. :) Oops!...
Hi, there! I had my colon removed and a jpouch formed this past year, my takedown/reversal was just this May. Did you have a jpouch created? 10-15 times a day this far past reversal seems like kind...
Oh my goodness, Ironmum, the celiac comment is the one I absolutely cannot stand the most!! The week before I had my colectomy, people were still trying to convince me that I "just" had a gluten...
You sound like you are doing very well for one week out! As time goes on, things will get even better. I kept a food journal the first couple of weeks, but now, 6 weeks out, I have learned what my...
Well, my hair is a dark brown color, so it didn't really show up as well as I was hoping it would- I tried red streaks. I think that maybe getting some sun will bring them out more. Yes, I really am...
Oh no, I'm sorry that this is frightening you again. Blueglass is right, though, there could be an easier fix than what you're thinking will end up happening. Are you able to email a picture of your...
Hi, everybody! I haven't posted anything in awhile, but have been keeping up with reading everyone else's posts... I have been doing really well with my jpouch since takedown. It's been 6 weeks...
I was put on Humira back in 2009, and it put me in the best remission I ever experienced. It only worked for about 9 months though, before I spiraled into a bad flare, and moved on to Remicade- which...
Hooray! Dr. S. is good at what he does- when he did my end ileo., a couple of the in-home nurses that saw it said it was the most beautiful stoma they'd ever seen. I'm sure yours is beautiful as...
The only time this happened to me was when I ate something gassy near bedtime, and the bag filled up with air so much that it forced the wafer to detatch... poop was everywhere. I guess that's what...
Oh dear. I wish I had some sort of advice to give, but I do not... just want to encourage you to keep your chin up. I know it must be hard and frustrating... but you will find an answer/fix for this,...
Rosemary, I am so so happy to hear that you are doing well! And, as has been said, it's really frustrating to now think of the way those other doctors treated you. So absolutely wrong. But I'm very...
One thing I found that helps as a barrier, is a cream made by Palmer's Cocoa Butter company, called Bottom Butter. I bought it at Walgreens. It's a thick cream, and has zinc oxide in it as well as...
So glad that you are home! I also hope that everything- fever, rash, etc.- settles down and continues to heal up....
When I was in between steps as you are, I would also pass mucous or brown stuff as you described. Sometimes once or twice a day, sometimes not at all for several days. If I understand it correctly,...
I actually JUST got a tube of the Anti-Monkey Butt cream! I thought the name was great, so why not try it? Haha. I've been using the A&D today, but I'll try out that instead and see what happens. :)...