Congratulations on your pregnancy. What wonderful news! I have absolutely no advice as I had my children long before I had an ileo but I just wanted to wish you well! Sarah...
Even if you do think it would bother you, it might be best not to say so. Just imagine what it's like from his point of view. Bit late now I guess. I agree with the others, if you don't think you can...
Hoorah!! what an ordeal. Put me off ever considering a reversal.. ;-) Hope all goes well from now on.. big healing hugs coming your way x...
Yes totally normal. My son once came out of the loo shouting.. 'mum why is there some salad floating in the toilet??" If only I could eat salad now. Anyway that's another story! but yes.. essentially...
Wow! that's quite amazing. Do you know why??? is there a chance it was something to do with nutritional imbalances and/or dehydration? did they do gastrograffin via the stoma or orally? I really hope...
Hi Rich.. welcome. I hope you find some help and support here. Sounds like you've been through a lot. An injury/surgery like that at such a young age must have been very traumatic. You were brave to...
I use coloplast sensura convex one piece. You need to get the smallest convex you can to fit your stoma. I cut my own bags as my stoma changes shape and size a lot and is also a weird shape. That's...
Why are they saying no to TPN? surely that's what you need right now?...
oh thank goodness things are improving. what a rough time you've had. you'll have to have your very own 'christmas' in a few weeks with the full turkey dinner and celebrations when you're feeling...
Ugh that sucks. Sorry you had to deal with that on Christmas day. When I had my end stoma it was quite long and even thought I'm quite light and my stomach is flat I still needed convex. It made all...
So sorry you're still going through this and still there at Christmas. I hope by now they've addressed the collection of fluid and you're starting to feel a bit better. Blueglass is spot on.. I know...
Oh man.. I clicked on this thread fully expecting you to be home and sounding positive and progressing well. I'm SO sorry.. this sucks beyond belief. Nothing we can say really apart from hang in...
That's so fantastic! what a great trip....
Yes I have that too.. can be painful at times and icky! but agree it's normal....
Without wanting to jinx myself, I think things may be slowing improving :-) I'm now 6 weeks post surgery and I think starting to see some improvement in my tolerance of solid food and consistency of...
uugggh.. so sorry you're still struggling. Hang in there.. it HAS to get moving soon. x...
Am really gutted for you and just so so sorry to read this news. I have no personal experience of these drugs but they sound horrific. As you say you just have to live life to the fullest right now!...
oh man.. this brings back memories of my reversal. Like you say if I'd had a gun I would have used it. So sorry you'd had such a rough time.. it really really sucks. Only those who've been there can...
You will just have to try and drink plenty of rehydration solution afterwards. Although you may not have to drink too much of it.. and when it's through the diahorrea stops. We have something here...
Hi Lucky.. I didn't get on well with scrambled egg and found it clogged things up. I could manage one poached egg occasionally and I have no idea why, but that was better than scrambled. Good luck...
Good to hear from you, but sorry you're still having a tough time. This tube sounds tricky to get in and keep it in. It can't be a long term solution surely? Anyway.. I had a CT with Gastrograffin to...
Hi Anthony.. I agree with Suebear - I think it's good to base your decision on the experience of the surgeon and who you feel you trust the most.. not just whether or not they do lapro or open....
It wont' feel like it right now, but you WILL be ok and you WILL get through this. You must be nervous and anxious, but in time you'll recover, get to grips with your new 'friend' and start to feel...
fantastic! hope it all goes really well and you're soon back home. good luck x...
When I see him next I'll ask him. He's never mentioned it to me so I wonder about it's effectiveness or use in the UK. I'll try and find out. Hope you're doing a little better. I'm fine so long as I...
Rosemary if it's that bad you should be on TPN. I don't doubt (and neither does my surgeon) that things can improve for me and I'm sure they can for you both too. I think it's important to focus on...
so sorry you're having such a rough time. It's horrible. I had a post op ileus (where the bowel is asleep) after my reversal and I was ready to put a gun to my head. It passed in time but was truly...
I'm doing fine compared to you guys! so sorry to hear the ongoing saga for both of you. Rosemary I agree you should be having regular bloods.. and Lucky.. wow 39kg is super light. You poor thing....
I've had 5 surgeries and have had both lapro and open. Interestingly I was in less pain after the open surgery than the lapro. I think because of the gas they fill your abdomen with when they do...
Hi Sunee.. I'm not sure the views thing is that accurate.. and also people find each post if they're searching for something via google, and they may not even be members of the site. To be honest...
No I don't think so. How bad is the split? does is feel hot and sore? could be infected. You should go back to your Dr asap. Good luck...
Crazy!!?! what me? ;-) I just walk when the dog needs to go out :-) and I have to coach my group of runners so I have to try and keep up.. only jogging a tiny bit. I don't have to worry about...
Hi Tinlizzy.. welcome What was your colectomy for in the first place? Sarah...
Lucky.. I'm sorry you're still losing weight. I get the whole anorexic thing.. and am starting to lose again too. I'm fed up with people saying to me 'oh look at you skinny minny' ! I mean.. DUH I've...
ick! know what you mean. When I had a working stoma (ha ha) I could eat bananas just fine and the lumps slipped out just like you describe. Kind of gross! but probably fine....
Thing is with all of this (and Somedude's signature sums it up nicely) we don't know what we're going to get in life. Sometimes we don't have a choice at all. Sometimes we do. Sometimes we make bad...
I don't need to go to the ER.. It's not an acute blockage, I'm not in pain and they'd just send me straight home. It's just like it was before.. just that feeling of partial obstruction after solid...
I can't believe I'm posting this.. especially given Rosemary and Lucky Lass latest exploits, but I fear my recent surgery and stoma revision hasn't worked. For anyone new reading this and especially...
good luck! hope surgery goes well :-)...
Oh lord Rosemary. I can't believe this is happening to you. I'm glad you got the tube back in, but jeeezzz. this is crazy. I think you're right to find out about TPN you need some nutrition in you to...
Hi Penny I'll try to answer some of your questions: It's early days and you're on a steep learning curve. It sounds like you're doing great though. You're right about hydration. You need to replace...
Rosemary.. I'm lost for words and honestly don't know what to suggest. I agree with ddd45 that it would be good to try and ignore (or a least be less focused) on what you eat and then what comes out...
Hi Penny.. did you have laproscopic surgery? when they do the surgery they fill your abdo cavity with gas and it makes you feel horribly bloated and have pain under your ribs for weeks. It will...
was wondering the same myself... Rosemary??? are you there? we're all concerned x...
Hi Alcie.. so sorry you're going through this. Sounds very complicated. The stoma scar will be sore for a while.. it's only been a few weeks. Hope you get some answers soon. Hang in. Sarah...
thanks guys.. appreciate all your replies. Alcie that's also really pleasing news. I certainly don't seem to have a tonne of adhesions despite previous peritonitis and the recent problems with my...
Just thought I'd share this. Been having leaks even using convex bags, but worked out what the problem was all by myself! :-) I was using convex coloplast bags but in hospital thanks to my new loop...
Crazy?!?! me?!?! :-)...
Blah.. indeed! sorry to hear this. Not entirely sure what to suggest, but just wanted to know I hear your 'blah' and hope things improve soon. Sarah...
Hi watergirl.. welcome ! you'll get some great advice here from a group of amazing folk. I can't help you too much as when I had my reversal I had the opposite problem. However am sure others will be...