1 a month is not that high. I bet Remzi does one a week...and he fixes the mistakes from around the country. For pouch surgery, just throw the thought of prioritizing private versus shared room out...
I have had peirstomal pyoderma gangrenosum - aka pyoderma around my stoma. It's characterized by blue/purple/blackish tinge around the edge. It hurts. If it doesn't hurt, you probably have another...
Ask your GI if you can get an anti-spasmodic for a few days...first to try it out and then for the trip. It might help with your lunch urges to go. Have fun!...
Yes, I have had pyoderma gangrenosum. Mine is around my stoma, so it's called peristomal pyoderma gangrensoum. When I saw the headline, I know it was either PD or EN. My treatments have been protect...
IBDer's tend to have higher CRP and SedRate than normal. It's a measure of body inflammation. But having a normal measures doesn't mean you aren't having problems. I recently learned that High...
Post surgeries, meats are one of the foods you can eat. It's "low residue" meaning, as DBwithUC says, very little get into the colon. Fruits and veggies send lots of residue into the colon, with...
I think you need the c-scope, even though it sucks. Different meds have different areas they target according to when they dissolve. You need to make sure you are treating all of the affected areas....
I haven't read anything, but it's insoluble fiber that causes problems. That type of fiber is typically found in vegetable skins and leafy greens. I can completely understand wanting to continue to...
You are definitely not being a hypochondriac. Hypochondriacs don't have blood work reflecting actual problems! I think thyroid issues can cause anemia as the thyroid affects everything, including...
I'm weird. I had my colectomy THEN developed IBD related arthritis. In addition, I developed peristomal pyoderma gangrenosum...or autoimmune skin ulcers around my stoma. But I still have a fair bit...
It's great that your GI gave you a choice. But wow. I tried one flex sig without sedation and that hurt like a mofo. I requested and had sedation for the next one. Of course, I also had my colon out...
I had a super painful vaginal exam one time. It almost made me pass out. It was definitely the examiner. Last time I went to my OB/Gyn's midwife! It could just be a transient thing. Certain time of...
If I call and leave a message before a certain time (I think 3:00pm during regular business hours? ) This is true for my GI/primary/ and surgeon. I get a call back from a nurse or assistant that day...
Are you ready to take vediolizumab for the rest of your life? You are fine being in the hospital on your own so you don't necessarily need anybody there. The nurses and aids are there to take care of...
Cleveland Clinic saved my life (literally...probably would have died elsewhere). I've interacted with three of their surgeons :P Ashburn, Remzi, and Hull. All are awesome in their different ways....
I think they typically try to thread it through the same hole, but it's not always possible. I had my loop ileo at the same time as my end ileo (don't ask, I'm a mess) so I'm not positive....
Oh wow Shaz - I recently found out that I'm a bit of a complicated blood match too (blood transfusions this summer). I never thought to include that warning....
It tends to be bigger since they are bringing a "loop" of intestine through...like a bend in a water hose. My loop was huge (like 1.75 inches) and my end is tiny (as in 5/8th and inch)....
I have one but have been bad about wearing it as I got it too small. The cost was $7 for the bracelet and $50.00 for the year (US). I use MedicAlert. I'm not concerned as much about exams and you can...
I think a five day migraine is more than enough to mess with your system. Personally, migraines make me throw up. So yea, give the drugs a try!...
How long has it been going on? I only ask because I had weird pain that I thought was a pulled intercostal muscle or something, but it was the first sign of shingles. I had the pain for a few days...
Wohoo! Great to hear! I don't think you should have any problems :)...
I can't relate but it's very fascinating. I'm sure it's annoying though....
Liquid output is a greater leak risk and leads to dehydration more quickly. I personally would rather take immodium instead of loading up on carbs. I'm a reactive hypoglycemicc so heavy carbs put me...
My belly flopped around even before I had surgery :P I'm going to suggest that your glutes aren't as built up as they used to be so you feel them "flopping" around more. Just keep going at a slow...
I've had similar exposure in a short amount of time. I've heard that each CT scan increases your cancer chances by .1%. The amount an xray increase the risk is negligible. The problem is, it's either...
Holy cow! 300 calories in an ounce! I have never heard of that stuff! I managed to throw up about 4 cups of stuff last night. Oh the irony. It was either Fentynal patch, bad crab, or my body was in...
I take 6 to 8 tablets per day (so 3 or 4 doses). It depends on when I'm eating, but my general instructions are 1 dose upon waking, a dose before each meal, and a dose at bedtime. I'm a person who...
Woohoo for better health! Your body can support "non essential" things again....
Yeah, Greek yogurt is another of my favorites. My surgeon told me to keep food next to me so I can snack. She also recommended the small meals spread out as opposed to large meals. I just need to...
Since my last surgery (Jan 23rd) I haven't had any appetite. I'm just not interested in eating a whole lot. I was eating whatever I was craving, but still trying to keep my protein up. I have been...
I don't think it's anything to stress about. I do find it weird that they didn't pull them before now though. Maybe place a call to your surgeon's office to let them know?...
Hmmm, I'm guessing that if small bowel obstructions were a statistical worry, then they wouldn't give us carte blanch on diet for the rest of our lives. My obstruction was a giant fluke and very...
I forget NCOT, are you "across the pond?" (aka England?)....
Wow. I'm starting to feel really lucky about my hospital stays in regards to the food. The hospital near me has excellent food. The one where I've had my abdominal surgeries has ok food, but they...
Based on talking with friends who have had jpouch problems, they had fever and pain....
Well, I took slippers and plenty of socks. I thought about everyone walking around in the hallways with their shoes...and then the fact that I would walk around after them in my socks then get back...
I've used Odwalla protein drinks and basic whey protein powder mixes. You can get other types of protein mixes (soy and pea) although there are lactose free whey protein mixes....
Well, my typical rule is if it you are close to passing out, are vomiting every hour for six+ hours, or can't take the pain, then head to the ER. Passing out = either dehydrated or very anemic. They...
"Magic Mouthwash" just refers to the base. There are alot of different concoctions. It can be used for fungal infections and bacterial infections as well (with the addition of anti-fungal or...
Great......
Oh thanks ByeBye. I had read some random things on the internet but I'm glad to hear what the doctor has told you....
Well, there is the theory that your reserve iron levels (ferritin) can impact your feelings of well being in a similar way to actual anemia. Iron would be used to build red blood cells. It's not...
Up until a month ago, I was on TPN, or liquid nutrition through an IV. So my vitamins/minerals were covered. I had surgery at the end of January and was a bit anemic even before then. Then when I was...
Most people do not experience a blockage with a loop. The bigger issue is to stay hydrated. Loop ostomies may also be used to let a lower portion of the bowel heal from resections. I had a loop...
Ugh, even with the jpouch! Booo! Mine is still low for predictable reasons. Up until recently I was on TPN so I didn't worry about vitamins/etc. Guess I need to start worrying more now! I'll probably...
YW. UC is difficult enough to deal with without having your ability to eat/talk affected as well. But the canker sores will also appear without food influence. The mouthwash isn't an "all the time"...
I have had painful mouth sores for years. Yes they are auto-immune in nature so immune suppressants (Remicade, steroids, etc.) will help reduce or prevent them. I've tried sooo many things as I have...
So I've been getting rather dizzy when getting up. My vision goes black to a pinpoint on occasion. I was anemic at the end of January (hemoglobin 9.8 when 11.5-15.5 is normal). Other values were off...
Going to an all residence college helped with some of the bathroom issues. Kind of hard to hide poop when you live on a floor with 30 other girls and share two bathroom areas! But yes, the rest of my...