I found something like this at target. I dont remember what they are called but it says on the box- as seen on tv. My husband LOVES them. It hugs his bag tight enough, but not too tight, and he...
He has to be on a soft diet for 6 weeks post op. which will be November 20th, but who's counting?! Right in time for thanksgiving too! I know what he'll be thankful for!...
Oh I forgot to post! We had an appt with surgeon a few days ago. He said he was allowed to start working out but of course stop if any discomfort and he was allowed to pick up our 32lb son! I'm...
Did you try to contact the crohns and colitis foundation? Maybe they have a group, but one that has people with ostomies in it. Or you could tell the president that you would like to try a project or...
I was not picturing anything crazy or for him to even do any of the work (trying not to get graphic here) I was just wondering if it was totally off limits. I know for sure he wont be lifting,...
We are dealing with a similar situation. His first (and I really hope last) drain has been in since October 9th. It's still putting out a lot so I don't see it coming out anytime soon. I'm not...
First- surgeon said no pushing, pulling, or lifting for 4 weeks. Does this include intimacy? I mean- I know there are limits here but not sure if it was totally off limits. Second- does anyone use...
Is it different from your usual pain? That's where I had gallbladder pain. Usually had nothing to do with eating so it made it hard to diagnose when going on symptoms....
That all makes me feel a lot better. Thanks. He is still feeling kind of yucky and crampy. He did have a little that was slightly thicker last night. But now back to liquid. But he hasn't really...
Yikes. Yes we have seen a little more than watery around 3. And now after the grape juice a LITTLE bit of SLIGHTLY thicker. Anything else he can do to fix this?...
Has she tried the powder? And letting it air out as much as possible? I'm new to this so that's all I've got. Good luck!...
Husband is 2 weeks out from ileostomy. Eating soft diet and output have been going well until this morning. Took a shower, changed appliance and then liquid started. Had a scheduled doctor...
Ha funny. Well we had an appointment today and dr said no to the sushi. Not yet. After everything is settled....
My suggestion- find an actor or actress who has crohns and pop in a movie with them in it. Casually bring up- "oh do you know so and so has crohns? Do you know much about it? I have it, this is what...
I am pretty concerned about the seaweed too. I looked it up and found that it is easily digestible. Before surgery he had a few areas of severe stricture and never had a problem with it so I think...
2 weeks out from his ileostomy and he is craving some sushi. What do you think?...
The dietary person suggested the ones for diabetics- glycerna I think, they have all the good stuff plus less sugar. My husband said they didnt taste as good as the regular ensure but drinkable. Good...
Husband is finally home from the hospital friday. The ET home nurse was suppose to coming tomorrow to help us do our first change at home but we did it today, it needed it, today was day 4. It was...
Hey cole! I know this is a lot to take in. That is a huge life adjustment. My husband just had the same surgery for same reason last week. He's still in the hospital but getting ready to come home...
So his temp was still up and down, up to 103.8 yesterday! So they finally did the CT scan that they had been debating over for days. At first they said they didn't see anything concerning but then...
Well he is doing a lot better. Epidural is out, foley is out. Still has IV PCA and plenty of pain pills and the valium helps too. He is getting out of bed on his own, walking a few times a day. He...
My husband just had the same surgery, open, and for the same reason. His surgery was Tuesday, so its all new. He had an epidural but it was after the surgery because he was hurting. I would have...
Thank you thank you thank you!...
My husbands surgery went good. The scared and diseased intestines and rectum were a little reluctant to come out, but they got everything. Everything went as planned. Immediate post op was rough for...
Thank you bluegrass! And thank you everyone for your kind words! I am starting to feel a lot better. I noticed that when I'm feeling all stressed I am not being a good mom or supportive wife. So I'm...
My husband has severe disease in his rectum and some in what's left of his colon so it's all coming out Tuesday. Colon, rectum, anus. They will sew it closed. They said if any was left his chance of...
Thanks! Melissa- I think he's ready. He's very up and down. One minute he's ready to go the next he's really bummed about the huge change he's about to endure. He is pretty excited that it will make...
Are you taking your narcotics now? Is it helping a little? Percocet works better than vicoden, but since you are far, make sure you get plenty of refills, you can not call it in to the pharmacy, but...
I am so panicked! I just feel like Im going to burst! Husband's surgery is Tuesday, first thing in am. He will have an ileostomy (permanent) for crohn's. I just have so much stress, I just need to...
I am so sorry to hear you are going through this. I am new to this site (usually on crohns), it is so nice to see all of the support. I am worried about you. I really hope this resolves soon. I am...
Has anyone ever been on remicade, been off for a while (like years) and then went back on again?...
Thanks for all of your stories and support. I will for sure post an update after his surgery to let you all know how it goes! This surgery can't come soon enough! He has been feeling pretty crummy...
Thank you for sharing. Glad you are doing well....
Oh, and his surgery is scheduled for Tuesday October 2nd. Im excited for him to feel better, nervous about complications, this is his 3rd open abdominal surgery so I am very worried about adhesions,...
Bluegrass, what kind of complications did you encounter?...
Our ET nurse said there's a 10in bag. And with the 2 peice kind you can attatch this cover type thing instead of the bag so you can swim. It just doesn't hold much. Happy to hear you survived and are...
Are you guys (who don't have any colon left) still on meds? If so which ones? And thanks again. It's so refreshing to hear your stories....
Im curious, why is the butt burn? My husband is scheduled to have his surgery Oct 2, any info I can get would be great! So nice to hear positive stories! Thanks for that! Good luck back to work! Take...
I would call and leave a message for your surgeon. Im not sure what it could be, but I don't think you should be getting anything out of your bottom, especially blood. Are you seeing someone for your...
I think you need a second opinion, you should find a hospital that has specialties. Like a GI team and a colorectal surgery team. You have the right to be transferred to the hospital of your choice,...
Lynn- has your crohns affected all of your bowel? Small and large? Or has is been specific to a few certain areas? My husband has had large intestine, peri rectal, and his started (like most crohns)...
Thank you! That's so great to hear! I'm so happy for you! I do have a few questions. What kind of procedures have you had done for blockages at the stoma? What caused it? What fixed it? How did you...
My husband has crohn's and will be having an ileostomy soon (2 weeks). He has had resections before but this is his first stoma. His disease has mainly been of peri rectal crohns and with plenty in...
Do you have crohns? And what was the reason for the ileostomy? My husband had a subtotal without stoma, and has had diarrhea ever since. I would only assume that your output would be very similar to...
My man has been going through a lot lately, and with all of it has lost weight. He is probably going to have an ileostomy soon and I would love it if he really packed on the pounds before he did...
If you would like to leave your email, I can suggest some dr's and give you my opinion. I do not want to list on here as I believe that is frowned upon....
Have you had your thyroid checked? Those can be symptoms of that too. My husband used the liquid vitamins for a while. now he just takes a multivitamin, and it does make him nauseous but if takes...
Sorry you are suffering and frustrated. Gumby is right, maybe no signs of it there, I think you should ask why an endoscopy wasn't done, or other tests. If your doctor doesn't get back to you soon...
Wow, just realized this thread was started in 2008!!!...