Thank you so much!...
thank you Sara!...
Thank you very much! I will make an effort to try to pop in here more often!...
Glad to hear it worked out well for you too!! Yes we are all warriors for sure!...
Buttercups: No joint pain but for a year after surgery my iron stores were very low so I had fatigue from that. But once that resolved I’ve been fine. I took up running a few years ago so being in...
Hello fellow UC’ers. I haven’t been on here or posted in a really long time. I was thinking a lot today about my journey with UC. I was Diagnosed in 2005 with severe ulcerative pancolitis. I tried...
I had just taken my mom the week before all that happened and the place I took her to happened to have the JNJ vaccine. Ugh. She’s been totally fine though....
Yes, my second appointment is scheduled on 5/5. Funny you say that about the Moderna versus Pfizer. My brother had the Moderna one and his second shot he felt really bad. Anyone else I know who had...
I’m not anti vaccine either but I really wanted to skip this one. But I didn’t...got my first dose now. I never ever get a flu shot. Just because I never thought it was necessary. But with COVID you...
I made out fine. I went on Wednesday and just had a sore arm and a little tiredness the next day that’s it. I’m glad your reaction was short lived. That’s a little scary! My brother had is second...
Thanks a lot I appreciate the info!...
Thanks everyone! Between worrying about getting my elderly mom vaccinated (finally last week) and myself this has been so stressful! Now all the stuff in the news about the j and j vaccine which is...
I finally made the decision to get the vaccine. I go tomorrow for the phizer first dose. Now I’m second guessing myself. I do not have any active disease anymore since I had j pouch surgery 10 years...
That's what I am waiting for[/quote] There’s just something about the technology of the Moderna and pfizer vaccines that makes me uneasy. I can’t help but think somewhere down the line we will hear...
I think I’m going to wait for the J & J vaccine....
Poopydoop posted that. I was just replying thanking for the information. The quote thing on this page makes it confusing sometimes lol...
No, pfizer and moderna use mRNA technology, this uses an adenovirus vector. it's more similar to the astra zenica vaccine in terms of how it works. The 66% efficacy is based on a single dose and...
Thank you very much...
This stuff is so confusing to me. Is it made the same way as the other two? There must be something different about it....
Does anyone know anything about the Johnson and Johnson vaccine? I’m leaning toward waiting for that one....
Hi! Long story Short I exhausted all the meds and I had to have J pouch surgery. This was 10 years ago. Remicade was pretty much my last shot and I failed that. I know surgery is terrifying. Believe...
Posted Today 11:52 AM (GMT -5) I hope you have continued good luck with the xeljanz. That one must have come out after my surgery. I will look up that thread and see if I can add some help. I horse...
Hello everyone! I haven’t been here in a long time. With this ridiculously crazy year we had I actually just realized I had my 10 year J pouch anniversary! I can’t believe it’s been 10 years already....
I suffered for 7 years with severe UC. It came on fast and strong and never let up. I went through all the remedies that were available at the time. All failed. I didn’t have much choice. I had j...
I don’t come to this site very often anymore but I did last week and saw your post. Happy to read you’re home now. Scary stuff out there! Be well!...
Sending healing thoughts to you for a full recovery. You can do this fellow j pouch warrior!...
Congratulations and happy to hear you are doing well. Today marks 9 years since my takedown surgery. I can’t believe it’s been that long! Life UC free has been good! Continued good health to you!...
No, it isn’t necessarily a cure but it can help people live a better life when they are sick and suffering from severe UC that can not be controlled. I don’t know where I’d be right now without...
thanks! Having a great surgeon is EVERYTHING! I had to travel a bit of a distance to go somewhere I trust. Would never be able to have a surgery like this in my town....
No, I’ve not had pouchitis. I had some issues with an abscess developing immediately post op from my first step. That was pretty rough as i had to be re hospitalized and have a drain put in. Then...
glad to hear you’re doing well. My sister has a j pouch too and she’s like you only 1-2x a day. I wish. Lol. But it’s all good going more times a day and not being sick!! Be well....
It does take some time. You’re still pretty fresh out surgery. It took me several months to feel like myself again. The one thing I had to deal with was a stricture after my takedown surgery. Scar...
thanks! No, things have been normal for me since the colon removal. Nothing else has popped up. (Knocking wood!!)...
Thank you! bathroom trips a day are average 4 to 6. Sometimes less than 4, sometimes more than 6. I stopped counting years ago to be honest. It’s not like going to the bathroom with a colon (sick or...
congratulations on getting through the surgeries. :) No, I’ve never taken any pro biotics but I do enjoy eating yogurt so that certainly doesn’t hurt. No Imodium. I took that when I had my temporary...
I haven’t posted in a really long time. I just realized today I missed my 9 year anniversary of my J Pouch surgery at the end of June. I can’t believe it’s been that long! Just here to say that it’s...
I went the Biologic route when everything else failed and didn’t have any luck with that either. I had j pouch surgery 9 years ago this month and it’s been the best decision I could have made. So so...
No one likes to take prednisone but if your doc said you’re that inflamed, I would follow his orders and take it to get that inflammation under control....
Surgery is a blessing if you’re one of those people like me who failed every medication. So having been through it all, I will recommend surgery every time for someone who is the right candidate for...
I had zero quality of life left. And when you cannot leave the house without having an accident, it’s time to take a hard look at what options you have left. I chose j pouch surgery because I wanted...
Everyone is different. I know people with j pouches who have watery stool all the time and that’s their normal. Then I know people who have semi formed stool and that’s normal for them. (You’ll never...
Happy anniversary! I’m coming up on 8 years ..... can’t believe that! Things have come a long way and people do not need to be so afraid of this procedure if they truly need it. It’s been a...
It’s complicated. I consider myself cured because I’ve been symptom free since my j pouch surgery. But yet medically, I’m still considered to have IBD. Once you have an autoimmune disease, you have...
You have a good list there. I never ended up needing anything other than the Calmoseptine ointment. I was fortunate and had an easy transition. Wishing you the same! No matter what though, usually...
Be patient with yourself. It takes time to heal after such a complex procedure. You’ll notice improvements as the weeks/months go by. Soon it will be a distant memory. I can’t believe I’m coming up...
I haven’t posted in a long time so I thought I’d stop by and say hi. My j pouch surgery was 8 years ago this past June and my takedown anniversary is coming up in October. Everything has been...
Yes, I recommend it if you’re a candidate. Yes, to me it was TOTALLY worth reversing the ileostomy. For me emptying the j pouch is a quick and easy as urinating. Just sit and go. I go 4-6x a day....
Step 2 of the process is the most involved step and it’s a HUGE procedure. It takes time and lots of patience on your part to heal. I remember when I was in the thick of it and feeling like it was...
If nothing is working....seriously consider it. I was in your same predicament when I completely and utterly had enough. I opted for j pouch surgery. BEST THING I EVER DID. It is not easy and you...
I changed the bag and wafer daily....I couldn’t stand it. That loop was the absolute pits. I’m impressed you’re getting 3 days out of it! Bummer about the incision. I had a c section style incision...