Hello I am new to this forum and my name is lucky I'm sorry but I have to disagree with the recommendation to take a benzodiazepine This is one very addictive drug believe me I know what I am talking...
Ncot you really do have talent as a writer even though I told you off in my last post ( sorry ) I really do feel for you , Im not well educated but your writing talent is great so cleverly worded and...
I really don't get why you feel the need to keep posting obviously you get a kick out of winding people up your negativity and sarcasm is getting BORING !!! You hate life with a stoma yeah we get it...
I have a immune disease and it caused severe colonic inertia for many years I asked my gastro if I could have a bag , I was so fed up of him giving me more laxative bowel preps I changed to a new...
Ncot sorry you are in such a dark place I know only to well how this feels :sad: sometimes life deals us a crappy hand but we just have to accept and try to make the most of each day no good saying...
Get your minerals checked I'm 9 months out from two surgeries and still suffering from magnesium and many other deficiencies Lucky L...
Ncot I was allergic to all the bags and had red raw skin also tried all the rings and seals but didn't help at all , when I had the last surgery the stoma nurse brought me salts aloe Vera bags they...
Ncot you sound very angry I do hope you feel better soon its not a nice place to be when we feel so ticked off even if it is for a good reason Lucky Esor Good luck on deciding what to do I wouldnt...
Rosemary I would stick with the doctors you are seeing now I know how hard it is to trust them but switching doctors again could just complicate things further , the team you have now are recommend...
Darn that's suppose to be thinking...
Rosemary so sorry to hear what's happening with you try and keep your chin up as difficult as it seemed honking of you lucky...
Some answers at last rosemary yay Have my fingers crossed this dilation works for you Lucky...
I'm in Australia and don't think Celebrex has ever been banned here Lucky...
Rosemary . Maybe you might want to take a look at this , I have been given the drug Celebrex to take for inflamation but when checking out the side effects on Wikipedia It has an article at the...
Rosemary , I have slow motility of the small bowel hence very slow output at times I'm eating cereal for breakfast now but I won't see it in my output untill at least 6pm tonight or sometimes even...
Rosemary just wait and see what the doctor says dont presume what he will make you eat , the previous posts all make sense and you really need to be open minded and listen to what you are being told...
Hi rosemary sorry you are still suffering so much , did you try the vitamized soups ? If the grape juice is coming through then this would most likely pass through as well I think the boost could be...
How did you go with the boost and potato dg ? Hope things are improving could be your intestine hasn't woken up yet still early days just try and keep moving when you are up to it...
Sorry your having some problems dg , I had this as well every time I ate or drank would hiccup and throw up eventually mine was caused by bowel loops and adhesions that required another surgery to...
I threw up lots to cause was chronic bowel loops and adhesions Hope you feel better soon Lucky...
Lolly that was a lovely post , rosemary I hope you are able to take Lollys advice and do something about your state of health I hope her kind words are comforting for you as well , she has survived...
Thanks nena , I'm definitely feeling so much better in the last month than i have for a long time and when my electrolyte imbalance sorts itself out there will be no stoping me once again thanks for...
Thanks mean girl , I have tried all forms of magnesium supplements but all of them cause major stomach upsets and make my mouth raw to the point I am unable to eat I do take calcium etc but my levels...
Since my total colectomy 6 months ago my magnesium levels keep dropping along with sodium,calcium,iron, b12, potassium getting bit fed up with constant infusions and not feeling well doctors can't...
My surgeon left my anus his idea was it helps support the pelvic floor and removing it causes to many complications , after the complications I had following surgery I'm glad he left it there...
I use coloplast assura and my bag has blown many times at night very messy and not happy but I seem to be allergic to most of the other brands . like you I watch what I eat ,never eat late at night...
Sorry to hear you have a hernia aswell now ,I had a large peristomal hernia rosemary had it for four years andit never affected the functioning of my stoma used to get a dragging feeling but...
My surgeons said he puts one in during all his colectomy surgeries .. I flat out refused one he said I would be very sorry should they have to put one in afterwards , I had lots of vomiting when...
Good luck with your surgery and hope you have a very quick recovery , getting used to my ileo was no big deal it gave me back a life :) sure you will be ok with it to once you adjust, try not to...
Rosemary I know how scared you are feeling right now but you have liquid passing this is a good sign , just try and ignore what is coming out and in what order remember I was in the same way you are...
Rosemary my stoma is angulated to but it still works sometimes it disappears in to my skin but it still works , if you introduce blended raw veggies do it slowly and also try making veggie soups I...
Rosemary i was on tpn for a week only had blood work daily as all electrolytes and minerals were very low had so many infusions my veins closed off ,during the week on tpn I drank soup mainly with a...
I'm with b'dereh on this one as you know I had same issues couldn't eat stoma has. Adhesions that I was told would soften with time my weight had dropped to 85 lbs and I too was weak dizzy etc same...
I had a hernia the size of a orange on my right side it used to give a dragging pain but I found wearing a support garment took the pain away I used to get back pain on and off but think it was more...
Thank you b'dereh I will try this it's not like her to be so quiet I'm thinking she must not be to well . Lucky...
Just wondering how you are doing ? Have you managed to get tpn yet ? Hope you are ok let us know how you are doing Thinking of you lucky...
I had a general surgeon recommended by my GI , I had many complications and he just didn't want to know about it now I'm seeing a colorectal surgeon after speaking with four of his patients who speak...
My vision went very blurry rosemary I used eye drops available from pharmacy and used them three times a day it did help somewhat , my teeth are stained and still painful especially when eating cold...
Rosemary I was given tpn and encouraged to eat as well , who is doing your blood work ? Are you having regular blood tests so that the doctor is aware of exactly what is going on with your...
Hi rosemary i have to agree with the latest advice everyone is giving you , you know what troubles I have had and the best outcome for me was to change from the first hospital where I had the two...
Rosemary I was worried having tpn but really didn't need to be , you need nutrition and that's just a way to get it and you will feel so mulch better for it and it's not like it's forever although...
Ps my picc line was taken out wheni left the hospital...
Rosemary I'm so glad you are finally getting some help at last I felt so much better after a week of tpn I had a pic line inserted in the top of my arm and was given nutrition this way my blood sugar...
Yep ate bread and stoma packed up again ! Back to swelling bloating and vomiting Lucky had a appointment with surgeon today he told me To stick with liquids and no bread meat etc just try and nurse...
Thank you mystique and uc wife wishing you a very happy new year Lucky...
Sarah I had the ct in hospital results said blockage at stoma it took long time for the oral contrast to appear in pouch must have emptied over two days , I had the gastrograffin liquid orally and...
Well it's early days but after my last hospital stay that included tpn , ct scans and a gastrograffin X-ray finally made it home on Xmas eve , wasn't able to eat just the usual soup and protein...
Rosemary I'm so sorry you are still not getting the help you need I was never given tpn at the first hospital where I had surgery even though my weight had dropped to 41kg Or nutrition drinks it was...
Rosemary I'm confident with the new surgeon and will try to wait it out as long as possible my stoma is not stenosed but the pain an gas along with pressure behind stoma is pretty awful im not in as...
Rosemary I sure pray you get the help you need ,especially the tpn it's awful you have to move again just incredible , I'm on tpn in hospital going home for Xmas on Monday but supposed to be back in...