I wear a coloplast midi with is 9" or a Hollister mini/pedi which is 6" - I'm 5'2" on a good day :)...
Dang it, I was hoping it would have gone away on its own for you. Has your doc talked about switching from the Humira to something else? Honestly I dunno what corrected/put mine on the back burner...
I am sorry to hear about your battle - I have had similar issues with my wound and I was one year from surgery on Dec 15. Doc says when she looks there is no obvious opening but when I exercise or...
I had a new spot open up too - bastard PG! I treated it immediately at home with what I had and contacted my WOCN/GI to make them aware and schedule appointments. By the time I got to see them (2...
I have a couple spots like that too - they are both in the area where pyoderma was/is/used to be whatever LOL! Not painful, not hard to the touch, etc. WOCN has never said anything about them so I...
Also don't forget to check out j-pouch dedicated sites like j-pouch.org and even blogs like blood poop and tears or inflamed and untamed....
The putting it farther back seems like a good idea - you won't know until you try....
a bunch of activists on twitter have a #purplechallenge going, you can check that out. I'm participating and my handle is @allbluezoo surprise LOL! I also blog and participated in NHBPM with WEGO,...
Please let us know. Do you know what color code your wafer is? I'm the smallest one and mine say do NOT cut past the 25mm mark so if you are on the small ones and cutting past it that *might* be a...
Your surgeon should have a WOCN or at least be able to put in a referral to one for you. In my situation if you don't have a referral to the WOCN they will not see you - you can't just call up and...
I have a nurse come to the house and do the injections for me. I set it out at 230 and we are usually around to the injecting point at 315 or so. I go in the tummy - not much room though b/c I have...
Skyla - yes I have done Remicade, failed. Surprise. My previous GI was very insistent that I continue meds and try more options even after I had failed Remicade and was failing Humira. I didn't feel...
The information you quoted is the same info I have read and have been told from my GI. I went from Humira (failed) to Cimzia (so far so good) and have been told the next step is Tysabri....
Sorry I missed your day - happy ileoversary friend!!!...
Just want to, say I am sorry for the struggle you are both going through, I can understand how frustrating it must be! I agree with the sugar intake - that will make things SPEED through the system....
Have so much fun and THANK YOU for participating! Do you know/read Jackie over at Blood/Poop/Tears? She is going...and a few people I follow on Twitter - semicolongirl is one off the top of my head....
I have fallen of the toilet twice that way bootstrap LOL! Yes...I fell backwards off the toilet. Only an ostomate!...
My GI has explained to me that you can have IBS episodes with IBD. When trying to explain why I have these mini "flares" around my monthly cycle he shared research that suggested that these episodes...
The risk of a blockage is terrifying since I've heard they are extremely painful and can last from hours to days. (Fortunately, I have never experienced one myself.) Fact, for you? Blockages happen...
ostomy actually means a surgical procedure that creates an artificial opening - the prefixes denote the TYPE of ostomy, ILE - COLO, UR, JEJUN, etc....
Seems the cons are more subjective than objective, in turn making said list personal opinion vs. factual....
I'm almost a year out from surgery and my rear just closed a couple months ago - and I still have minor issues with it when I excercise (run for long periods). It is the hardest to heal b/c we sit on...
Larasmom - where are you? MY BEST FRIEND is a crohnie and is currently living with her parents while her hubby is deployed. she is in St Catharine's Ontario....
I recently started Cimzia - I have my last "loading" dose on Monday. I did Remicade for nearly 2 years and it eventually failed then I did Humira for roughly 3 years and it too failed. So far Cimzia...
Julia- I was going to ask about the balloon to widen the stricture as well. I have heard Remicade is the way to go for healing fistulas. I did infusions for roughly 2 years to keep me in remission,...
Not much help but my GI did mention Stelara this week - first time he's mentioned it. Before it has always been methotrexate or Tysabri. I failed Humira after almost 3 years and am currently doing...
I did a YouTube video on injecting Humira with an ostomy in the abdomen - http://www.youtube.com/watch?v=tJeOnHJIfKg&feature=plcp ignore my echo-y annoying voice....
I had the same experience at the support group meeting here. I am TRYING to reach out to see if there are more people my age. I live in a military town and many of our returning wounded warriors have...
Also, an ostomy belt may help. You attach it to little tabs on the side of the pouch and it goes all the way around like a belt. You can adjust the "tightness". Totally agree on the use of...
For someone who has never met you in real life, I am awkwardly so incredibly happy about this post hahahha! You have been through it "friend" and I so glad I happened onto this board b/c you have...
I try to stop eating at 6pm and typically go to bed around 10pm or so. I am sure to use the bathroom when I think I'm going to fall asleep. Some nights I am able to sleep through the night, others I...
I see you had surgery Oct 12 so your size will be changing over the next couple of months - I was 1 1/8 straight out of surgery and now am a little under 7/8. Also try the WOCN group in your area -...
I was on Humira after surgery but it had lost its effectiveness. I am now on Cimzia instead. It's a crapshoot as to what you want to do post surgery. Wait for disease to show up and battle it or try...
I refused the wound vac. Well - let me rephrase, I refused it to go home with me upon discharge. Took longer for me to heal back there but whatever. I didn't want to lug that damn thing around....
Well dang Rosemary. Looking for you to catch a break love....
Another Edgepark user here, never a problem....
I haven't tried it but it is on the short list of options should my current med (Cimzia) quit working. I know I will have to think long and hard about going that route and it will be a very hard...
Did you end up with the loop or end? Curious to hear what your doc had to say to your questions. Glad the healing is going well and you are already back to a bit of work. Take it easy, don't do too...
Hey y'all. I know there are LOTS of avenues for information out there - I have just linked my blog to a Facebook community and I'd love to have you over there to share the wealth of information that...
Liz, yes oh my gosh! The greyish too! I was having lower rt quad pain with it so my surgeon was FREAKED OUT! She actually admitted me without even seeing me in the office - I showed up at the...
Suzy - count me in your group too! Last time I was in the hospital they sent GYN down to examine me b/c part of my problems were a brown/blackish vaginal discharge. No odor at all. Scared the...
I'm participating!! It's a blog a day for 30 days about your health. They provide prompts or you can go off on your own subjects as well. I currently have a mish mosh of both. Check it out...
M9 is a pouch deodorizer and the adapt tubes I am assuming are the Hollister Adapt paste? I dont' know about the gelx? Maybe the little packets you can put in your pouch that help a more liquidy...
That doesn't seem right. Dont' they have the allowance posted on their website somewhere? What's from stopping everyone from saying that they only have 3 days worth yet? Seems like someone just...
The group here is mostly elderly people - I WANT it to be successful but it needs a mix of people from different age groups. I think the WOCNs in the area have to be promoting it also. Maybe I need...
Ha! I have a Stella also! She is called Stella 2.0 because of a revision, but Stella nonetheless. Those first few weeks are so unpredictable with your body adjusting to all the new stuff going on....
Oh man! And the oral steroids weren't helping at all?! I'm so glad we were able to avoid that - here's to hoping the injections continue to be helpful for both of us!! Did you check out my...
Whew...glad nothing came of that slap LOL! Happy to hear it wasn't that bad - will you go back for another round? Sorry about that drive - mine is 1.5hrs roundtrip, nothing compared to yours!...
Oh I am glad you got to see it! I REALLY wanted to let people (the few of us that exist LOL!) know that it isn't that bad. You can hear me talk through the whole thing, no high pitch shrill from pain...
I had sushi before I was even released from the hospital :) Peel off the seaweed wrap, chew the hell out of it and drink plenty of hot tea/coffee after. I actually only do sushi/rice for lunch so...