* sorry typo - I meant to say "That's stopped after the surgery, but just a few minutes ago TODAY, I went to use the restroom and strained a bit and ........"...
This is going to sound a bit gross and I'm sorry :( but back when I still suffered from having really bad UC, a lot of mucous would come out when I would have BMs, but in my case, that mucous would...
Thanks for getting back to me, Keith. I would definitely like to get scoped yearly, too, but the system here is a bit complicated where they won't scope unless I have a symptom of some sort, but they...
Hi Keith Thank you so much for the input. Appreciate it :) I had a hair cut appointment yesterday morning and figured I'd be at the salon for quite some time and decided to use the restroom...
I went to the restroom not too long ago and stool did come out but at the end I strained to make sure everything came out. When I looked in the bowl, I saw a bright red clot thing. I was thinking it...
I see. So, you're pretty fortunate then :) I'd definitely ask for the yearly scope. I'm still under the surgeon's care for another 2 years because of the cancer - not sure what happens after, though....
Ks1905, Yes, I also prefer to be scoped once a year but for some reason my surgeons only do it when symptoms come up. They base it on blood tests and tumor marker and ct every six months. I'd...
Thanks, ks 1905. That's so true. Yes, I was thinking of going to my GI, but just not sure whether There's something going on there enough for me to go see my dr or what. I know the first thing he'll...
I hope not....😟 I haven't been going often, but usually when I eat breads my stools are thick but it's been mostly watery and some clumps (sorry for the gross description...). If it doesn't get...
Everything was going pretty well for me until about a few days ago. My pouch sounds like an ocean, seriously. I don't leak during the day but this past week, I've been leaking a lot during the night...
Thank you for the info, Rchodos. I'm glad they were able to figure it out. I do get blood work done every 3 months, and lately, it's been pretty good. I'm definitely going to ask about that at my...
Hi Marianne Thanks so much for the feedback. I appreciate it. I had an appointment with my GI today and he referred me over to a rheumatologist, who I'll be seeing next Wednesday. He doesn't think...
I never really suffered from any joint pain during my UC days, but just recently, I've been experiencing joint pain on both sides of the body. Shoulders, elbows, knees and sometimes wrists. I went to...
How can she have such a high HTg number but yet be told that her lump is getting smaller?...
She was prescribed a medicine called thyroxine and will be taking it from today....
Hello. This is my first time in this forum and I'm here to ask about my mother's blood test results. She hasn't been diagnosed with anything but has been seeing a dr every 6 months regarding her...
Thank you, suebear and Pluot. Yes, I think it may be the ulner nerve - did some researching on the net. Oh it's the orthopedic dept...I made an apt with a neurologist cause I thought it was...
Hi. I'm wondering if UC or having the j-pouch has any relation to nerve damage...? In particular with the arms and legs (mainly feet). I had suffered UC for about 6 years before getting surgery due...
It's very normal as ks1905 mentions, especially being that you're only a week and a half post takedown. I'm exactly the same. No leakage or anything during during the day. Sometimes if I eat a lot...
Thank you for the input. I appreciate it. Yes, I just googled CEA test and read that many things can elevate the number, including smoking. I know that my friend drinks alcohol from time to time (and...
Hello. This isn't about me but is about my friend who suffered UC for 20 years and who was diagnosed with rectal cancer stage 1 two years ago and had j-pouch surgery. She gets blood work done every 3...
Wow, thanks so much for all the info, Alcie. Really appreciate it. Decided not to pop my ears after having heard what you had to say and just been trying to swallow and yawn. Yes, I've heard about...
Hi Marianne. I guess I'm not the only one having a tough time. When I started reading your response, I, too, thought your issue was with the thyroid or something horomonal. Hope they can figure out...
Is it easier to lose weight by drinking more water? I'm almost 2 years post takedown and have started gaining weight from about 3 months ago from eating too much since Christmas >_< Recently, I've...
I read somewhere that Apple cider vinegar works well in disinfecting the sinus. I guess we drink it..?? Have you heard anything about this? I'm wondering if it's effective at all....but I'm also...
Thank you for your responses - appreciate it. Alcie - You mentioned only sulfa drugs get to the sinus because of poor circulation there. Maybe that's why this illness is hard to treat. I've read...
I'm also not sure if I should seek a second opinion at another hospital or if it's just too soon. I just went to this hospital because I figured they would have my records from my surgery for my...
I hope that everyone is having a nice day (despite allergy and asthma issues). I'm posting today because I was recently diagnosed with sinusitis. On Sunday, my mother noticed that my face was...
I'm not even sure where to start and I may have even posted about this before but the problem is that I just can't seem to stop eating and it's been that way after the surgery, only it seems to have...
Yes, they're still continuing with the pouchitis diagnosis. They didn't find any other bacterial infections, either, and they did test for c.diff. The probiotic sachets I was taking after each meal...
Thanks for the kind words, Rabbit. I'm ended up walking to ER this afternoon since I could no longer take the pain and fortunately, my surgeon and his team were there! I was very very lucky. They did...
I take small sachets of probiotics after each meal, but because I don't eat dinner, the stools start turning acidic and it hurts like omg I can't describe it....
Feeling a tiny but better - think the probiotics are really kicking in. Thanks for checking in on me. Appreciate it. Trying not to eat or drink after 4 pm so that I can put in the steroid enema for...
Marianne: Thank you ....yes, I just read somewhere that Rowasa enemas were used in the US and is similar to the Pentasa ones. I also used to use this when I had UC but like you, due to severity,...
Thank you , embersglow1, but I ended up dying from butt pain. Glad it is soo over!! One of my surgeon and another surgeon came to take a look, and much to my surprise, they found 6 inflamed spots...
Just thankful to be able to talk in here...thank u......
Yes, the enemas I have are the steroid ones that my surgeon prescribed to me a few months ago. I keep them just in case. And I can totally agree. Hot sitz baths are the best! I do this so many...
Sorry to keep posting on here.. Didn't get to see my surgeon the other day and will be able to see him tomorrow. I think I have a hemorrhoid now and it's just hurting so bad and I've just been...
notsosicklygirl: I think so, too. If things get worse, will go today. Marianne: thank you . Also praying it's not that my pouch is inflamed and that it's only a bug....
Thanks so much for all the input- really appreciate it. I took Cipro for two days and I felt nothing was getting better so I've stopped it and I feel better. The strange thing is, this is coming down...
Hello. I've been having really bad watery foamy stools for the past week. So I went to see my GI dr who prescribed me Lopermin and gave me IV for dehydration 2 days ago. He thought it was a stomach...
Hi Linda Sue Thank you very much for getting back to me. Yes, I'm taking Nexium and a couple of other meds to help with digestion. I've had an endoscopy done last May and my GI doctor told me that...
Hi. This isn't directly related to j-pouches but I'm wondering if you can actually have or get shortness of breath through indigestion. I've been diagnosed with functional dyspepsia (although I have...
Hi. I'm not usually in this forum but I was wondering about indigestion. Can you actually have or get shortness of breath from indigestion? Any kind of feedback would be appreciated :)...
Forgot to note that I'm not sneezing or coughing at all. It does feel like there's oxygen going in me (sorry, strange way to word it...) but it's just that it feels like someone is squeezing my...
Hello Hope everyone is having a nice weekend. I've been experiencing symptoms where it feels like my airway passage narrows. This has been occurring for the past 3 days. I was diagnosed with...
Hi. I've been experiencing an urge to go although I can hold it in and also diarrhea. But depending on the food I eat, it will be harder to get stool out, but at the very end, it feels like only...
Is there anyone out there that has issues with their esophagus and is seeking medical attention for it now? If so, what sort of problems do you have??...
embersglow1: Thanks! I do have in mind that keeping hydrated is important but I guess it's easy to forget to continue drinking throughout the day when you're occupied with other stuff. It seems you...
Thank you very much for your feedback, everyone. ENIGMAWRAP: I was on pred 2 years ago right before surgery for only about 3 months(?) and while I was ok during pred, as soon as my GI started weaning...