I didn't have butt burn for several weeks after takedown. But, now I have it fairly frequently. I think it might have to do with introducing all kinds of different foods. So, I didn't use...
Lizzzzz....so glad to hear that things went well. I hope the rest of the recovery is smooth as well. And, don't be in a hurry to start eating solids. Take your time....
They manually screened me once when I had an ostomy, so I let the guard know before he started. It wasn't a problem at all. Good luck!...
Good luck for tomorrow, Liz. You have quite a list of questions :) I hope the takedown is a breeze and you are back to your old self in no time!...
Hi Liz, My advice to you will be different from some of the other ones here. Before telling you what I think you should do, a little about how UC changed me. I am a tenure track faculty at a top tier...
Gotta go - I also think you are doing great. Some days are just outliers, don't let them get you down....
As ByeByeUC said, take deep breaths and don't worry too much. Things will be fine. Initially, it can be rough but for most people things get much better quite soon. I am almost 3 months from my...
Oh Liz...I can relate to that. I am a guy so it definitely doesn't have anything to do with the time of the month. Between my surgeries I had become quite emotional. I never really broke down and...
Sure..my email is uroojk at gmail.com...
I recently had my surgeries with Dr Bauer and he has been great. I am a tall and skinny guy so there could have been some complications with my surgeries and he seemed to be the most competent of all...
I am a guy and my stoma is right above the belt line if I wear low rise pants/jeans. I've been using ostomy secrets' boxers and I quite like them. My pants are well fitting, not super tight and I've...
Here you go http://en.wikipedia.org/wiki/Ileostomy vs. http://www.j-pouch.org/Whatis.html...
For three weeks as of today. It's the best I've felt in the last 2.5 years since I was diagnosed with UC....
Thanks for the feedback everyone!! Like Liz, I will also be calling Coloplast for samples. I am using a convex barrier, I think I will try out their Assura range. EXCITING!!!...
I recently got a loop ileostomy (Jan 18th) and am about to order my first set of supplies. Being a newbie, I am curious what bag, wafer and other products that you use. I am using a 2-piece Hollister...
I also ended up changing my wafer by myself at home for the first time today. The home-care nurse had changed it on Saturday but it had already started coming off and I was paranoid about it leaking...
I am ten days post-op with stage 1 and stage 2 of the j-pouch surgery done together and my symptoms are nearly identical. I don't have any burning while peeing but a slight pain in the abdomen when I...
The IVs and drains are coming off one by one and I think I should be heading home tomorrow. I still get sharp shooting pains in the stomach randomly. Is this normal given it's only been six days...
The colon pain has certainly disappeared and I am grateful for that. I am having gas pains and bloating now that I have started eating something. I really hope this resolves soon because other than...
The bowels woke up today and I was able to walk a bit. Also started clear liquids - apple juice and soup. But, I dank them very very slowly. Overall, it was a good day but still feel like I was hit...
The surgery went well according to the surgeon and I was totally wiped out for the whole day. The pain wasn't bad at all but I am yet to get any walking done. Day 2 mission - walk walk walk and hope...
This is my first surgery and thanks so much for the tips - walk walk walk, chew chew chew and stay ahead of the pain. Right now after a day long prep, I am really looking forward to that first real...
The big day is finally here. I go in for the first stage of the two stage j-pouch surgery tomorrow morning at 6AM. I wish the surgery was already over and done with and I was on the way to rcovery,...
I thought I'd add to Plout's list of questions. Below are the questions I ended up asking and quite a few of them overlap with Plout's - • Is it certain that I have UC and not Crohns? Especially,...
Hey Bootstrap....how are you doing? Hope you are enjoying being home!!...
The idea of the home care nurse is great. I will look into how I can get one to swing by once I am home from the hospital. Also, I will keep my expectations realistic. No point in hoping that I will...
Thanks for the input everyone! I am trying my best to be in the best mental state as possible. But, dealing with all the silly insurance issues, etc is not helping. Yet, I am quite looking forward to...
Unfortunately, Dr Brandt in NY is no longer treating UC with FT. I got in touch with him recently and he told me that he had to stop treating UC patients because the FDA now considers stool a drug....
I have scheduled my surgery for Jan 18th and was wondering if anyone had any advice about how I could prepare for it? The surgeon expects to do it in two stages but he has left the final decision...
Hang in there, Bootstrap! We are rooting and praying for you....
Congratulations! As Scrap Girl said, your fight against UC will make you a better and more compassionate nurse. And, good luck with the upcoming takedown!!...
Thank you for all the great advice!! I have a consult with a third surgeon scheduled on the 31st. He is very well known and has been recommended by several people. Let's see what he thinks is the...
I've met with two surgeons now and while the first one suggested that he will do the operation in 3 stages the other one preferred doing it two stages. I am curious what you guys think is a better...
Christine and KCookie - Thanks for your messages. I have my first surgery consult tomorrow so I feel I will have a better idea of what to expect after that. At least, I hope I do. Though after...
Good luck with your takedown, bootstrap!! And, I agree, your blog is very informative. Thanks for taking the time to write it....
cfg - sorry to hear that you had to spend a month in the hospital due to post-op complications! But, I am glad that you are feeling much better now and are no longer haunted by the horrible UC...
Notsosicklygirl is right...the one-step procedure is done very rarely in the US. It's either 2 or 3 surgeries depending on your general health and the medicines that you have been on. I am also...
My surgery consult is with Dr David Chessin no is a part of Manhattan Surgical Associates. I'll try to see if I can get to meet with Dr Bauer instead. I wonder if he will be willing to work on me...
Thank you all for your sharing your experiences! They really help me put my symptoms in perspective and make me realize that I am not being unreasonable by not being happy with my current quality of...
Congratulations!! I am considering getting surgery to get rid of UC and it is really heartening to ready your story!! I hope you have wonderful holiday season....
Hi everyone, I am considering j-pouch surgery in the near future and was wondering if any of you j-pouchers out there got your surgery in New York City. Or, if you have recommendations for any...
Thanks for the input, everyone!! I really appreciate it. On most days I feel I am ready for surgery. But, if I happen to be having a good day I start questioning my decision. I guess my expectations...
I have been lurking around the forum reading all the helpful information posted here for a while. Finally, got around to creating my profile and need some advice. I was diagnosed with in May, 2010...
Hello, I have been lurking around the forum reading all the helpful information posted here for a while. Finally, got around to creating my profile and need some advice. I was diagnosed with in May,...