Hey guys. today is my first full day home. spent 26 days in the hospital ( I have 4 kids) I am emotional and so thankful to be home. My husband was so scared I was dying and my kids were as well. I...
I am 5.8 and 124lbs.. thin framed mom of 4 :) When I first got my bag in September I woke up with this huge drainable pouch that hung down to my crotch..as a girl I am just not used to things hanging...
LOVED my TPN.. LOVED having a PICC line.. super handy thing :) Labs are a breeze! Let it warm up to room temp before running it.. fridge TPN will freeze you to your core.. pharmacy said to let it sit...
your insurance will not be valid if you drive without doctors consent :) Glad you have a ride :)...
I had TPN for 3 months LOVED it.. 5 Days in the hospital to even out my levels and then 3 months of it at home. I was so malnourished.. it saved my life.. its amazing what nutrition can do for your...
its crazy how close our stories are.. I have been very very sick ( Icu.. etc) for the entire 7 years I have had this disease.. HORRID.. perianal abscess, setons, fistuals, vomiting.. anemia .. you...
wow were so similar .. I have to say that its been 4 months since my surgery and I am HAPPY.. ya does it kinda stink I have a bag.. sometimes but not for more then 5 seconds.. I am so thankful.. I...
I too have disability... My friend who is a manger for the ssi disability told me that what gets most people denied is that the doctor doesn't say.. unable to maintain a job.. can not work. Is not...
I loved my Iron Infusions! Gave me back a bit of my life.. I was able to walk up my stairs without passing out.. I had to do them every 2 weeks for 3 months then break for 2 then back to them.....
so I notice stuff coming out in its chewed form as well.. I wonder how much benefit we are getting from eating these foods? Lentals come out whole for the most part.. so how can we be getting any...
I had my entire colon removed ( minus 3 inches at my rectum) 9-17-12 and I am now starting to get hints at a flare coming back... I almost died from this dang disease in september.. ( my colon was...
I use the same bags/ System. I have never had one pop off at night ( or any other time) but I always wear a tight old navy tank top XS size that way it fits snug over my bag and hold it down tight (...
I have to say you are LUCKY.. I had my surgery Feb 12th and I am still wearing gauze between the cheeks and a panty liner.. this Friday May 25th I started running a high fever 104.8 and called my...
I often need gatorade to make my brain work.. when your electrolytes are off its so hard to function.. I would talk to your TPN manager.. they can adjust things :)...
Well this will be different for each person..I have been on a low residual diet for 3 years..If I eat say salad.. I am in so much pain and the crazy D starts again.. I never eat fruits or veggies any...
I too am skinny even on pred. but I also have pretty severe nutrition issues .. I am 5'8" and a 126 lbs..In clothes I look amazing and like I am a gym rat or a runner.. however I have lost a ton of...
I agree that Ensure is nasty but its really good for you. I have an 8 in stricture that goes to the size of a drinking straw.. trying to postpone surgery. Take the ensure juice boxes and blend them...
DR.Grunkmeir at Oregon clinic is awesome, DR Shumaker is also great there. A PA there called Isabella is the best! I'm a tough severe case and they are great!...