Stuff does get moved around . But you might start with your pcp to rule out a bladder infection as that is very common after surgery too. Also thins can still settle down for many months past surgery...
Don't understand why you would need gloves. Output doesn't get on my hands when emptying the bag. So why gloves?...
Yes, I have experience... unfortunately. After it was discovered that problems with my jpouch were due to mechanical issues... probably cause it was built work.. I was so sick.. that my surgeon at CC...
yes but also be sure to drink things with more nutrition like boost, ensure, etc.. basically stick to liquid diet... but make sure you are getting nutrition...
sure seals...
have you met with a jpouch guru doctor. there are lots of options but I don't believe most docs are educated enough...
that coloplast brava stuff definitely can cause yeast infections and extra itchiness. It holds moisture way too much. Ditch that and try hollister adapt rings or slim eakins. Also when you clean his...
sounds like a stricture. its common. and PAINFUL. it can be opened up in surgery...
have you seen a wound nurse. I am 2+ years out and still unhealed. told it will be chronicalyl unhealed. so I don't think 3 months is a big deal. But sometimes wound nurses have ideas that haven't...
try eating smaller meals more frequently. That sometimes helps things settle down and reduces discomfort and noises...
congratulations eva see how it all just becomes so easy and quick. I know that thought of the unknown is overwhelming... but once you are through it.. you see how little extra time this ostomy stuff...
Go to a PAIN MANAGEMENT Doctor. They can do nerve blocks in the area.. even specific pudendal nerve blocks. Also there are many other nerves in there and they can figure out which ones might be the...
try ME-FIX tape. one of the ostomy nurses at CC introduced me to that. I had a horrid reaction with Brava strips first time around.. tore my darn skin up. The stuff is poison! I also prefer ME-fix to...
hey blue. sorry to hear about that. but post blockage or partial blockage or whatever you had... can cause the intestines to be inflammed for awhile. That inflammation can cause pain. So you need to...
success rates vary dramatically based on what institution does your surgery. Keep this in mind. It is an extremely complicated surgery. You want to go to the best institution you can and find the...
blood in your output isn't normal. What does the doc say about that? also have you tried M9 drops by hollister. They work like a champ for output stench. Only problem is you have to put it in after...
drinking plain water is simply going to exacerbate your situation. You need to drink true WHO electrolyte beverages ONLY. I don't know what country you are in.. but in the US.... the fastest (and...
there is a coloplast barrier thingy like the hollihesive. When I had yucky unrelenting skin problems I found that worked whereas the hollihesive didn't work. the coloplast barrier strips only hold...
I never use any kind of adhesive remover. I find that adhesive remover causes more skin irritation. There is nothing wrong with leaving a bit of residue on your skin when changing. I simply wash with...
try changing your wafer more frequently. If you say its "breaking down" by the third day. Then change every two days. and if you feel a wierdness or itch under the wafer. change immediately. and try...
I've always been told by various surgeons and gi doctors that you can take immodium indefinitely. And up to 8 per day. If you are taking a full 8/day. you take 2 pills 30minutes before each meal. And...
wow that seems so strange that they just removed part of your tailbone. wow. anyways.. go see a pain management specialist. They can do nerve blocks and nerve abalations. but also.. you are soon out...
whatever it is, you should change to something different in order to prevent any kind of skin problems....
Also there is a more potent anti-fungal powder called Nystatin which requires a prescription. Generally a few days of this works well. Your ostomy nurse or a nurse from your surgeons office should be...
I had to wait minimum of 6months between my step 1 and 2, and steps 2 and 3 of jpouch surgery. I don't think its that unusual for surgeons to be conservative. However, with that said, there is...
Red wine and yoga poses....
Go for it. Dont see why you have to limit foods unless you are very recent out of surgery. And make one of those calzones for me. Sounds delicious!...
Too much sugar in those drinks. They can increase your utput and dehydrate you further. Try a true WHO oral rehydration solution. Jianas brothers, ceralyte, or even pedialyte. Switch to just drinkimg...
Me here. Plout is correct. When they remove jpouch they remove anus stuff. My complication was a huge long sinus tract and unhealed woumd. Gracilis flap repair surgery was line dup for me after 12...
Generally less is more is the best philosophy. So why would you need this if your skin was ok?...
This is not unusual. Butt wound healing complications are common. I won't dare tell you how long mine has been to heal. Yours sounds similar as it is long and narrow. Just make sure it is staying...
you seriously deserve a break. Hoping all these bizarre things stop happening to you. But thanks for sharing. I bet lots of people didn't know about what you posted....
how do you really know you have short bowel syndrome. Just because you think you are outputting a lot surely doesn't mean you have short bowel syndrome. Short bowel symptoms are more so categorized...
oh blue.. your subject line had me so worried. Thank goodness you are all ok. I know what you are saying about the ambulance people. I had a car run into me "whhle I was in a car" a few years back.....
I have a permanant ostomy. I had UC, a failed jpouch, and decided on a permanant ileostomy rather than redo a whole jpouch. I have had this fourth and final ileostomy for over 1.5years and will have...
in the interim... start some weight bearing activity. i know you are recently out of surgery... but I'm sure there are some things you can be doing. Weight bearing exercising is one of the best...
I eat salads all the time with tons of different kinds of veggies in them. I don't eat mushrooms though. Just start slowly, chew a lot. And add more vegetables each time you try a salad....
Sorry to hear that allison. I got diagnosed with full fledged osteoporosis at 41 also. Depressing isn't it. Strange at as even now at 48 some of my docs see it on my records and say.. no you must...
I do same as tom, except i use adapt ring rather than eakin. I also crust that 1/8th ring with several layers of powder/barrier wipe....
Andi, this sounds awful. Is your crohns being treated systematically, lilke with humira or cimzia? Have you seen your GI doctor about the pyroderma? Seems like a multi-faceted approach might help it...
hit that pain button girl. hang in there we are all cheering for you...
subtotal colectomy is step one of three in jpouch surgeries. I have never heard of combining steps two and three. I would ask a lot more about that. Most surgeons like to allow the jpouch to heal...
coloplast sensura 2piece click, drainable, very secure, wide opening to drain, cloth backing, no sharp corners at tail, and extra sealing velcro. never had any problems at all swimming using this...
definitely a doc may not want to prescribe immodium yet. You are just out off surgery and your body is still adjusting. HOWEVER, you CAN control output significantly with diet, even with hospital...
allsion as for peeing.. you could have some temporary nerve damage from surgery. It will alleviate itself. So just hang out and enjoy your time on the potty. yes, spasms are definitely common for...
been there done that. on more than one surgery occasion. tell your pre-op nurse when she/he tells you change and put your gown on. obviously tampons must be taken out. but sometimes they just have...
I still would suggest you go to ER on wed. don't wait. seems like you have an infection for sure. why make it worse by waiting. fever or not doesn't mean anything necessarily...
never ever took bedding. "touch wood" as you say in england (my hubby is a brit!) I have never had an accident in bed. think positive .. you will be ok. you are going on vaca.. let your mind and body...
a stool test won't show anything other than cdiff. And it doesn't take that long to get results. If cipro is helping you.. you probably had pouchitis. And very few people have antibiotic dependant...
had everything removed (jpouch excised) and backside was left open to heal. Needed to heal from inside out. Multiple EUA surgeries, drains, etc... to keep it open as it was closing from outside but...