Hi Veronydale, Anangell, Jary and 2Snowbell Reading all your stories, so reminds me of my own, pre Total colectomy! There are many success stories post colectomy, however, I would like to share some...
Hi Netvoyager I use Hollister Universal Remover Wipes (Product code 7760). There are 50 wipes in a box and once converted from my currency equals about US $11.30 per box. As we probably import from...
Thanks Ryan It seems that because it has kinked in exactly the same place 3 times, the doctor wants to try and straighten this particular section of small bowel by pulling it taut. BUT, I am...
Thanks NiceCupofTea It's nice to hear from a familiar name! I don't recognise any of the other names on the forum anymore. I guess that's what happens when you don't log on for 18 months!!! It's true...
Hi all Any advice out there? I had my ileostomy in August 2012 for repeated bowel obstructions and a rectum which just stopped working. (Total colectomy in 2005 for colonic inertia). I had to have a...
So I haven't been on line in over a year, and thought I'd quickly check in and see how everyone is doing, especially Rosemary. I am shocked to hear that she passed away in April. She was the last...
Wow Rosemary, this is fantastic news!! At least they found something, always reassuring when they actually see something wrong, makes us feel that all our concerns were validated! Here's hoping and...
Hi Rosemary I had a balloon dilatation without sedation and it was fine, not very uncomfortable at all. Unfortunately, although it did dilate it substantially, it didn't work too well as I still had...
Sorry to hear you are still battling Rosemary, but after reading all the posts on this thread, it certainly sounds as though you are at the right place with the right Dr!! Dr R sounds amazing!! I...
Hi there, My stoma also sits flush with my wafer at times. I have found that a concave wafer helps with this. The concave wafer forces the stoma to protrude above the wafer preventing leakage...
Hi Rosemary, I am so sorry to hear that you are still suffering and that after all your revisions, after everything you have been through, that you still have a non-working stoma. That is just tragic...
I play tennis 3 times per week and have done so since 8 weeks post permanent ileostomy (Sept last year). I bought different types of stealth belts and ostomy pouches which i ordered over the internet...
Firstly, Congrats on going through with the op, I am sure you will begin to love the bag as you realize what a new lease on life you have and that your quality of life will begin to improve day by...
Hi Laura I'm sorry to read about what you are going through. I think it would be better if you re-posted your story on a new thread / topic that way you will get more views and responses. My name is...
I have also had something similar for the last week, and I also think it was a partial obstruction that just takes a little time to pass, when it does it's as if the pain which is left over is...
Sorry to hear you have Fibromyalgia on top of everything else, but really glad you have such a great doctor who supports you so much. Makes the world of difference!!...
Hi, yes i did narrow it down, I had a seed and nut bar followed by a whole roll of toffees (I usually eat very healthily with lots of salads and chicken or fish so think my body went into state of...
Hi Thanks for your reply, I am feeling a little better, distention is better this morning, but then yesterday it was also better but as soon as I eat anything I blow up like a balloon - don't...
I had my loop ileostomy in Sept last year and have had no problems since. I recovered really quickly and have been extremely active, dancing and playing tennis 2 -3 times per week. I eat a fairly...
Hi Sarah So happy to hear that your op was successful. Sorry you have to make another difficult decision. I am sure when the time comes you will know what to do. I can relate, they also want to...
Hi Rosemary, I haven't logged on in quite some time and am so sorry to hear that you are still battling!!! It's really not fair for you to suffer like this. Will be holding thumbs and praying that...
WOW Sarah, this is fantastic news. I completely understand that it's a little daunting to say the least but at least you are in good hands and with a surgeon who CARES!! Finally they will get to the...
Mine is also Lilly, means transformation and rebirth (well the Lotus flower means this which is a type of waterlily). I figured that it's my chance to start my life over so thought the name was...
Hi Sarah I just logged on after 2 weeks!! So sorry to hear you are still battling. At least they know what the problem is now. When do you think you will go for revision / surgery? It seems like you,...
Hi Rosemary! Just checked in now, it's been a few weeks since I last logged on. So sorry to hear that you are still battling! I really really hope that this isn't another stenosis, and if it is that...
Yay, I can go home! Dr said to stick to 1 new soft food every 2 days to see how I tolerate it and to come back every 2 or 3 days if diarrhoea remains and I get dehydrated. In the meantime he'll...
Thanks for the feedback. Encouraging to know I'm not alone! It's just that after finally plucking up the courage to have the ileostomy after 5 years I was so looking forward to being able to eat...
Ok, so it's been just over 2 weeks since my loop Ileostomy surgery and I'm back in hospital with complications. After being sent home from hosp on day 8 and back on a liquid diet I finally progressed...
Dearest Sarah and Rosemary All the best for your upcoming appt/ surgeries. Will be thinking of you both and holding thumbs!!! Virtual hugs Lolly...
Allbetternow, thank you so much for this post (and also to those who've also posted on this thread). I had my ileo 10 days ago and although it's going well, it's too early to say whether I'm happy...
Hi there. I had my Ileostomy 10 days ago so very new to all of this! I also wasn't entirely happy with my siting pre-op. I ended up emailing photos of the marked site with me sitting, bending, lying...
Hi Sarah. So sorry to hear this. 2 months is ridiculous! But it really does sound like its more of a stenosis problem rather than a motility issue. Especially if finger test failed. Can't you have a...
Hi Rosemary I live with my hubby and two daughters aged 14 and 10. Have a very helpful mother-in-law who lives just down the Rd. She has been a star doing all the cooking and shopping while I was in...
Hi Mollie and Rosemary. Thanks for the words of encouragement and advice. The doc said it's probably due to not having eaten properly in 7 years, says bowel is hyperirritated and swollen. I'll just...
Thanks Sarah. Good luck for your appt on Fri. Holding thumbs that he can help you soon. Hang in there! Hugs, Lolly...
Sarah, you are an angel! Thanks for the support! I'm feeling bit better today, both emotionally and physically. They changed flange today as it was leaking quite badly by this morning but fortunately...
Hi Sarah. Battling a bit. Had severe cramps since last night, all day! Dr added probiotics, Buscopan co and pariet. He said my small bowel is irritable and has hyperactive bowel sounds. Either...
Well done with your thorough research. Can only assist in a positive outcome when u meet with new surgeon. Good for you!!!...
Hi Rosemary Just a suggestion with your problems with possible malnutrition at the moment, when I had to wait a month for my ileostomy surgery after my discharge from hospital after sob, I could also...
Hi everyone. Thanks so much for all your encouraging words and advice, it really helps. I had a strange night, don't think the hospital kitchen understands what a soft diet is. After explaining to...
That's hectic, sounds like when my rectum stopped working completely and I could only take in fluids. I know how hectic it is (the diet) not the stoma problem. It's 22h00 here so off to sleep now,...
Hi Rosemary Yip 17 SBO's between 2 and 3 per year which required hospital admission and over and above those I've had others I've treated at home and in GP's rooms! Enough was enough! Thanks for...
Hi, glad u found someone to travel with u!! Is yoghurt generally a problem or does it only affect some people that way? Or do u have intolerance to dairy products? Just want to know if its something...
Thanks for the tip, was wondering why my surgeon put me on a protein shake 3 times per day! It's called peptamin and is apparently already broken down into simplest form of protein specifically...
Thanks guys! I don't seem to have much of an appetite anyway so only eating small portions of soft. Dr will send me home on soft diet but I can't seem to ascertain as to when I should introduce more...
Hi everyone Just thought I'd log in from my hosp bed to update you all! Well I finally had loop ileostomy on Tuesday, day 5 today and despite few respiratory complications am recovering well. I was...
Hi Sarah. So sorry to hear you're still battling like this. I really hope you get sorted soon. If you're going to wait just ensure you take in sufficient fluids not too dehydrate. Not having solids...
Thinking of you Rosemary. Hope u find another travel buddy and that you can go and get it sorted out!! Will be holding thumbs!! Xxx...
Well i'm back home after 2 weeks in hosp (4 days in hosp, 3 days at home, back in hosp for another 8 days) with subacute bowel obstruction. Had rectal tube for 9 days which helped and did the trick....
Rosemary, I am so so sorry you are going through all this!! It's just not fair. I really hope they can help you soon. PLEASE try and remain positive that it will be fixed and that you can go ballroom...