My life was miserable with UC and I thought the ileo was a god send and it was..to the point that I closely contemplated making it permanent even though I had the option for a j pouch. In the end, I...
The two complete blockages that I've had have been from eating an orange too quickly. The problem is that you (at least me) don't typically know there's a blockage until the meal after the one that...
I had the epidural for both of my surgeries and the first one was a success but I didn't realize that until the second one was a failure. For whatever reason, everything but my incision was frozen...
Your email address is hidden Kelly and as I said, my old phone went for a swim so I don't have your contact info... [email protected]...
Hi Kelly, I just popped on for a look and saw your post. We never did get together to swap tales and I have replaced my phone but not all my contacts.....Hope all is well !! Bruce...
Beer does that to me..... /community/emoticons/blush.gif ...
Sounds like you need to make a decision Jack....if you want to maintain the results you've seen for many years, don't make that decision.....if you want positive change.....well I think you know what...
Pro...don't completely discard the idea of a pouch...I though the bag was da bomb but da pouch is even better and I had plenty of issues with the stump before resection.......
Hey NCOT, I'm confused by the statement you made; "I'm not eligible for a "take down", as I had Crohn's in the terminal ileum and no surgeon in the country will give me a j-pouch :-/ The only option...
You shall prevail and be happier and healthier very soon. Best wishes for a speedy recovery and prayers for minimal complications. Quality of life is what you need to focus on. B...
Hey NCOT you've been on a good roll for a while....it's just a rough patch. As negative as you can be at times, your wit is uplifting and typically offsets that negativity...if people on here didn't...
Best wishes to you. Like most people on here, you'll be more than relieved to rid yourself of that sick part of your being. Most negative aspects of a stoma are far outweighed by the benefit of...
Pro Now I know you're feeling good. Wanting a drink is how I guage when I'm back to par !!! I had no problems with beer at all with the stoma but now that I have the j pouch, I find it a little less...
Hey good news Pro. Congrats to you. It just keeps getting better !...
NCOT...nice to see you coming around ! Hugs...
Hi 2b, I'm totally unaware of the risks but I do believe it is a very common procedure. I had the epidurals for both of my surgeries and if I had to do it again, I would definitely opt to go without...
Sorry to hear that LM...for you and your colleague....looking forward to chatting more next week. B...
Very Classy Indeed !!!...
Congrats Pro !!!!...
You're in good hands !! I saw him last week and he told me to get out of his office and come back in a year ! I told him it looked as though he had performed a second miracle. I don't know how the...
Sorry to hear about the setback LM but remain optimistic about the reconnection. It happened for me and I thought I was the last candidate for reversal. Who is your doctor in Ottawa? Mine was Robin...
Well done B'D...
Thanks B'Dereh It's nice to hear from someone whose had similar experience. I shall prevail !!...
Yes pro the ileos seem to have a mind of their own until you get the upper hand....you can eat the same thing every day and get different results but it eventually settles down and you'll get to know...
Pro, I had a similar experience with my first surgery and it seemed the wound had to get worse before it got better. Even when it finally closed up, it wasn't finished and reopened on it's own until...
Hi All, My second surgery was originally scheduled for May 13th but was moved up to May 1st. I met with my surgeon the day before and went over things. It was clear that the intention was to...
I buy when I'm down to 10 wafers and 10 bags. I'm in Canada where we have a grand medical system yet even my supplemental insurance doesnt cover the cost of ostomy supplies. I do get a $600 annual...
I suspect through my own experience, that blockages are only due to not having thoroughly chewed one's food. Those who have never experienced a blockage may simply not be prone to them. Those who...
Hi Liz, That's both good news for you and encouraging news for myself as I'm going on May 13th for step 2. I, like you, was in bad shape before and after step 1 but am now in very good condition so...
That is encouraging news for me also bootstrap as I'm scheduled for step 2 on May 13th. Thanks for sharing and continue to get well !...
That's such great news UCwhat! Very happy for you : )...
Chew, chew and chew some more...you should be fine but I'd start with one to be safe......
This is a great post HVACCHRONIE as I was scoped yesterday again to determine the condition of the leftovers of my colectomy in May 2011. There's still bleeding and mucous but he's not precluding...
Fantastic news Allison. Good luck with the rest of your recovery !! Bruce...
I only change in the mornings and never eat or drink anything before and I pre-cut the flange and even attach a new bag. I find that the seal is so tight that it's tricky attaching the new bag to the...
Thick is better than thin !!...
Once I was fully recovered from surgery, I was astounded at the amount of energy I had that I hadnt experienced for a few years whilst ill. The absence of the diseased colon coupled with the positive...
Pro, I'm sure it's normal to be apprehensive but if you wait too long, it's highly likely that it won't be an option but rather a question of life or death. The healthier you can be at the time of...
Best Wishes PSUDOC !...
It's a difficult decision to be sure and if you haven't already done so, pop on over to the ostomy site to ask some questions there. My GI told me for years that I would eventually end up with a bag...
All the best to you Larasmom and many more !!!...
3 complete in 2 years that all required pain management....
I eat (and drink :) ) everything which is more than I ate pre surgery when I was terrified to eat/drink many things. The only issues I've had were 3 complete blockages due to eating fruit on an empty...
Pro, I remember vividly after being released, my first attempt at climbing the stairs in my house. I was badly infected and was very weak but 3 weeks in the hospital was enough. I had lost 35lbs so...
I believe that all of us that develop the symptoms were very likely predisposed to it and the triggering factors could be any number of things but what I garner from reading a lot of responses is...
Before surgery, I used to be able to get relief from the nicotine patch......
Not really but in preparation for a scope in early April, doc has had me on proctofoam which has essentially stopped the daily mucous output. Its a foam that seems to coagulate the mucous into a...
Amen to that Brother ! My bag works real slick so I don't want them meesing with my junk unless it's necessary or when the doc has a look next week, he gives me excellent feedback!! Stay tuned !...
Best of luck to you. I dont think you'll regret being free of prednisone...I always referred to it as the drug that was killing me to keep me alive.......
I wear all the same clothes I did pre ileo but as soon as I get home, it's off with the belt and into something that doesnt require one.......