I have had an ileostomy for 13 years. I had BCBS but this year we had to switch to United healthcare. I got my last order in July and only half the supplies then. They will not cover m9 drops or...
I'm having a terrible issue with diversion colitis in the remaining rectum. This has become a huge problem and I am at my wits end not knowing what to do about it. I take flagyl and steroid...
I had a total colectomy with ileostomy in 2010. This was due to colonic inertia and anismus. I have had issues the past year with rectal problems, pain, smelly leakage, and lower abdominal pain. I...
I continue to have diversion colitis. I Am back on my 4th round of flagyl with steroid suppositories. I see the doctor in January to discuss what's next. I can not be reconnected because I have...
I did read about a fecal transplant. I know my husband is healthy and I wonder if that would help. I know that seems disgusting, but I read they had had good luck with it with IC patients....
I wonder if the doctor will prescribe the short chain fatty acids enemas? I have an ileostomy with a rectal stump. I'm not sure how long it is. I struggle even getting the mucous out because of the...
It's diversion colitis. And I see the surgeon on April 6th. I haven't had any cultures or tests. The gp went off my symptoms only. I worry that he might recommend to remove the remaining rectum and...
I had a total colectomy with end ileostomy in 2010 for colonic inertia and anismus. I kept the rectum. I have to use warm water enema to get rid of mucus and it's not much mucus if any. I have had...
Mebythesea, I would not recommend hernia surgery unless it's emergent. I'm full of scar tissue and the hernias always seem to come back. I also have chronic pain. It's awful....
I started having a terrible smell from my ostomy. It just smelled AWFUL! I also noticed the output was orange. I felt run down and could barely walk from room to room. I went to the doctor and had a...
I put a little foam hand soap around the ring and it clicks right on....
Drink pickle juice and 100% Welch's grape juice. That always helps me. If this continues, go see your doctor. I had a stricture and it caused me so many issues. I could only eat low fiber, low...
I have had a good amount of liquid output. I'm hoping the popcorn either digested or will come out through the day. I forgot to say the doctor moved my ileostomy to the left side....
I had surgery for a hernia repair, small intestinal stricture removal, removal of a segment of small intestine that bled so much that I had to have several blood transfusions and iron infusions,...
Christine, hello. :) I started menopause a year ago, so not sure if that is what is causing the tachycardia. I have it sometimes during the day, but every single night. I'm 47. I am on a beta blocker...
I'm very interested to hear your story. I just had a hernia surgery with a relocated stoma due to a botched surgery from my colorectal surgeon. He also twisted my bowel 180°. I ended up traveling to...
We could exchange phone numbers if you want to. This has been a long ordeal. Living with hernias is just awful and I've never had one that didn't cause misery and blockages. This stoma is very high...
Hello. How are you? I'm doing well. I had my surgery August 9th by Dr Rosen at Cleveland clinic. I was in the hospital for 2 weeks due to some complications. The surgery went well and I had the...
I will be having surgery at the Cleveland clinic in Ohio in August by a Dr Michael Rosen out of the hernia center. I have had 5 failed hernia surgeries and I am barely hanging on now with frequent...
If it's causing you no issues then I wouldn't get it fixed. Hernias have a nasty way of reappearing. I have had 6 or so hernias in my life with 2 more now. Why does your doctor think you should get...
I have the same pain you have. But I know what mine is and it's abdominal hernias. The pain can usually be alleviated if I lay flat. Not always, but most of the time....
Christine, I can't believe you are still dealing with the dreaded rectum issues. Wow. I don't have any answers for you, but I wanted to let you know I'm thinking of you. I have more hernias and...
I have read that partial removal of the colon will not work for constipation because the inertia is throughout the colon. I would think you should shoot for an ileostomy. Yes, it might fill more than...
I use a convex wafer with my barrier sheet and have no problems. My skin is looking better....
I finally had a CT scan after much pain and agony. The CT scan showed another parastomal hernia and a spigelian hernia on the right side. Are you freaking kidding me? Why why why??? Grrrr It just...
Seashell, thank you for responding. I did go to the doctor and she said she would order a CT scan STAT when I have the pain again. She also thinks it's the intestine getting trapped. I can tell you...
And oh yeah, I have had 4 parastomal hernias. Everytime my stomach is beautiful and flat, but it doesn't last long before the next hernia comes along and messes up my landscape....
Nene, did you have a CT scan before the surgery? I am suffering off and on and they are going to do a CT scan when I have severe pain to be sure they can catch what's going on while I'm in the act....
I have another freaking hernia and it has been giving me hell. I had a good week of no pain, only to severe pain. Last night, my stomach swelled up so big I couldn't breathe or walk or bend over...
Cupcakes, thanks so much for responding in my time of need. I didn't go to the ER as the pain died down. I'm guessing that was another partial small bowel obstruction from the darned hernia. This is...
I have that to and it's a pain to bag. It's like the hole was cut crooked and some of the stoma filled it in. I wish we could post pics here....
I took the bag and wafer off and the stomach is very swollen. He's normally 29mm and is right about 41mm now. Something is definitely going on here....
I'm back to where I was before. Another dreaded hernia. I have been having stomach pain since Friday, sometimes, severe pain. The pain hurts across my abdomen, from the left side of the stomach, and...
Christina, another interesting ocean story. I had surgery in June for another parastomal hernia and I had the stoma moved to the left side. At about the 6 week mark, I started leaking serous fluid...
My surgeon said I was not a Candidate for a j pouch. He said I would continue to struggle with anismus. My small intestine is normal transit, though I do have gastroparesis. I don't know of anyone...
I had colonic inertia and anismus. Tried botox injections, 2 spincterectomies, and biofeedback therapy. Nothing helped. I had a total colectomy with end ileostomy. I still struggle to expel rectal...
Christine, i can't believe you are still suffering with this anus issues. Ugh. I know you are pissed. Are you in pain from this daily? Is there another opinion you can get? I just had my 4th...
He might have a yeast infection. I had to take diflucan pills to clear my yeasty skin up. The doctor also prescribed nystop powder for to crust with. My rash just kept getting worse when it was yeast....
I have my 4th parastomal hernia. Surgery to fix these things has a low success rate. Have you called all the manufacturers and got samples of different products? Have you tried cpnvex wafers?...
How come insurance doesn't pay for that? That's an insane price. Does the company not have a coupon?...
I also quit smoking 5&1/2 years ago. So, that has contributed to my weight gain. Getting off seroquel is a nightmare. I'm totally addicted to it. But, it helps me sleep, so that's a plus. I started...
Hi, I just started the wellbutrin and naltrexone, so I'll keep you updated. It has decreased my appetite so far. I also have an ileostomy and gastroparesis and had issues with many foods, fresh...
I have been on seroquel for years for bipolar ll. I have several health issues. I continue to gain weight and I think it's from the seroquel. I have tried numerous times to get off the seroquel to no...
Sunny, I drive a school bus and used to worry constantly about the bathroom. I worried I wouldn't make it to the bathroom and my bag would pop. Yikes Well, it happened one morning. My bag came off in...
Mebythesea, congratulations that you had a successful surgery. So, you had anus and rectum all removed?...
I use Devrom tablets and also use safe and simple odor drops in the bag. Devrom gets rid of 98% of the odor. Since I work as a bus driver and use many public bathrooms, I feel the need to keep the...
I second the oral diflucan. I had yeast around my stoma and it needed a combination of diflucan and nystop powder.....
A little trick the nurse taught me is to drop the tube of paste in a cup of hot water while you shower or whatever and it will soften up and works great. This makes it very easy to get out of the...
I can understand your pain and frustration, completely. I had my colon removed and ileostomy placed 5 years ago from colonic inertia and pelvic floor dysfunction.. I did what Sunny did before my...
There is an adhesive remover called sensi-care. It is awesome and does not burn my skin at all. They have wipes and spray. I use the spray and spray the top and slowly push the skin and let the spray...