There was a drive in the UK to install body scanners in airports, but the gov did a 180 on it and they have been removed. I went through chicagagos o'hare earlier this year and went through one of...
As I live in wantage, ox, I will travel to bucks. Where would be a good place to meet? Saturday (aside from next weekend: bday party for my 6 yr old) or weekday evenings would probably work best for...
That was one of the reasons I joined the local ia committee, there is not much going on around here.it was then only 2 guys running the local section, but they are also involved at the national...
http://www.iasupport.org/ When you join online, you then select your local group. Membership is ca £15, i think not much. It's good and the quarterly journal comes with a lot of free samples. I...
Actually at the last ATM there was an older gentleman in his 80s, ex BA engineer or RAF pilot, couldn't stop talking about the Concorde, he was doing really well. We chatted about blockages and he...
I have a permanent ileo and have Crohn's. I am also member of the ileostomy association ( Berkshire, Buckinghamshire, Oxfordshire section) and there I met a lot of members with crohn's and Ostomies....
Hodaya, I know what you mean! I was in the same boat a year ago. The skintags are from how the surgeons stitch your butt together, I think they pull one skin flap over another. I remember mine they...
Hi Simon, my surgeon wasn't Mortensen, but Mr George who works in the same department and was fantastic. I had 2 stays at the Churchill Hospital, 2 yrs ago for my temp dysfunctioning and last year...
I'm doing a lot of aerobic classes and circuits. With the increased sweating wear time is reduced to 3 days, I noticed. But never had a leak though, with me the barrier ring seem to disintegrate...
Hi ep, it's only recently this forum turned negative, but just hit the ignore button (thumbs down). I just did that and suddenly all the post are more uplifting. This isn't an easy decision for you....
Congratulations! I'm a year post surgery, going to the gym and rediscovered my love for aerobics, or whatever these classes are called nowadays. LBT and body attack are my fav. I'm still amazed...
Hi NCOT, do you have a lot of stomach noises during the night or gas? I suffered terribly from trapped gas/partial obstructions in the first 6 months and often ended up pacing my kitchen for an hour...
Mossmi33, you only joined recently this forum. Our intentions are in no way to hurt esor. Rosemary's story started over 2 years ago and people on this forum, who followed her posts for all this time,...
Well said summerstorm. Rosemary, you say you get it, but you need to show us through what you do next, that you are LISTENING to your doctors, to us. Do not self-diagnose, do not think you know best!...
I have mine for life too, got my permanent ileo 11 months ago, lived with a temp ileo a year before that. Before my surgeries, my life was hell. For over a year I was on pain meds (otherwise I wasn't...
Hello, The last 4 month I've struggled to get my usual wear time 3-4d, out of my bag. I'm down to changing everyday. It all started in jan, when things stopped sticking. I use a soft convex from...
NCOT, Sure seals are also called flange extenders. I've only tried Wellands Hydroframe a couple of times. I used pelican select convex one piece bags with either a salts slim or Eakins cohesive slim...
The sore will heal under the wafer. What you are going through is part of the learning curve...it will get better. Next time you go out, have a spare kit with you, just a small cosmetic bag with a...
Hi NCOT, I know the beginning can be quite overwhelming. Especially your are still quite weak from the procedure and the crohn's before. Just showering and even worse bag changes took all my energy...
NCOT, maybe try some ostomy underpants. I love them, they are very Bridget Jones and keep everything tucked in. I've got some from comfizz and some from vanilla blush, both are UK companies. The...
Hi NCOT, So glad it went well and you are taking your new plumbing in your stride. 2 h seemed like a fast operation, but now as you mentioned that half of your colon is still in, makes sense. I'm...
I had mine removed, didn't like the risk of cancer and didn't want more surgery. Compared to others, my anus was sewn shut. The 2 weeks after surgery were very sore. But then the swelling goes down...
All the best for your surgery. I hope it will give you all the relief you wish for and a path out of the darkness....
Excuse me, NCOT. I've known you for a while on the crohn's forum and I'm aware that comments like this one above were not always welcome there either. I don't know where you got the impression from...
Hi NCOT, Good idea to have the chat with the surgeon. I think they often give you some time to get your head around it and proceed only - if it's elective- when you are ready mentally. Don't forget...
Rosemary, I think I agree with your PCP here. Things don't get better over night. Constantly changing hospitals, surgeons and nutritionist until someone gives you the answer you want to hear,...
NCOT, when I had my surgery the surgeon removed most of my terminal ileum (ca 13 cm) too, although it was never affected by my crohn's. I think it's just a weak spot with this disease. Do you have...
The first 2 days after surgery I can't really remember much, I was pretty out. I had a epidural for 2 days and that sorted most of the pain. After that and because it wasn't placed properly, they...
I had pan colitis with rectal involvment, with a nasty fissure which wouldn't heal. My anal canal was very narrow and my gi was considering a ballon stretch. I lost a lot of blood and weight. Humira...
I had a drainage tube in hospital for 5d. It came out in the front near the left hip bone near the bikini line. I had my proctocolectomy done laproscopically for the first part, though for removal of...
Good luck! I had it done too due to a fissure. I used to be on humira until a month before, it had stopped working and I was very ill. Having a loop or temporary diversion gave me time to see if I...
Hello, I had a temp ileostomy, now permanent, due to my crohn's colitis and a persistent anal fissure. If your surgeon, just does a temp diversion, he will create a loop ileostomy, which is in itself...
Hi rosemary, soo good to hear you are doing better. Your days out sound really fantastic - just reading about all the places you've been makes me exhausted. It definitely sounds like the place to be,...
Rosemary, how are you doing? Are you still in Phoenix?...
Rosemary, I'm confused...did you have your colon removed during your last op? If you had that much mucous that you had to have it suctioned every month, you probably had diversion colitis already and...
Hi Rosemary, I hope everything goes ok today and you find some answers. This test doesn't mean you certainly end up in the er. i wouldn't get too anxious about the diarreah afterwards, just don't...
If it's itching and burning it's time to change, and I agree with you 2 days and it sounds like you may have left it too long if it's burning...have you tried convex bags and or Eakins seals? Which...
Be aware that more surgery causes more adhesions and complications down the line. What surgery did you have and what for?...
You may not see much from the egg and pancake. They are both pretty much low residue. So your stomach may have completely absorbed them....
I always had bleeding after a colonoscopy, especially when you are flaring. Keep taking your meds and take it easy for 2-3 days, if possible stay on a liquid or low residue diet afterwards....
Rosemary, do you have any ensure left? Just stay on liquids, don't risk it, like ironmum said earlier. A protein shake shoul fill you up too and quench your hunger. Just watch your milk intake for...
Hi rosemary, any news? What did the doctor say? I agree with Sarah. Switch to ensure to get some nutrients into you....
Hi, I had a panproctocolectomy in may, my surgeon could remove the colon laproscopically, but then they had to open me a bit to remove the rectum and anus, so I have a very beautiful scar from my...
Do you think you can eat anything today, maybe rice crispies? And then have a walk to move things along? I know I start to sound repetitive and it's not a magic cure for your problems, but it will be...
Hi Rosemary, did you have any luck seeing somebody? Is your stoma changing colour? So sorry that you have, could it be gas pain? Do you take any stronger pain meds, such as tramadol or morphine? They...
Sorry about the occasional odd phrasing, it's the predictive text on my iPad, which is starting to annoy me. It is even worse when I try to write something in German, when they get replaced by random...
I've heard only the best from all the Mayo clinics. I know Austrian doctors pay a lot to get training there. I'm sure you are in the best hands there. My wounds seeped a lot too, I just ensured that...
LOL! But rosemary keeps me on my toes too, had no idea what 103 was and was about to suggest going for a walk. Till a light went up in brain that it could mean F, being from continental Europe, still...
That's good news, well done. rice crispies or cornflakes is the first thing you get to eat in uk hospitals, so they are pretty save. Try to get out and about too later in the evening when it's cooler...
Hi Rosemary, How are you doing today? Did you get any rest last night?...