Thanks! I wish we did have some help. That's been a big problem. It would make things a little easier, although it would not take away the anxiety or indecision that I have right now. There are no...
Thank you Alison for those words of wisdom. I wish it was that simple Alive and Well. I am just too scared, terrified, to commit to this. My surgeon's office is already very upset with me for...
It would be an end ileostomy, but the whole colon is still being left in and attached underneath the abdomen if I opted for reversal. That lowers the risk of pouch leaks and gas or stool bypass....
It takes me too long to go to the bathroom, which I need to do too frequently, at least once every three days. On those days, it takes me about 4 hours to get ready in the mornings, but it varies and...
I'm still pondering the ileostomy for constipation, and I'm in a bit of a pickle. I have a good job offer that I can only manage if I have the surgery. They will negotiate the start date to hopefully...
Might it be a problem for someone who is hypersensitive to gas? I know there is some gas that comes out, but I did not think that it could be felt in the small intestine. I also had always been...
This thread caught my eye, and I'm just curious whether gas pain (or any abdominal bloating) is common with an ileostomy? I'm considering having an ileostomy largely to end gas discomfort. The...
Thanks Rosemary. I've probably been sure of it for several weeks at times over the years. Then I backed out. First time, the inertia had a temporary reprieve (until I got shingles). Second time, I...
It is considered major surgery from my understanding. However, anything that keeps someone in the hospital overnight is major surgery in my opinion, and the thought of the hospital stay alone is...
I have read that the loop ileostomy is also harder to pouch and poses a greater risk of skin problems. However, occasional leaks and/or skin problems seem to be inevitable by the sounds of it. I'm...
Maybe I am mistaken on the colectomy. The point is that it's bad enough being on the toilet once every 2-3 days, and it's excruciating to go more than once in a day. Colon removal would be my choice...
Yes, one time everything was retained over 5 days (obviously, I didn't go). Another time, all but 2 markers were out in 3 days, but it was one of those off times my colon was moving on its own. As I...
A colectomy is where the ileum is attached to the rectum, or some smaller length of bowel in between is removed. The two ends are put back together, so stool exits the usual place. Only a colostomy...
Thanks Liz. I would be a bit concerned that big bag could be uncomfortable for sleeping in. I do tend to drink lots of water before bed now, and I'll admit I do get up to go many nights but not...
Just to clarify, it's an end ileostomy, attaching the cut end of the unused colon to just beneath the abdomen to ease future reversal. I could probably be happy with a colostomy if I could take the...
2b Colon Free, At the moment everything is liquid because the only way I go is with a full dose of milk of magnesia. At least some fibrous things pass through in as little as 8 hours. The pelvic...
I specifically requested this be an end ileostomy so as to avoid the problem of anything bypassing the stoma and to ensure a better appliance fit. It will be reversible though as a permanent one was...
Yes, the bag emptying is a concern. I plan to order a night drainage bottle with 3/4-inch tubing to sleep in. The surgery would not be worth getting up in the night. I worry about the skin problems,...
Here I am again still unsure whether to pursue this ileostomy. As mentioned, I have a moderate degree of on-again off-again (mostly on) colon inertia with paradoxical puborectalis contraction...
I'm facing a similar dilemma. I have scheduled and canceled ileostomy surgery about one dozen times over the past three years including just this week. My primary concern has been as Karen stated,...
If I had IBD or anything that would get worse over time, this would be a lot easier. I can't really even find anything on anyone having it JUST for a diagnosis of nonrelaxing puborectalis. However, I...
I found a link (http://www.surgeryencyclopedia.com/Fi-La/Ileostomy.html) indicating that the risk for obstruction is around 15 percent and about half that for a continent ileostomy. It says 20 to 25...
I want to thank you all for your responses. It certainly goes to show how hard this is. It just seem there is no way to say even what the odds are for various complications. It would just be good to...
Thanks, Rosemary. Number 2, the unknown, is what scares me most of all. Unfortunately, my bathroom time is not fixed. I can't predict fully what days or hours I will be available, and I would have to...
I've been lurking here for a little while and have for several years now gone back and forth debating whether to get an ileostomy for a nonrelaxing puborectalis. The biofeedback and botox injections...