@mikeh24: You asked for information from those who have gone the j-pouch route. Pluto's comments are right on track. I had my j-pouch construction at the time of the colectomy. That was difficult but...
@NCOT: Yes 41 years is a long time. I was blessed with some long remissions until the last 4 years before surgery when I could not obtain remission. I was on Steroids for 4 years and just couldn't...
Hi, I am someone who had an a total colectomy with a loop ileostomy and j-pouch construction all in one surgery. Four months later I had my take down surgery. I can tell you I had become so used to...
Agreed, Living without a colon is way better than living with on that doesn't work....
I read your post and I feel your helplessness. I went for 41 years suffering from UC. I don't know why I waited so long, so in answer to your concern about fighting to hold on to some part of you...
Hi everyone, It has been a while since I have posted a question on the site. I am scheduled for my take down on July 31st. I am a little scared. I guess my concern is the unknown. What can I expect...
I think that this post is most appropriate. It is right to give credit to those unsung heros in our lives. For me it is my husband. He and I have been together for 32 years. I have been diagnosed...
OOPs... correction to my above post. I am afraid to wear lower rise pants, and then face the question, BAG under pants waistband or outside of pants with a lose blouse over top....
Hi everyone, This is a very interesting post. I am just 24 days post op, total colectomy with loop ileostomy and j pouch. I am in the waiting for take down. I have not ever tried putting on regular...
I travel for work, lot's of time in the air. I have never heard of this. My Internal Medicine doc and Gastroenterologist knew this and never cautioned me in any way. It may be a good question for the...
I had been on for the past 4 years to some degree. High dose 20 mg/day. (my doc and I came to an agreement that he would put me on 20 but we would increase if needs be) I had been weaned off a few...
Never put your meds in Checked baggage, I think someone already said this but bags can and do get lost. TSA can confiscate anything out of checked bags as well so bear that in mind. I have never had...
Lambkins: My heart goes out to you. I know your pain, literally. It is so disappointing to have these flares especially after a long remission. Please take care of yourself....
Thank you all for the feedback. I will keep you posted how my first trip goes though I expect it wont be for a while. @bluegrass & summerstorm: I hear ya, re; travel with colitis. I had to plan my...
I everyone, I promised to write a follow up to my surgery. Everyone loves to talk about their experiences so I am taking the opportunity to tell mine here, so please bear with me. I am a little naive...
Hello Lambkins, You are so right. this disease can go into remission for years. and just when you start to forget that you even have the disease, it rears it's ugly head again. My longest remission...
Hi UCwhat, It was a pleasure reading your post. I am 1 week + 1 day post op. I have an ileostomy that will be reversed to a J Pouch in a couple months. I chose this route because of the kind of work...
Thank you,all for your support. There is a lot more to my story that makes this my last option, but I won't bore you with that. I believe it is time to move forward. Your words help me tremendously...
Hello out there, I guess I am posting this because I am just looking for some support. But first a little background. I was first diagnosed with ulcerative proctitis 41 years ago. Back then the...
I guess I am the veteran of the group. I was diagnosed in 1972, 40 years. I have also been blessed with some very long remissions the longest and most recent being 9 years. I came out of that...