Things have become very serious since my last post. I went from being elated about the effect of the Stella to being diagnosed with stage 4 metastatic colon cancer several weeks later. How can I have...
This is another follow up. had my 6 month endo today, no sedation, so I can see what is going on. There was no inflammation at all today. My GI literally shouted Oh MY God it's gone. So that is great...
This is a follow up. My GI manged to get me into a free Stelera program.; I started in mid feb with an infusion and then had a shot 8 weeks later. I recently had a sigmoid and the inflammation was...
I had my colon removed due to dysplasia showing up in colonoscopy biopsies. At that time I had moderate inflammation from Chron's but no symptoms. Since my surgery there has been some inflammation at...
This is a followup to my last post. My insurance had denied stelara saying I have to fail with another drug first. My GI is suggestion Remicade. That one scares me more. anyone have experience or...
Thanks for all of your feeback. I just received my results from my scope of 10/18 and the biopsies were negative. So that is a relief for now.There is evidence of inflammation consistent with Crohn's...
Thanks for the reply. I have had biopsies done with all the scopes and so far no dysplasia. I guess I'm hoping someone can confirm the idea that the inflammation could still be the result of the...
I have posted several times before but wanted to give just a bit of the backstory with this post. In summer of 2013 I had ileo rectal anastomosis surgery done at Johns Hopkins. It was an ordeal with...
I posted here before when I was pre surgery about 2 years ago or so. In June 2013 I had sub total colectomy with IRA. This was due to repeated findings of dysplasia in the colon and a history of...
Update: I had my appointment with Dr Efron on Monday Aug 5 and I think it went pretty well. He advanced my diet to clear liquids and so far that has been good. But I’m doing very small amounts. He...
Thanks for the replies. I will definitely update after my appointment on Aug 5. In the meantime I am feeling a little stronger each day and am able to get some things done when not attached to food...
Hello, I posted back in April to seek information about the Ileo rectal anastomosis procedure. I had to have the surgery because of a long history of Crohn’s and two findings of low grade dysplasia...
Thanks for the reply. It sounds like you had UC since you are having a J pouch. I hope it goes well, in general folks seem to have better luck with the J pouches than the ileo rectal process. I have...
Hi, I’m new to this forum and glad to have found it and hope I have posted in the right palce. Here is the back story. Male 66 years old with 11 year old daughter. Diagnosed with Crohn’s in 1989, a...