Do you know what they have you on? I was on Dilaudid, Tylenol & Toradol. It helped as long as I kept them on top of it - not even a minute late :)...
Awesome!! Must admit that I'm a bit jealous of all you patients that get an epidural... Glad things went well & I'll continue to look for your updates :)...
Great job NCOT!! I have a permanent ileostomy due to Ulcerative Colitis. My last med combo was the Prednisone, Humira & Colazol. No relief - while a stoma isn't something that everyone can readily...
Good luck & prayers for a smooth & quick recovery :)...
I still have surgical pain and it will be 6 weeks yesterday. My surgery was a complete removal of my colon & rectum with an anal closure and permanent ileostomy. Different surgeries, but I can say...
OH too funny!!!! I went back to try again & noticed that I had spelled the username as chronsdisease - crazy that this along with our password was actually a valid account for a person named Linda!!...
I logged into photobucket with the above ifo & for some reason it tells me the library is empty? Anyone else have this issue?...
So nice to hear from you ActiveUCer - been worried. You've absolutely been through way too much! So nice that your Mom will be able to help you out....
UCwhat? - awesome idea! I am definitely going to shower this way from now on!!...
FINALLY!!! Prayers are with you both. Good job advocating for her & keep us posted!!...
I agree with scarytime - be a squeaky wheel. Call everyday. Call everyone you can. If the worst does happen - you want no regrets on your part. Can you take pictures of the blood in the bag, etc to...
I too have the love of my life prior to this dreadful disease and have wondered how it would be different if I hadn't. One thing I'm most thankful for is to not have become sick while in high school....
petal1752 - I think for many of us, the reasons not to change daily would be our insurance doesn't cover enough supplies for a daily change & some people's skin doesn't hold up well to daily removal...
My husband had the cankers & we used a sublingual B-12 drop that really helped him out. Everyone is different, but it's worth a try. We go the drops at Walmart actually -...
I'm not having such a good time with the whole granuloma thing. After my long day getting the two infected sutures removed and the larger granuloma burnt with silver nitrate - the big one is growing,...
Thanks for the update. I seem to be getting close to this same situation with regards to peristomal skin condition. I have a weeping rash with peeling skin & my granulomas cause trouble with a good...
Just checking in on things...one other thought - maybe you could call the company and ask if the have an ostomy nurse you could speak with? Maybe you could send the nurse pics or do a Skype with her...
Happy Birthday Lilly! You awesome trooper - keep spewing!...
I had a similar experience with an ostomy nurse. If I were you - I'd call the home nursing office & adamantly request that an ostomy nurse be brought to the home. I had to advocate to see mine as...
I did miss the reply - been a bit absent. Glad you got something! I have zero pain with my tampon - perhaps I'm lucky for once :)...
I don't eat for about 3-4 hours myself. Have you spoken with an ostomy nurse on the skin? Or even the surgeon? You may want to make an appointment....
Thanks - I think she's a looker, too :) Not sure on the granulomas. He burned one of them, but it's much bigger and more angry looking now. I sent him the document & figure if he's concerned,...
How's your bladder function? I had some trouble with my bladder - once they fixed it, I felt a lot better. BUT - I didn't have the fluid in abdomen, infected closure - etc. You've really had a rough...
I should add that I am 4.5 weeks out of surgery....
Is your tincture the right kind? The kind that does not wash off with water? It should only come off with alcohol to be the "right" kind for a wafer. I have great luck with it - I dry my skin with a...
Has anyone heard from ActiveUCer ... I've been creeping on him/her with no discovery of how to send an email. Can anyone make contact?...
Kind of been missing the forum - I've been sooooo busy sewing custom backpack orders for my store. The sales this month have been HUGE. Peg continues to create granulomas. I now have 3 - the one...
It was only 4 hours in car total - but 3 hours in the waiting room. I've learned thoug and brought a bunch of my necklace parts with so that I could fill orders as I waited! My granulomas are both...
Hhmmm.... I wonder about a Facebook page anyhow - I don't have a pouch & I like the idea of being able to post/respond on a timeline as opposed to the photobucket.... should I start one?...
DSZ - I had sex once since surgery (day after staple removal - it was not possible with the staples in as they were ripping my labia) Forgive me if this is too much detail - insertion was fine, but...
I have the anal closure & got my period the day after surgery. I used tampons in the hospital (my Mom brought me a box). Not a problem here, I actually had to change them in bed as I was not yet...
What a long day..... The surgeon removed some of my sutures that had become infected. He then burned the granulomas with silver nitrate and sent me on my way :) Hope this cures it all!...
I even found that I was able to use the pee ez while sitting - I used it for a full 3 weeks. Someone here told me about it & I'm so thankful for this board (in many ways)....
Just checking in & hope things have cleared up for you.......
Thanks for all the input. I really think this infection is more of a superficial thing as my skin's not really red (at least the 2 inches away that I can see) - fever not high (low grade) - I don't...
Also - not sure your gender (bad memory if it's been mentioned before)... One of the best tidbits of advice I had pre-op (regarding anal closure) - a special tool to pee standing up :) That urine...
Pluot is spot on with the hydration factor. I had the exact same problem pre surgery, anesthesiology had to do my IV and push the bag at top speed to get my BP stabilized. I had to do a full bowel...
My surgeon lives in Canada & drives to Buffalo everyday for work. Perhaps this is why? He could bring it with him? He is Dr. Brian Matier in Buffalo Medical Group (716)857-8880...
I think they'd do that while you are under anesthesia. Do they have you fasting prior to the procedure? Maybe you'd not have output if they do?...
Thursday I removed the appliance to show surgeon and my skin had never looked better. He was VERY behind (waited 2 hours to be seen) - had been held over in surgery that morning. Sooooo when I put a...
LinCee - that's a great idea on a local support group. I do have info on a few two hours away! One thing I'm noticing though - around here I must be one of the youngest with an ostomy. My home...
UCwhat? - Thanks so much for those great recipes! I have Himalayn salt and never thought to use that for the drinks. I also have raw honey :)...
Yikes - 4 times. I've been doing a bit better - it helps that I cannot drink soda now (gives me stomach ache) - at least it's one less thing competing for my thirst buds :) Also - I did check with my...
Thanks so much for them & to all others who sent me supplies. One other person sent some swabs as well. The surgeon did look at my sutures - he said for now he is not concerned, but if it's no better...
My first application was on Monday night. Tuesday morn - Wednesday morn I had the burn/sting around my stoma. But - Wednesday afternoon it was gone. On Thursday 3pm at my appointment with the surgeon...
I just recently tried the swabs - must say, they've worked great for me & so much easier!...
How much clearance do you give your wafer from the edge of stoma? I was told 1/8 - 1/4 inch & wonder if that may be part of the problem I am having. This last change I did more like 1/16 and even...
polishdan - I did a site query on the procedure. I removed my old appliance, used adhesive remover, took a nice shower, dried peristomal skin with towel and a hairdryer. I then applied the Benzoin...
Somedude - ahhhh the voice of humor <3 BTW - I'm female :) I did get past this with lots of Pedialyte, though!...
Pluot - I do wonder if it's just me being paranoid. It is all new. My WOCN nurse is in Buffalo - 2 hours away. I do have her phone number, but I already sent a message to my surgeon's office & will...