Coffee and walking around....
Every three days. I can go longer if I have to....
Tried it. Cause itching that wasn't there before. So I had to give up on it. Seems to work well for some....
I tried paste, rings, skin barriers. I ended up using none of them long term. I use a one piece cut to fit and nothing else. I cut it close, leaving only a small gap. I have had better luck using as...
I've made four round trips since the permanent ileo. Only once did I have to go to the 'room' for a pat down. Took about 10 minutes. I walked right through the other seven trips through the scanner....
I had three different home nurses. Two were very good. The other didn't have a clue. It was a Monday morning. After she left I had the thought that this might have been her first day on the job. And...
I've always used a one piece. Except for year ago when I tried a two piece for a week. It worked ok. But I stayed with the one piece....
I had UC and Colon cancer. All gone since the ileostomy. Life been easier since the surgery. A lot easier....
I use a hair dryer. It seems to help. I've tried different settings and the highest at 30 seconds seems to work. I use a timer. Any more and it gets too hot. Two years of a dryer and I still...
I used Cavillon for about a week and I found out that I'm allergic to it. Itching and the appliance didn't stick as well as when I used no barrier spray. That was two years ago and I have never had a...
I go 2-3-2 for the week. I could go longer between changes but that seems to work well for me. Insurance pays for 20 a month so that isn't a problem....
I've used Hollister 1 piece for about two years. Never noticed the crinkle. I've been 99% leak free so I'm happy with that....
I use small binder clips when hiking. Clip it down on the end over the Velcro. Light weight. Don't even know they are there. I use them at night. Walmart has them, a box of 12 for .89....
I didn't try bring the can of Medical Adhesive in the carry on so I put it in the checked bag. It made it through. Walmart carries it as well as other brands of medical adhesive. Any would probably...
I haven't done any camping but I've taken trips out west and did some moderate hiking. One trip was last September to the Phoenix area. Over a 100 all seven days. One day it was 108. I didn't have...
All your supplies most likely moved by semi truck across the country. They were in the trailer for days. I'm a long haul truck driver and it gets pretty hot in those trailers. And cold. It's more...
I got the burning and itching at first. Turned out it was a skin barrier I was using. The 3m cavilon wipes. I stopped using it and I haven't had a problem with itching since. 2+ years. I haven't used...
I did a lot over thinking at first. It takes a while to figure out what's normal. Even now 25 months later if something is slow to come out I notice and the concern starts. What food really does...
I use a Hollister one piece cut to fit. I go 2-3 days. I could go longer....
I also use a clear bag. I like to see what's going on in there....
Every two or three days. I used to go 4-5. I wasn't having many problems, just decided to go shorter. I like knowing what's going on under there. Just in case something gets by....
10-15 a day for me. Two years into a permanent ileo. I'm used to it. It's just the way it is....
I got rashes and itching when I used a skin barrier spray for a couple of weeks. Nothing before or after. The barriers work well for some but not for me....
I use one piece Hollisters and in two years I've had three holes. All in the same place. Just above the velcro. I don't worry about it, but I keep an eye on that spot....
I used to have to get up 2-3 times a night. But after a few months it went down to once per night. I very rarely eat anything after 6 pm. I'm coming up on two years with a permanent ileo....
I bought one of these handheld Waterpic shower heads. http://www.waterpik.com/shower-head/products/hand-held/powerspray-original-shower-massage/SM-651 It can be set to come out in a circle. Perfect...
I eat a salad almost everyday. I tend to keep it a small one and drink lots of water. I have permanent ileo....
I've been using Hollister 8531 (one piece) since February of 2012 and have had only two or three with holes before use. The hole was in the same place but each came from a different box. Overall I'm...
No clearance. I use a one piece cut to fit. No ring or paste. Having it tight doesn't cause any problems....
I use the Stomaplex belt mostly at work. I always pull out a little on the front to create a seam or channel rather then have the front up tight and flat against the stoma. It does help move...
Colon cancer and Colitis. A ileo was not discussed ahead of time. A small amount was to be taken out and I would be on my way. Woke up in the hospital room with a permanent ileo. I didn't know what...
I added a half inch. I have the one inch shield. That seems like a lot but I discovered that the depth is actually a little less when measured at home. The owner is really good about returns. If you...
I use the stomaplex guard at work. I work in semi trailers loading and unloading. I have to worry about falling boxes. Stacks of boxes falling over. Bumping into things in dark spaces. Things like...
I have always used a one piece and I change every 2-3 days. I could go longer. But my work schedule determines it for me. I'm a truck driver who is on the road 5 days a week. So it depends on where...
I've been using the stomaplex belts for over a year. It works well. I like it. I don't wear it in the house just when I go somewhere. I use it at work. The newly designed belt arrived today. I've...
You bet Anna. I'm a year and a half into a permanent ileo so I'm still learning new things as I go. Or at least try something different now and then. Then keep doing it or not. The small amount that...
I lay down for about 2 minutes. Just long enough to put pressure around the stoma with my fingers. I just started this about 6 weeks ago. It does work. I noticed the difference right away. I seemed...
Hard liquor didn't do anything as far as the ileo is concerned. It's no different then when all the plumbing was there. I don't drink much so that may have something to do with it....
I've had very small amounts leak next to the stoma. It never goes very far. I used to be concerned about it but it's never caused any skin problems. This happens nearly every time. It happened when I...
I agree with Pluot on the stoma powder. That stuff works. Just a little on any irritated areas....
I can't use barrier wipes at all. Same with any soap. I get itching if I use either. I just use water. I only used them for a few weeks a year and a half ago. I had no itching before or after. Some...
I tried the rings but it didn't work for me. They would leak after a day or so. So I go without. I only used the Hollister brand, maybe another brand would work. I use a Hollister cut to fit and I go...
It might be the seals and not Hollister. I got leaks with a Hollister and seals. I get no leaks with a Hollister and no seals. I get much better adhesion without the seals....
Try it without the Eakin seals. I had nothing but trouble with those. Try it without any seals at all. I used various seals over a 6 month period. At first it seemed to work. But then it didn't...
I have permanent ileo and I like to eat popcorn. I just crunch it up good and don't eat too much at one time. I also drink plenty of water. I've never had a problem. It does seem to take a while to...
The hospital sent me home with a few supplies and a list of medical supply businesses. The first one on the list was also the closest one to my house. So I went there. They took care of the insurance...
Went into surgery 15 months ago for removal of part of the colon due to cancer. Woke up with a permanent ileo. I was 54. No option for a j pouch. A second surgery last December due to cancer...
It takes me about 15 minutes. When I'm home that is. I'm a truck driver who is on the road Monday through Friday. So I have to change at least once, sometimes twice, during the week in the back...
I have used a one piece the entire 14 months of my ileostomy. I tried the Convected 2 piece moldable but it only lasted one day. It turned to paste. I was afraid it would leak. The Hollister I've...
Thanks blueglass. I'll give it a try....