Hi everyone, I was doing a routine pouch change and noticed a little crater on the outside of the stoma where it meets the skin. I am in no pain, having no other crohns sxs. I just had a normal scope...
So after a vigorous workout at the gym, I felt some burning under my wafer. As soon as I got home, i knew it had leaked. I changed it and noticed a fair amount of blood around the stoma on the skin...
My nurse always applied lidocaine prior to a change. That was really helpful. Also, I took my showers right before she came and that also helped with the dressing changes. It only hurt at first not...
Thinking of you! Good luck!...
I also had a wound vac after surgery. My situation was different from yours in that I did not have the gracillus repair but had the wound vac immediately after having my rectum and anus removed. I...
I have flown many times since surgery two were international and I have only been stopped once when my bag was full and thus, visible under my shirt. Usually, I just walk through with no issues. On...
Could you have injured it in some way? I once wore a pair of pants that dug into my stoma and it was sore for a day or so. The only other time my stoma hurt was during a blockage but it doesn't sound...
Which brand did you buy? I really detest spanx!...
Happy new year. I am going on a beach vacation and want to wear all my summer dresses, but I have gained some weight over the holidays. ( eating too much chocolate!) I need shapewear for my stomach...
It sounds like you want to work on your marriage, but I could be wrong. If you do want to work on things, you have to explore intimacy and sex with your husband now that he has an ostomy. I didn't...
Yes here's to no prolapse!...
So this morning I noticed that my stoma was protruding about an inch more than it usually does when I was changing my pouch. It went back to the normal length as I jumped in the shower. Could this be...
I was on imuran but then my GI switched me to 6mp due to the shortage. My metabolites got too high so she stopped all meds for two weeks and then I restarted my imuran two weeks ago. My period is...
I think what you are feeling is completely understandable. The wound healing is the most frustrating part of all of this. I was so nervous checking my wound all the time and getting all stressed out!...
My doc just popped the pouch off when she scoped me, and she saved it so I could reuse it. I brought extra supplies just in case and I used a new bag but left the wafer on until my usually scheduled...
I think my GI must have cleaned up any mess because when I woke up, my stoma was super clean. Some gas and a tiny bit of blood. I was also very anxious, but everything turned out well!...
It was pretty easy. No prep! I went in to the colonoscopy suite, got a tiny bit of sedative, went to sleep and woke up right away. My stoma was a tiny bit sore and I was a little gassy but overall a...
I was in the hospital for three days as well. My catheter was removed the day of surgery and I used a bedside commode with assistance when I had to pee. I started walking the next day. It was sore...
Yep, it definitely gets sore from time to time after sex. I have found that certain positions cause more pain due to the change in anatomy. I think you should just keep trying different positions...
Well, my Barbie butt surgery was almost one year ago! I had my surgery on the Friday before Labor Day and was discharged on Labor Day. I had a wound vac because of the extent of disease. I know this...
Yes it's weird. I don't think it's an allergy since it isn't all the way around. I guess it's nothing to worry about!...
So I noticed I have a three inch half circular strip of red skin outside my wafer. The redness is not under the wafer but around it only on one side. It only itches sporadically but it looks red. My...
Hi! Don't worry about the questions! It is natural to have them. I am not sure what surgery you are having, but I can tell you what I had done. After twenty years of crohns, I was very ill. I could...
What are you using to dress the wound? You are probably doing this but eating a lot of protein will also aid in healing....
My wound took about three months to heal and that was with a wound vac for the first month. I was very anxious about it so I saw my wocn every other week to make sure there were no problems. I think...
It's a raw deal for sure. After my first surgery, I remember looking at my husband and saying " I just wish I never had this f------ disease." But, that's the reality and it's not going to change....
On meds too. My surgeon thought I didn't need meds anymore but every Gi I consulted said meds will help prevent recurrence. Honestly, no one know for sure, but I have taken imuran and cimzia without...
It is a brutal choice. I chose to go back on meds to help maintain remission. I also sought out many opinions of experts and everyone thought my best chance of staying healthy was going on meds. I...
I think you need to annoy anyone who will listen so that you can at least have your concerns heard by the GI. If you have to pester the nurse then so be it. As we both know, It is always possible for...
I had some of the same concerns. My husband also told me he didn't care and was just happy I was feeling better and actually wanted to have sex again! In the beginning, I used lacy pouch covers to...
I have turned into a bit of a hypochondriac as well. If the slightest thing seems strange, I am struck with a myriad of thoughts... My stoma is defective, my butt wound is infected, or my crohns is...
It has been one year since since my first surgery and I feel so much healthier than before. My husband and I have one son and always thought we would have another. I am on imuran and cimzia plus I am...
With new foods, just try a small quantity and see how your body reacts. I was told low residue for the first month post op and then to gradually introduce foods like fruits, veggies, and salads. Make...
Thanks for all the replies. I don't really have pain just discomfort that comes and goes usually when I sit too long. This past week, I have trying to not sit for more than an hour at a time and that...
I had my perm ileostomy in May and my rectum and anus removed in August. For the second surgery, the nurse told me to do a full bowel prep. I was shocked and said" but I don't have a colon!" Luckily,...
so, i had my proctectomy with anal closure in august. I had a wound vac because it was so diseased, and the surgeon said it was healed in november. i still feel discomfort if i sit for a long period...
Things have been generally good for me, but I have noticed that I get intense gas pains from time to time. Sometimes it is painful and may be associated with gerd as I am usually quite burpy and...
Yes yes yes! At the end of day, my abdomen is gurgling away. Sometimes, it's gas, sometimes just noise. I think I must only notice it at the end of day before bed because it is quiet. My husband says...
I only get three four days max! I don't know how people get one week either, but I do shower twice a day and sweat a lot when I work out. I am so sorry you are down. Feeling powerless is one if the...
Check out ostomy secrets. I wear their swim wrap often and they have special underwear with pockets built in. Perhaps, your husband will find it more comfortable....
hi cookie Thanks so much! I got your post right before my appointment. They sedated me so I did not feel a thing. Everything looks great so I am so relieved. thanks again!...
Sex has been fine for me. I have more of it now that I am healthy. It should not be painful once it heals. We waited about two months after surgery and it was fine. My husband was a little reserved...
This happened to me over the summer and I contacted my gi who thought it was a stomach bug. He told me as long as I was peeing and able to keep down fluids by mouth, I could wait it out at home. It...
I have a routine scope of my stoma tomorrow. I am nervous but hopefully everything will still be in remission. My weight is good and aside from skin irritation and a possible partial blockage a few...
It happened over six months ago but I was dealing with some family drama completely unrelated to my health yesterday, and it brought it all up again. I am meditating and trying to accept only...
I don't know why this popped into my head tonight but I felt like posting it. Right before I went in for my total colectomy, a volunteer came in to ask if I needed anything. I was very anxious and...
I think you should go to cc sooner rather than later. I always put my studies above my health as I worked through college and grad school. I really wish I would have done things differently because I...
They are these curved strips that you can use under your wafer or over to seal down the edges. If my skin is sore, I do the powder skin prep routine and then stick on a piece of these strips. I...
Have you tried putting a hydro colloid barrier strip on the irritated skin to help it heal under your seal and appliance? It helps me when I have leaks....
I usually eat by seven or seven thirty, and I haven't had a problem as long as I empty before I go to bed. I wake up at six and empty again as soon as I wake up. Yes, the miserable fistulas are...