Best of luck, NCOT, I will be thinking about you :-)....
I has cataract surgery on both of my eyes at age 37. At that time, I had been on/off pred. regularly for 18 years. JaSanne, are you sure what you have are cataracts from steroid use? I was told that...
Yep, I've had staples work their way out from my stoma. The surgeon pulled a couple out about 4 and 6 months post-op. He said there are plenty more in there and if I had any other problems to let him...
Glad to hear you're on the mend, Larasmom :smile:. I had an epidural for my perm. ileostomy surgery and had a similar experience with resulting numbness in one leg. The needle actually dislodged...
Glad to hear the surgery went well, Gumby. Best of luck with your recovery :-)....
I hope your drs. can resolve your issues now rather than waiting, gumby, and that you can be moved to the GI area ASAP. I, too, have heard good things about Dr. Rubin, although I don't know him (I am...
So glad to read you're home, gumby, yay!!! I've been following along, too, and can so empathize with you - the obstruction, sleep deprivation, general anxiety re: hospitals and everything in between...
I switched from mag. oxide to chelated mag. glycinate (available online or OTC where supplements are sold) and can finally maintain at least a low-normal level without infusions - barring illness or...
Excellent post and I agree with every word. Thank you for posting this, Larasmom. While I am sorry Rosemary lost her life, I am glad she is no longer in such miserable pain. May she RIP. NCOT - I,...
How very sad. Some people were very compassionate re: Rosemary's issues, others were skeptical and all but accused her of exaggerating - medical professionals as well as online/real life friends. On...
So sorry to hear Rosemary is still struggling. My heart goes out to her and I hope she can find some resolution. Thank you for the update, Hischildvalda....
I'm so sorry to read this :-(. Thank you for letting us know, speech. RIP, Mossmi....
Sorry to hear you're still in so much pain, Hoodaya. For the first couple months after my surgery (total proctocolectomy w/permanent ileostomy), I used a portable sitz bath for the butt wound as it...
I'm a Crohnie with a perm ilesotomy. You're not as alone as you feel, NCOT :wink:....
Sorry to hear about your diagnosis. I was dx'd with osteoporosis at 37. The results of the DEXA scan I had at that time rated my bone age as that of a postmenopausal 64 yr. old woman :shocked:. 15...
Opiates are used in epidurals, they're just delivered via a different location/manner. When the nurses got me up to walk the day after surgery (proctocolectomy w/perm ileostomy), I had no feeling at...
The surgery was a breeze! :smile: Topical (in the form of eye drops) and local anesthesia was used for my surgeries as well as light sedation via IV (versed/midazolam). My surgery was scheduled for...
I had cataract surgery in both eyes when I was 37, but I had been on/off prednisone for 18 years at that time. Cataracts caused by steroid use develop differently (the lens hardens/vision becomes...
I have a permanent stoma/ileostomy due to Crohn's disease. I use Smith & Nephew brand adhesive remover wipes. They not only remove residue, they clean/sterilize the area very well - not sure if they...
I have secondary adrenal insufficiency also. After all the years on/off pred my adrenal gland was suppressed to the point of not being able to function properly on its own when the oral pred (=...
In a word, yes. It took me many months to get my stamina/energy back after both of my major abdominal surgeries. Don't forget that your body is still adjusting to the 'new', shortened digestive...
Excellent post! I don't see negativity, though - I see realism. I see situations that are difficult, challenging and so often painful and isolating....
^^ Totally agree w/you, Somedude. NCOT, I've had my share of meltdowns (my hubby could vouch for that :blush:). These are still early days for you even though your surgery was in Feb. The ups/downs...
:smilewinkgrin: I've made peace (somewhat) with my ileostomy in the almost 8 years I've had it (elective surgery). I still have days that I question my decision, but in the end I know I really did...
I'm glad to hear you'll be around Healing Well yet :smile: - I read over at the Crohn's forum as well, good old CD is what led to me down the ostomy path....
Good luck, NCOT :-). I hate to see a poster run off the board, but understand the need to take a break at times. I wish you nothing but the best....
NCOT, you feel how you feel, and that's the bottom line - but some people don't like to hear it (their problem if they want to make it so - they can scroll or ignore anytime, simple as that). This...
I'm not part of any 'group' here, other than as a regular forum member. When any member joins this site, they are required to read and agree to the forum rules and guidelines, which include the...
I don't see any anger on Rosemary's part here, none at all. I don't see the pouting, either. I've never seen a post of hers indicating she's 'storming off'. She has responded respectfully to some...
I wish her the best, too, and hope she can find a solution....
Have you tried sleeping halfway between your side/stomach, propping with a soft pillow? I graduated to side-sleeping in increments. I am able to lay on my stomach/stoma without discomfort - but my...
I admit, I don't like my stoma and never will. I find it an irritant - but much less of an irritant and much less painful than what I dealt with before - the lesser of other evils? However, I have...
I think it's normal, NCOT. I had a residual aches/pains for a number of months after my surgery, especially at night - mostly a deep abdominal ache when I tried to sleep. I was only able to sleep on...
I read this forum for years before I joined (it's not necessary to be a member to read) and have read Rosemary's story also. Going by the number of views this thread has had, I think many people...
Good luck, Rosemary, hang in there! :-)...
^^ I totally agree with all notsosicklygirl posted, especially this part: No one has walked a day in your shoes and no one knows exactly what you're going through nor can they tell you how you should...
Yep, those are the generic forms of Xalatan and Timolol. I do use the generics now, too - the brand names are just easier to spell :cool:. My pressure while using Xalatan increased to the upper...
I began taking Imuran in 1994 as a treatment for fistulizing Crohn's (in addition to the prednisone I was already on). I have had no new development of fistulas since I began taking Imuran. Since...
Welcome to the club - oh, the never-ending joys of prednisone :devil:. At least with treatment/eye drops, the drs. should be able to slow or stop its progress. Please make sure you get the regular...
Hollister makes pouches without the filters. I agree with others here that the filters are worthless for liquid output. I just 'burp' my 2 piece pouch (at the seal where the pouch attaches to the...
Nice to see you over here, NCOT. Continued good luck w/your recovery and adjustment - there are many of us here to help you along should you need it :-)....
Hi Lucky lass - it is rough and sometimes slow going until your body begins to acclimate. Your weight gain (even if it is not much at this point) is a positive indicator. Try to keep up with drinking...
Most absorption of water and electrolytes occurs in the colon. If you are only 6 months out from a colectomy, your body/remaining digestive tract may still be trying to make up for the loss and...
So good to hear from you, NCOT! OMGosh, if they had offered me paracetamol for that type of post-op pain I would have flipped my lid!! Glad they finally got it back under control. The same thing...
Thinking of you, NCOT - hoping you're well on your way to recovery....
I've been thinking about you, too, NCOT - hope all goes well and we hear from you as soon as you'e able to post!! :-)...
A rep at Hollister told me the powder is to use on any irritated (raw or broken skin, etc.) areas under the flange - to make the surface 'dry' as the appliance will not stick to something that is...
Glad to hear all went well. Good luck, NCOT :-)....
I had numerous fistulas (11 total that I can count/remember), including a few RV's, before I elected to have a proctocolectomy with ileostomy. I had them for years and, like you, was not a candidate...
Thanks, NCOT :-D Actually I was never able to get off the pred - still need to take a daily dose - not so much for active Crohn's, but to replace the cortisol (prednisone = synthetic cortisol) my...