Oh Sunny, I'm sorry you've gone thru so much pain! I remember those days before surgery, I could barely make it thru a workday...often wound up at the ER in horrible pain. Over the counter laxatives...
I am applying for SS Disability this week. Perm nerve damage in large intestine, I had a temp colostomy in late May 2013.... pain & a parastomal hernia developing by Oct! Underwent emerg surgery in...
Ok, I've written here a few times. Gotten very few responses, but just in case one out of the 400 of you that have seen my posts since Oct are curious. Figured I'd let you know my parastomal hernia...
I'm home from work with severe pain. My parastomal hernia is retracting way below the skin line, and tightening up to half its size. Its not constant....just when I move at all...that's pretty...
Just wanted to update from my 11/30/13 posting....so copied & pasted this: A stomach or duodenal ulcer was found during my GI series tests in Mid Dec. (thus, pain was NOT from colostomy) I was sent...
Just wanted to update, a stomach or duodenal ulcer was found during my GI series tests in Mid Dec. (thus, pain was not from colostomy) I was sent back to a Gastro Dr & he prescribed a generic of...
Montana2011, how are your stomach pains now? I thought mine was due to gas only. Turns out that I have an ulcer! Guess that causes radiating pain too. I'm on generic Prilosec & have gotten a lot of...
Ten days later & still having problems eating meals, especially at night. Getting used to eating lighter so I don't throw up. I had an upper GI series with small bowel follow thru scheduled for...
I had scar tissue/adhesions develop after my first intestinal surgery. Nothing showed on tests & only a general Surgeon would agree to exploratory to find cause of pain. I had scar tissue that...
Thanks for the tip, I'm going to see if my insurance will cover it so I can try it too! Have been using fungal powder, then Cavillon wipes. The area almost heals, then the rash breaks out again. Have...
I'd get in touch with the Dr right away! I thought ileostomies resulted in only liquid stool....that's what my surgeon told me. (I have a colostomy) Good luck & let us know how you're doing....
Pluot, my GP does think I may have gastroparesis. He's ordered a upper GI series with small bowel follow through. I'm picking up a new med that's supposed to help too. Hopefully that will kickstart...
Thanks for replying Accident Survivor & Pluot. I'm sorry I sounded a little deranged last night, was just a bit panic-stricken that colostomy is not working out. I finally did pass a lot of stuff...
Hi, reading your post and your so supportive of your husband, that's great! Bet that has helped him tremendously! You've made a pouch, how about considering making like a cumberbund? I found in the...
Please, any suggestions or advice welcome!! Had colostomy due to nerve damage/severe constipation in May 2013, by Aug/Sept, still had major problems with constipation, so my Dr put me on Linzees to...
I just had an appointment with the Ostomy nurse. As she says, fit is everything. You want to make sure that the seal, once pressed down, fills in the area of exposed skin around the stoma. I had...
I've put on weight since my colostomy in May. Now the stoma side is swollen & painful. Feels like I'm carrying around a bowling ball! I'm glad I read this post because I'm going to ask about the pain...
Sorry I didn't respond sooner, haven't been on the site for a while. I had surgeries trying to "avoid" having the last one-the temp colostomy. Like I said in October, had a car accident in Nov 2010,...
I wonder if you could have a fungal infection? That starts because the area around the stoma, or under your wafer is moist. I use an anti-fungal powder instead of stoma powder and it helps a lot....
Hi Accident Survivor, I had a colostomy due to a car accident Nov. 2010. My intestine problems began 2 months after my accident, and it took several months for my doctors to discover what was wrong....
Hi NCOT, I read somewhere on here that it takes up to a year to get used to the colostomy. People were mentioning "ok" days mixed with days of tears and regret. That's where I am too and it's close...
I've got to get some of that tincture! I have such sensitive skin, that 3 months since surgery...the wafer & tapes still bother me occasionally. Ugh! I'm itching like crazy on the left side, but...
NCOT, I've seen a counselor since my surgeon 1st recommended the colostomy back in August 2012. It's helped a great deal...and I don't have to burden my friends & family with every little negative...
The problem is, everything "bunches up" on me, Summerstorm! I have nerve damage, and the year before I got my temp colostomy, I couldn't feel my rectum. At first, I could "manually" get things...
Me too, I have Convatec supplies from a starter kit. my email is [email protected]. Let me know your address & I'll be happy to send you what I have. Hang in there. My insurance (I work for NYS!)...
Thanks crohnielass. I hate to rely on a laxative/med, but I was devastated that after healing, I was back to same old, same old-always constipated & intestines hurting. I really don't want any...
Update- Just a few days on the Linzees meds & I feel great! I take it in the morning, within 1 1/2 hours I am cleaned out and am pain free the rest of the day! Considering I've had constipation...
Billy, I had that too. Lots of gas and just a bit of kidney bean shaped output. Sure wasn't equal to the amount of food I was eating! Try prune juice to get things moving again, even a 1/2 cup worked...
Thanks Summerstorm and Trigirl. I'm going to try that chicken soup deal, never thought of pureeing it... what a great idea! I went to my Primary Dr, he gave me Linzees for the constipation. I'd...
I got free pairs from Hollister & Coloplast. The blade is slightly curved and much shorter than normal shears. The curved, smaller shape is great for cutting the adhesive skin barrier (flange) that...
I'm 8 weeks out and back on the low residue diet. Think I rushed into new foods too quickly & wound up going to ER last Thurs, they were looking for a partial blockage (none found, thank goodness!)...
A week later....and its getting worse. I had a V Fusion drink (has no fiber) and it slowed my output, my intestines felt full & hurt throughout. I passed that drink, but still dealing with slow...
Thanks Mike, I really appreciate your advice. I'm trying to do too much at once, helping my elderly parents, walking 2 dogs, keeping up with work & I have to remember to take it easy...and easy...
Perhaps many of you have gone thru this: I'm 6 weeks post surgery (temp colostomy) and I'm depressed and feel like I'm never going to have anything resembling a fairly normal life again! I'm trying...
Thank you, Summerstorm! I'm very shy and hate attending functions unless I can have a drink (noooo, not more than two!) I don't drink soda, so I"ll have to come up with some other mixer. Martini - no...
Windy, sorry to hear you have so much to deal with! Seems like many of us have had issue after issue hit us in little time. I agree with BD above on the 2nd opinion....Your surgeon sounds wonderfully...
I had a colostomy in late May. Had been curious how a drink would affect me, so I had 2 vodka/cranberry drinks. Cleaned me out within an hour! Oh well, I'll wait til right before the next holiday to...
The first mucus or stuff I passed was Green!! But I had eaten jello the day before surgery. The Dr & nurses have told me that passing mucus is normal...unless there's a lot of pain or I'm passing a...
Wow, I've been sick & out of shape for so long...can't imagine even trying to lift a 5 lbs weight! I have 1 or 1 1/2 weights & looking forward to do reps on my arms. My colostomy surgery was May...
Thanks for all the suggestions, I certainly will try some of them! I drank only 4 oz of prune juice, with diarreah as a result. Chocolate ice cream has worked to loosen stools, but not so...
I've always had thick, sometimes hard output because my night time meds tend to dry me out and produce a thick output that hurts when going through the stoma. I drink 2-3 liters of water daily,...
I found a site ostomyoutdoors.com, the feature article talked of clothing. This athletic woman uses My Hip T, its like the bottom half of a Tshirt & you wear it under your shirts, pull it down low to...
I just had my colostomy in May, so I'm still getting used to the bag, skin barrier & wafer. It seems that the wafer "melts" right under the skin barrier and starts to crowd the stoma. This hurts!...
Hi, I"m new to this board. Just had a temporary colostomy on May 24th. Mine was due to nerve damage from a car accident a few years ago. I've been thru several surgeries, 1st was repair torn...