Hi, Enigmawrap, hope you're well! I just opened a box of my regular pouches (natura +) and they seem to be the Sure-fit Natura instead, even though they have the same product number. I'm not sure if...
Awesome that you're healed now! Congrats. Aurum, hope the mediHoney works for you too -- you can also try endoform (see earlier) if you need another option....
I had the same question about how do you empty it, and I'm still not quite sure from the description, other than that you need some other supplies if it's not going to be a total mess. I also wonder...
Glad the new gel seems to be helping! How is it doing now?...
I had a parastomal hernia and I honestly have no idea why. It's a scary risk that can happen no matter what you do. In hindsight I can come up with a bunch of possible things I might have done, but...
I'm not sure when your surgery was, but I found that the noises quieted a lot after my system got used to having the ileo. There is a product called EZ vents that can let you just release gas. Also...
Yes, the wound that didn't heal was from removal of my anus. I was working with a nurse, and we tried a bunch of things -- wound vac, different dressings and packing methods etc. My surgeon got a...
With my first stoma, which was an end and plenty long, I had to switch to convex when I put on a few pounds a few months after surgery (after being super skinny when I was very sick and had the...
Welcome, Red. My colitis was indeterminate -- probably Crohn's, but possibly UC. I was amazed at how much better I felt w/my colon out -- even while I still was miserable from the surgery, there was...
I think moving it is kind of a last resort option -- only so much belly real estate (not clear what would happen if I needed it moved again)... but it might be helpful to know if that could help,...
So sorry. I had emergency surgery a bit over a year ago for a hernia that was causing an intense blockage. My stoma was moved to the other side -- is this an option for you? It was hard getting used...
On top of what you'd normally eat.... sorry if that wasn't clear.......
I think my surgeon said I needed 1000 calories a day for healing at first ... And of course you can't really eat that much extra hence the weight loss. You do need a lot of extra protein for healing...
Well I didn't have a huge amount of choice but I maybe could have pushed for a j pouch with indeterminate colitis, but I went for the permanent ileo partly because I just wanted one surgery -- but...
Congrats! Hope your surgery and recovery go smoothly. NCOT sorry to hear that you're still struggling so much. Hope you get some relief....
I don't blame my surgeon for the trouble I had with the wound healing. I guess I really don't know for sure but it's a hard surgery, a hard place for a wound to heal, and I was very sick. I always...
Hi Brian. No idea on your question but congrats on getting the job. I hope you like it and that it works out well for you....
I know how horrible blockages can be. How is an ibs drug supposed to help you if the problem is a hernia? It really sounds like you need a doctor at a place like Cleveland or Johns Hopkins but that...
That's a drag. Have you talked to your surgeon or had any tests to see what's going on? Does the food you eat matter? Is your output thick or thin? I would think eating or drinking things to thin...
I was on prednisone. I had to have a set of iron infusions to get ready for surgery and do a fast taper on the pred from 40 to 20 in two weeks. I had been on cimzia but I spiked a really high fever...
Fortunately my experience is not typical, but I had a lot of trouble w/the butt wound. Mine didn't heal, and I ended up needing a second surgery 9 months later to close it, and then I had a lot of...
I have a somewhat challenging stoma now, so I've been trying a lot of things, some of which have helped. One is a little paste under the seal, right near the stoma. I got a tip here that made paste...
Thick output can definitely cause leaks. I had no problems w/that w/my first stoma, but with my new one (which is short), I sometimes have leaks when I let the output get really think -- last weekend...
I've been indeterminate all along but more likely to have crohns and all disease was in my colon and rectum. I had a proctocolectomy with permanent ileostomy as my first surgery. I've had a lot of...
Sorry you're still having trouble. Such a drag. As for cutting off the tape: the brava strips sometimes bother me a little but nothing like the tape which just gets my skin bright red within a day. I...
Having your stoma too close to your belly button can be a problem. An ostomy belt could help -- it's just an inch or so wide stretchy belt that holds down the wafer. Can be very effective (I can't...
I had been on prednisone for a long time before surgery and was also on 40 mg when I saw my surgeon for the first time. She was ok with me doing it on that dose but since I'd been on it so long my gi...
OK, just did.......
Crohnie, I think that gadget is a good idea, and I'll look into getting something like that, thanks! With my old stoma, wouldn't have been necessary, but the convatec seems to need some pressure to...
I think the diagnosis just isn't always clear. I am still technically indeterminate, and I don't expect to know, at least at current levels of knowledge of these diseases. My symptoms always looked...
Hey Kelly, glad to hear that things are going so well for you! How's the butt wound doing?...
I feel your pain.... I thought I finally had a system with my new stoma, and then bam, I had two leaks in a row.... my system is very complicated, and I think I messed up some of the steps, mostly...
My "output schedule" settled down to a lot like it was before surgery. I have output in the night and in the morning, and then at about 10 am it slows and starts up again mid afternoon. More output...
Thanks!...
Sounds worth a try. I have a bunch of strip paste, and it is much easier to use than the paste in a tube. I wonder if it's just giving more convexity .... really isn't clear to me why the paste helps...
Are those different from the barrier rings? I use the paste under an adapt ring. I have some brava strip paste, but it's kind of like a long version of the ring material. Thanks....
With my old stoma, paste wasn't part of my routine, but I'm finally figuring out a fairly product-heavy routine with this new stoma that gives me 3-4 days wear time. Paste is part of the mix (tried...
Well, I guess I'm not going to think of anything you haven't thought of already, too bad. In real life, I took the prednisone. My situation was a bit different, as I had a proctocolectomy.... I had...
Hi Badaboom, so sorry. It is overwhelming, and I can totally see why you're tired and scared, but honestly, it sounds like you've been through much worse than having an ileostomy. Great that you...
I've used it near my stoma -- was a fairly mild issue, but cleared it up right away. You use it like stoma powder -- put skin prep on top. Worth a try....
Zaneluke -- what a drag. So sorry. Crazy that you have to wait for surgery all this time. I'm wondering about a nicotine patch. That is in fact a treatment for UC, and your trajectory w/smoking is...
I used to use the eakins but switched to the adapt rings from Hollister. You could give them a try. I find they leave less residue than the eakins and maybe that will help. You could also use skin...
Have you tried a convex wafer? They are more solid than the flat ones, and they stick better. They may also push the intestine out a bit and away from the skin so that you can get a better seal (I...
It's potentially exciting to me that they come in deep convex. I used to use coloplast and switched because the convexity wasn't deep enough -- leaked too much. Is the mio bag as easy to clean as the...
Adhesions are scar tissue on the inside.... so handling organs is the cause of them. You can get them from one surgery. Laproscopic surgeries reduce them... my first surgeries were lapro, and I was...
Mine takes a while to settle down in the morning, depending on what I eat. By 9 or 10 or so it usually stops until mid afternoon. It's pretty much the same rhythm I had before surgery.... but better...
As I understand it, the surgeon doesn't have full control over how the stoma heals, especially if the intestine is very inflamed at the time of surgery. My first stoma was great (in retrospect), but...
When I had my stoma moved to the other side, the wound was stapled and it stayed closed, except for a bit of drainage the first week or so. It does hurt in weird ways sometimes, and the scar is...
Agree on Pluot's wisdom. The one factor that makes this point hard is evaluating risk with each option, because the QOL outcome is not certain with either choice, and the possible complications have...
Getting IV fluids is what helps the most. You can also use an oral rehydration solution if it's not that bad (e.g. pedialyte, recover ORS or you can google it for a recipe to make your own). You...