Bania - Well I guess if you're feeling well at the moment then just keep up with your doctor, after all that's what they try, to make their patients feel well. I also hate my setons with a passion...
Thank you VeganOstomy. Good luck to you as well....
VeganOstomy - I still have my rectum, and some fistulas have closed to the point there's no more drainage. My crohns is perianal also, and I still get nightmares from the horrible pain I used to get...
VeganOstomy - My fistulas do drain, but I wouldn't say a lot. My doctors took me off all those meds, which I'm glad. I used to loath taking humira every week and imuran everyday along with those...
Bania - I think my fistulas drain similar to yours, because they seem to be healing slowly but still drain something due to my setons. As far as fibrin glue, I'd think hard about it and do lot's of...
Dashin - If it was July then just got to give it time. Life with an ostomy is not hard, but not easy either lol. I still have shitty days due to my crohns flaring up, but the good days outweigh the...
Did an ileostomy heal your perianal fistulas? If yes - how long did it take you? (I know everyone is different, just wondering.) If no - how are you feeling? I've had my loop ileostomy since...
@PoucherInTO - I might have to look into that oil of oregano, i've heard of it and also seen the bottles before, just never knew what it was really for. @Equestrian Mom - I try to take my meds with...
So ever since getting my ileostomy, I've noticed meds don't really work on me anymore. I tried percocet after surgery with no effect at all, also tried tylenol for headaches weeks after surgery and...
@Equestrian Mom - Yup my fistulas still have Setons in them, I can't wait for the day my doctor tells me they're coming off :-D...
@UCwhat? - I do tend to get more gas when I don't eat for long periods, but not too bad, the output is also becomes watery. I work on a 7:30am to 4:00pm schedule, most of the times I just eat a small...
@smd729 I think mine are healing up slowly, but have had a couple that already healed completely. The plan for my ileostomy might be temporary, but it can also be permanent because the crohns could...
@Smd729 - Im afraid of eating after 6pm because of that :( I see you had a fistula problem. Have you noticed improvement after getting the ileostomy? @ActiveUcer - If I open the bag at night I would...
@ActiveUcer - Hmm, maybe my bag was a bit loose, I did think about that, but no way I could find out if it was my mistake or the bag being too full of gas. I have been making sure it's really in...
Hi NiceCupOfTea - I use the two piece hollister bags, I tried a few 1-piece bags during my trial period, but never could get used to them. Sorry you had to go through that spill, waking up at night...
Has this happened to anyone? I feel like every few nights my bag gets sooo full of gas that it wants to pop like a balloon. The other night it came off the wafer a bit and I had a small leak, nothing...
I eat at about 4:30 and go to bed by 11. I almost always get of most of my dinner pooped in my bag by bedtime. I usually don't wake up overnight, but when I wake up at 6 almost every morning my bag...
Hmmm I remember back when I was on humira I would get extremely itchy and my skin would dry up when I never had that problem before. I haven't been itching ever since my gastroenterologist took me...
The tape ideas are awesome, I guess duct tape does work for everything hehe. Might have to try the medical tape idea if it happens again. It's not a worrisome problem I guess, but then again it has...
@Pluot, glad I could help in any possible way :-D...
@Christine1946 I did try those coloplast bags during my bag trial phase soon after surgery. The adhesive on the back of those wouldn't stick to my skin, like if my skin was alien to it lol... They...
Thank you both for the informative replies. So this morning I kind of realized why the bag had the small cut. It was next to the piece that holds the velcro tab. I was applying pressure with the ends...
Hi, I'm new to these forums. I looked around a bit for something similar to this post I'm creating and came up empty. My question is - has anyone ever poked small holes on their ileostomy bags by...