Hi scott and others, So, it is now almost 3 weeks post takedown, and I actually feel pretty good now. I have to be careful not to overdo it, as I get a weird kind of stitch feeling (like you get when...
Thanks, ladies. The wound is still seeping a little bit, but I'm trying to spend some time with it exposed to the air, to let it heal up better. I still feel the same, no fever, the lump isn't...
I was wondering if this is a thing. I had my surgery about 10 days ago and I've felt absolutely great (after the first couple days which sucked). I might be moving too fast, however, because I now...
I heard about the gum thing. My doctor actually suggested it. I don't know if there's a rocking chair around here but I'll check the patient lounge....
I had full fluids for lunch and now wonder if it was a mistake since I've been nauseous all afternoon. I do take heart from your stories though. I know this cannot last forever....
Thanks guys. I do have ridiculous expectations, but I really want to be out by New Years! I'm trying to get moving and I'm taking my pain meds, but I know they block me up too. I haven't eaten solid...
Still on clear fluids. Totally constipated. Tons of pain. I can't help thinking nothing's gonna move if there's nothing in there. Trying to keep my emotions in check but feeling really sad and...
sue, do you still feel the need for the ointment even now, what looks like some time after your surgery? I assumed it would be necessary during the adjustment period but not so much in the long term....
I will be in the same boat, with lots of bits and pieces I no longer need, after my takedown in a couple of weeks. I plan to donate them to the ostomy clinic I go to locally, since they can...
It is very disconcerting not to have any sensation where you are accustomed to having it. That happened to me after both of my surgeries as well, though some of the feeling has returned. I've gotten...
Thank you all for your kind insights. I will think about the bidet ... is it hard to acquire and install? I'm about the opposite of DIY. Balneol, calmoseptine, A&D -- I know nothing about these...
I have found out I am having surgery for Christmas... oh joy. Well, says I, it is 13 months since my colon was out, 6 months since the loop, and I am MORE than ready to get this show on the road. I...
Thanks for your responses. Yes, I do believe a lot of this can be attributed to borderline constant dehydration. I'm not sure about blockages: judging by the amount of stuff that passes pretty...
I find that the whole works just irritates my skin. I change every 3 days because I can't stand it any longer than that-- I get that super itch like you get under a cast, and I have to take the whole...
Hi all, So, I've had my loop for 5 months, and I'm currently awaiting takedown. I know I shouldn't expect to feel particularly well, and I don't, though I'm functioning at about 75% right now. I am...
I have a loop ileo and I also excrete a TON of mucous. In fact, when a geyser day coincided with a visit to my stoma nurse, she seemed surprised at the amount, said she hadn't encountered that...
It occurred to me that this forum might discourage any kind of "trade" among members, even if no money changed hands. Anyway, sorry you couldn't email me, I'll make a list and email you with what...
I have gone through numerous sizes and types of pouches since my first surgery last year. I actually have a number of bits and pieces I've been wondering what to do with. I would like to send you a...
I read your post yesterday, NCOT, and it took me a day to figure out how to respond. I almost didn't, because many of my sentiments were expressed very articulately by those who went before me. I am...
That sounds awful :sad: I also feel like I must have some kind of infection going on, but I don't think it's wound related. Luckily, I haven't been vomiting, though I have felt nauseated quite a bit...
I'm way too self conscious to have anything approaching a normal sex life right now. I've been with my guy for 10 years and he's been remarkably tolerant. I had one major accident at his place about...
I've never heard of Pelican. The Marlen is working pretty well for me now (also sticks like anything), and I'm hoping to have my takedown within a couple of months, so I'll stick with what I've got....
Thank you, Palmetto, for sharing your story. I'm facing the takedown later this fall/winter, and it's nice to hear a positive experience. I think we all dread the worst. Anyway it's a relief to know...
All the time I had the end ileo I used a 2-piece system. First Hollister and then Coloplast, when the Hollister wafer adhesive just failed to stick to my skin any longer. Since I have had my loop...
I'm in step 2 of 3 (loop ileo installed 3 months ago -- waiting for takedown) and I will echo pretty much what others have said here. I was barely functioning before my surgery -- very similar story...
Yeah, I'm pretty sure I went through at least one of those, but nobody questioned me. ...
Gee, I flew this summer and I never even thought about the pouch. I just went through the scanner and/or metal detector and didn't say boo. Never got asked about it either. Do people really get...
Mine sure is! I can quite literally say I'd be dead without her (and not just because she gave birth to me...)...
Wound vac. Sounds ew. I have my IV pole as my constant companion but aside from this output issue I'm pretty much mobile and I'd be fine at home. I shared some of Pluot's suggestions with my mom, and...
Liz, thanks so much for your response and suggestions. Goes to show you what the hospital knows-- I get milk AND juice AND soup (and coffee or tea also, until they stopped the caffeine) with each of...
Yes, I'm taking Imodium, I think 3 per day right now. They are waiting to see what happens with they before increasing it. My surgeon is off for the weekend of course. My output is currently hovering...
Hi. I had the loop ileo surgery on June 7. I'm still in hospital, waiting for the ileo output to come down to a level at which the docs feel comfortable letting me go. This is day 9 of what should...
It's been nearly 7 months since my ileo was installed, and at this point I barely notice the odour any more. If I get my pouch thoroughly saturated Ilike by going swimming) without protecting the...
My situation is pretty much exactly as you describe. Abdomen slightly rounded and "hilly," maybe a little bit hard (I don't want to palpate it too hard), just kind of sticking out a little more than...
Actually, I can "visualize" the kind of pain you mean. I remember after I had my first surgery, the incisions (though they were laparoscopic and therefore tiny) just killed, and every little...
Thank you, that is very reassuring :)...
Blah. I'm not sure if I'm overreacting. I feel like my abdomen at the stoma site is kind of bulgey. I mean, it's bulgey all the time since I had the stoma installed, but I've also gained back about...
Thank you for this thread. I'm facing the next step myself, sometime in June, and I confess I'm feeling a bit nervous about it. I feel like I'm just getting used to this part (had my colon out in...
Okay, an update. First of all, and I thought I learned this early on in my UC odyssey, the most important thing is to deal with the right health care professionals. I was more or less assigned a...
thank you :)...
Well, I just posted a long despairing rant about how awful my experience has been with the appliances, only to get a phone call this very day from the scheduling nurse at my surgeon's office,...
Oh, one other question though. I have been using the Eakin seals with the Hollister junk, but that seems to be a big part of the problem. When I get a leak, and have to change after just a short...
Thanks all, for the suggestions. After I posted that last night I found an ostomy supplier near my work that seems like it might be able to answer some more of my questions too, and fill my order...
Okay, I know this topic has probably been done to death, but I'm posting here anyway because I flipped back a few pages and haven't really seen a recent post that deals with my issue. I'm about 5...
Mine tingles a lot, especially when it's pushing out something big. If it's having a hard time it gets these kind of sharp pains that go away pretty much as soon as its work is done. I'm definitely...
I am grappling with this right now too. I'm 5 months removed from my surgery (and still have about 5-8 months to go before the reversal) and I'm having more and more problems with my ostomy. The...
Hi all, thanks for your replies. As of today, it seems things are better. My latest change is holding, the skin isn't nearly as irritated. I did the crusting technique last time I changed, and that...
Hello all. I had my surgery in November 2012, and I was given Hollister products and Eakin seals in the hospital. I've continued to use them mostly out of convenience. However, in recent weeks I've...
I am currently on my second clinical trial for a new biologic treatment. I have exhausted all other options and I feel this might be my last kick at the "medical intervention" can before I have to...
I just finished Pred after about 13 months on it, and emotionally, I feel GREAT. I HATED being on it, since I suffered nearly every physical side effect possible, and it really didn't "fix" me at...