I had a temp ileo, probably took at least 3 months for them to stop packing it... I honestly don't think it was that bad. Homecare nurse came and did it every day for a couple months, with me going...
'course Im still fighting c.Diff... should have bought shares in DEPENDS TOO! lol...
P.S. (To PolishDan too!) You wouldn't believe how many ppl I have told Friar's balsam about! :) I could buy shares now! and makes $$...
(((Larasmom))) sorry I'm just seeing this now. you were there for me when I needed you (remember Friar's balsam and all the questions I had!) and I feel I let you down. so sorry. I'm glad you like...
Ks, I think that's what my family doc is going to prescribe until I can see the infection control doc about a fecal transport. Thanks arpar and axis for the support. I'm not sure what an ileoanal...
I got home from the hospital three months ago, and this infection is still running my life. Pain, cramps, diarrhea ...all keep you housebound, scared to leave. I've been fighting colon cancer since...
*Sigh* Update; Be careful what antibiotics your doctor gives you. Yes, I was able to have my reversal and things in that regard have gone well. However, in my post above, I slightly mention having...
My reversal was April 22. Had a few problems, nausea, vomiting, was kept on clear fluids for days. Then full fluids, then I ended up with c.diff, in isolation, until May 6th, they let me come home....
Everything's been moved back a week...now it's April 22. Oh well, ten months into it, so what's seven more days. Not the end of the world, but still had my pre-op yesterday. Actually the few extra...
Thanks sue, Marianne and ks! Wow, got so much running through my head, but happy to see it go!...
Did you check www.ratemds.com? Anyone can go there and write anything good or bad about a surgeon so take the advice with a grain of salt and remember their experience is not necessarily your...
April 15th is the day. I'm happy to lose My Little Buddy, but scared at the same time. Waiting to hear from my other doctor re:warfarin, and when to stop it. Does anyone have any experience with...
I hate to play devils advocate, and I wasn't going to post, but ..if it was me, I'd rather be prepared. I had a terrible time with an epidural. My surgery was early morning, and I could tell by 6 pm...
Sorry activeUCer, I was just following what my ostomy nurses had said, and personally, I'd rather not take any drugs if at all possible, and like other posters had mentioned, sometimes a person might...
I'm reading every. Word. You. Guys. Post! Just waiting on my surgery date for my reversal....
Ziggymonster, I was still having a bit of leakage under the barrier ring, so I kept using both friars(to heal the skin irritation) and Eachin again. (to stop that little bit of leakage). Eva Lou, I...
I just want to say to anyone who is new to the ostomate world...things will change, it's all a learning curve. You'll be going along fine for awhile, then something changes and bam! You'll change...
Guess I should take "quick" out of the topic title! Lol...
History: under the wafer tape, and across the top, my skin was irritated raw, red so sore! Read about friars when I looked on here for solutions, also talked to an ostomy nurse, who had never heard...
*Sigh* I must be the only person EVER who goes through radiation, surgery chemo, have blood clots in my lungs, and in 14 months, I could count on one hand how many times I've lost my appetite or been...
Ok, is it just me? What's the problem with liquidy output? And before you use the Imodium, did you try a diet change first? For instance, when i first had my ileo, bananas would do the trick. Mine is...
Lip balm, my cell phone and charger and a sudoku book, toothbrush and paste, travel size shampoo. That's about all I needed the first time in hospital. I had my slippers there, but my feet got so...
Hugs NCOT. When I went for pre-op before my colon surgery, the ostomy nurses I met told me about a support group. Maybe you need some in-person support. I think you'd benefit from some personal TLC...
Our cancer stories are somewhat similar. My provincial health started colon cancer screening and I found I had stage three cancer with no symptoms, so it was shocking. I've been fighting this for...
You could try calling hollister and ask for samples. Or maybe your ostomy nurses know an agency in your area that can help....
I haven't experienced it, but I am glad to see you post! I had noticed your thread about the reversal a few days a go, and posted, asking how you were! Sorry for your troubles, sounds like your...
I'm sorry you're having so many issues. It's too bad, cause you probably were so happy to have the reversal, and didn't see this coming. I'm waiting on surgery myself to have my ileo reversed, and...
I'm with bluegrass on this one! You do not want to have surgery when you are having respiratory problems and I'm speaking from experience! Two years ago, in jan., I had bronchitis and pneumonia. At...
I had one in June. It's not that bad, as they remove it quickly. I had it for four days post op after I had complications keeping anything down. Glad to hear about the bm's lol. Hope the pain simmers...
Hey, thanks for all these great suggestions. I really appreciate the help. My last two changes I had only used friars and put it under the tape as well. On Friday, yesterday, we did another change...
Onlyme83? ..any news yet?...
Asheville hair, wow ..sounds complex. Sorry I can't be of much help as I have no experience with fatty acid flushes. Had a gastro__ water enema before my doc would even think about reversing my ileo....
Mine are quite loose by the time I change , every 6 or 7 days. I say if it's not broke, don't fix it. Ie, it's not leaking? You're doing better than me at just three weeks in!...
@poucher. Thanks for letting me know. Hmm not sure I want to put anything on there that's going to make it even more drier than it is now. If it was just the border it might not be so bad, but it's...
Scratch that 'Go with The Flow' comment... It was a poor choice of words!!...
Hey rascally rabbit....how's things going? Hang in there..you are so right about growing pains. I've had my ileo for about nine months and things change. Try not to let it get to you, and go with the...
Yes, by now it will all be over with. Hoping things went as well as can be expected. Maybe we will get an update from the hospital bed. Hope the anxiety didn't get too bad, but just think, to not...
These three products were mentioned to me by an ostomy nurse trying to help me troubleshoot my problems over the phone. She thought my problem might be bacterial, due to not drying my pouch enough,...
I'm going to start another thread with her suggestions...
I've thought maybe I was allergic...however all my problems are only at the top of the wafer (and down one side a little bit, but that starts at the top too). When I called the ostomy nurse, she...
If I understand what you're describing, I'd say your stoma is "putting out" lol. I sometimes feel a little ticking and I just thought it meant it was working....
Hmm if I cut the tape off, what's holding everything in place?...
Oh forgot to add... The once I touched my stoma with the Q tip with friars on it... Wowsers! That hurt!...
Yes, I've put friars on my last two bag changes, and nothing else. I gotta say tho, I'm having a bad day here. It does nothing for the skin under the tape, and that's what my problem is. That skin is...
I had colon surgery in June. Ileo is temp, and I'm waiting on a date in 1-3 months. Yes, I think mine is like yours. I wear a convex wafer, it's very small, not extended and only seems to extend when...
Dan, nope, the last two times, when using friars, I haven't used stoma powder, skin barrier or Remove adhesive remover. And yes, my skin was pretty clean when I removed it. When showering I just...
Had my first change using friars balsam. I first used friars last Saturday. Had a few problems when doing the change..stoma was working, forgot to dry the friars. So I told hubby nothing ever works...
I was post-op. Had many complications, ended up with a nasal gastro tube and didn't eat for almost four days. I was there for two weeks....
Rabbit, I too had the stoma pull away from my suturs, when I first had it back in June. Yes, they fill that gap with stoma powder, but my ostomy nurses left it open (ie in the hole with the stoma, no...