Yes I had the huge mid line incision for step one as well (Mine is from the bust all the way down to my c-section scar). The second surgery was cut on the same line but started at my belly button and...
So I don't really know any of the numbers involved with UC, JPouch, Ostomy and pregnancy but I can tell you my own experience. I was diagnosed with UC in February of 2011, was hospitalized in June...
So sorry to hear you are having a hard time. I had the same difficulties with my loop ileo, I also used a convex barrier but found that the Hollister brand did not work for me and would leak within...
I totally know what you are going through! I was pregnant and then got really sick with an extremely bad UC flare after giving birth and I had 3 surgeries (well 4 including my c-section) in less than...
Well my wound is finally healing! I went to the ER over a week ago and got some antibiotics (just to be sure we took care of any possible infection). I also started dressing the wound myself...
It wasn't packed but it was partially closed (purse string closure) so that the wound could drain. I am just worried because it looked good after surgery and had a small open spot the size of a...
I had my reversal on October 11 (2 weeks ago). The wound has only grown since then, the nurse says it isn't showing any signs of infection but to be safe I went to the hospital and got a prescription...
Hang in there!! I had my takedown on the 11th of October. I have been very surprised that I'm not in the washroom more... Going about 6-8 times a day and mostly once in the night (depending how late...
Hello! Just wondering if it is normal for me to be experiencing pains every once and awhile where my stoma was? The pain is kind of sharp and very simular to the pain I would experience when I had my...
Thanks for all the replies!! Yes I would have to say that the butt burn is still my main complaint!! I've had some episodes of urgency but that is mostly due to gas and what I've eaten. I find that...
Well as far as diet goes it's pretty much the same as after the first two surgeries. Low fibre, no nuts, seeds and skins. I also only eat well cooked veggies and little to no fruit. I also stay well...
Hello all, Just wanted to post an update that my takedown was Friday afternoon around 1:00. My bowels woke up Saturday morning around 3:30 am and I was discharged by Sunday at 3:00 pm. I think the...
Thanks so much! I actually am getting in on a cancellation and will be having take down on Friday (oct 11) !!! I'm super excited, I've been counting the days ever since I woke up from the first...
I got a call yesterday from my surgeons office and they had a cancellation... My takedown is scheduled for FRIDAY! I can't believe that it's finally in sight. To be honest when I hung up the phone I...
Wow sounds like you have been adjusting well over the past 9 weeks! Than you so much for replying. I guess I don't really have any specific questions I was just interested in hearing your experience...
Hi ladies, Hope you are both doing well! I was just looking at some posts and started to wonder how you are both doing since takedown? Hopefully you don't mind me asking, I am just awaiting a surgery...
Thanks ladies... I'm really excited for the next step of this journey, especially since I have had nothing but trouble and pain with this loop ostomy!...
Hello everyone! Just wanted to share that I went for my pouchogram today. The radiologist said that everything looked great and to see my surgeon to schedule surgery! I am beyond excited and really...
Hello all, Quick question for anyone able to answer. I had my jpouch construction 4 weeks ago and seemed to be healing really well but have noticed that I experience discomfort in my lower abdomen...
I'm no help but can't help but post... My husband and I drove to Nashville 3.5 years ago from ontario (14 hour drive!), as we were approaching they encountered the worst rain/flooding in their...
Ok great I will try it at my next change... Didn't want to suffer if I was misunderstanding what you were saying lol...
Dan, so using this will help protect my skin from the stool?? I don't actually get visible leaks, it's just that my new loop stoma is pointed downward so it is now impossible to put anything between...
Yes it is the right one, I only know this because I spilled some in my sink and had to use a chemical to remove it. (I live in Canada) So what exactly should I do when changing my ostomy to help with...
Thanks for the responses! I was just curios because initially I thought my doctor had said 6-8 weeks for take down. I went yesterday for a checkup and to get my staples out and he said he usually...
I have tried benzoin tincture but from a bottle not a swab... My skin is broken down very badly around my stoma so I find it stings A LOT!...
I am having a problem with my new loop ileo as well and have started using the same wafer as you. If you are worried about having to much convexity with a convex wafer and convex ring, have you tried...
I'm just wondering for those of you who have had the surgery in 3 parts, how long between surgery #2 to construct the jpouch and surgery #3 for take down?...
Thank you for the reply! I currently use the adapt barrier ring, powder and hollister convex wafer. I'm not sure what else to try at this point because like I said it is impossible to create a...
My loop ileo is causing me sooooo much pain! I'm at my wits end and can't even think what to do to help it! It's constantly leaking because my stoma is pointing down making it impossible to create a...
At this point it makes me really frustrated and sad that I will most likely just be "waiting for take down" to relieve the problem. I have visited or so called stoma nurse where I live and she is new...
Thanks suebear, that is what I have been using since left the hospital and it doesn't seem to make a difference :(...
Thanks so much for the replies guys! I am doing better and better with each day! I still have a lot of pressure in my lower abdomin which is a bit better than pain. However my stupid loop is just...
Hi all, sorry I haven't written sooner. Last Tuesday I had surgery 2 of 3 to construct my jpouch and change my end ileo to a loop. I'm still very sore but not to bad. The pain at first was absolutely...
Thank you all so much! In 11 hours I will be in the operating room! I'm trying to stay positive and to be honest cant wait to be put out so I can stop exhausting myself with thinking about it!! I...
So Tuesday is the day.... I go in for step 2 (jpouch construction). I am so nervous and get butterflies in my stomach whenever I think about it (which is all the time!). The hardest part will be...
I don't even have the words..... It is insulting and soooooo many other things!! This makes me sad and disgusted!...
Best of luck tomorrow!! Can't wait to read anything and everything you share here! I go for my j-pouch construction on Tuesday (aug 6). So I'm very interested in reading everything you and Alison...
Amazing!! So glad you got past the ileum and are feeling better.... Fingers crossed you get to go home!...
Good luck tomorrow! That's so exciting and I look forward to hearing any updates you have.... When you are feelingbupto it!!...
Hi everyone! Just wondering if anyone has experience severe joint pain out of nowhere? I had my colan removed in February and developed PE's while in hospital so I am on a high dose of Coumadin (9...
Hi all, Hope everyone is doing well and staying cool.... It's been so hot where I am in ontario! Just wondering if anyone can shed some light on a question I have. I have been reading a lot of posts...
Thank you guys so much! I love this forum and all the support it provides. I am the most nervous about the loop ileo... I already have nothing but trouble with my skin so to hear that the loop may be...
Yesterday I got the call that my second surgery is scheduled for August 6th! I'm happy it's so soon but really scared/nervous. Just wondering what to expect after the surgery to construct the j-pouch...
For my first surgery they tried to give me an epidural and his first try was so painful and said my bones were to close together.... His second try he mad a spinal tap and my spinal fluid shot out!...
Just saw your post now Pluot, I'll have to see if my store carries that brand. I just did a change and the skin hasn't gotten any better so I cleaned the are, and am doing the "crusting" technique...
I have started using the Eakin ring with my wafer and have had no problems with the skin right around my stoma but since starting to use these rings the skin on the outer edges under the "band-aid"...
In the past two days I have not had as much output as usual and it is a lot more liquid than I am normally used to. Just wondering if this can be normal? I have absolutely no pain anywhere .... If I...
I think based on what you all have said and what I've read on here I will go forward with surgeries and plan to go away with travel insurance, depends and Imodium lol We will be at a resort and my...
The brand I had tried before (from a sample) was coloplast and it seemed even worse for my skin! I am going to try and get ahold of the one and only ostomy nurse at our hospital (that's really my...
I totally see what you guys are saying... Something to seriously consider I guess. My only other problem with waiting is that me maternity leave runs out in November as well and if I wait to have the...