Thank you cupcake for your response! Good to know about using the same opening and glad to hear that your end stoma is working well. Best wishes for future good health!...
Hi Serenity, I'm so glad that your surgery went well and you are very pleased with the outcome!! That is the best news ever!! If I may ask, did your end ileo exit out of the same opening as your...
Hi Serenity, I'm glad you asked this question (hopefully there are some people in here who have experienced the same and can shed some wisdom). I have had my temp loop ileo since since 2013, and am...
Hello everyone, Rectal cancer changed my life. I awoke from surgery with an ileo stoma. Do I love my stoma, of course not. Do I love the daily care & maintenance of being an ostomate...certainly...
I got my temp loop ileostomy 7 months ago and it's really not that bad. True, I can't wear some of my old clothes because of the slight bump in my belly area; and I have to spend some time in the...
Hi jordysmom, I lost most of my colon to rectal cancer; I had LAR surgery and a temp ileostomy with the plan of going back in a couple months for the reversal. Well, 7 months have passed and I still...
Yes, I drank quite a few. It was not in place of eating, it was in addition to eating. My favorite is Ensure High Protein Shake (vanilla & choc). This one had the lowest count of added sugar. I would...
Hi chubbyhead, I had my surgery this past Aug. I lost a little weight prior to surgery; but my main weight loss was afterwards. I went from 115 to 93. I also got a little scared; but I can now...
LakelandMan, isn't it good when the decision is made and you know your path? Best wishes for a good surgery on Monday and a quick recovery! Today I am exactly 6 months with a temp ileo and originally...
I wear a two piece but I put on a new clean bag each day. At that time I do gently wipe down the area around the stoma. I thought that cleaning it off would help it to last longer; but from what you...
Dan, I'm not sure what you meant about your "ranting"? I read how you apply it with a q-tip, dry it properly, then attach the wafer. I used it yesterday along with a new 2 piece bag from Coloplast...
If it helps anyone; I purchased on line a 1oz bottle of Geritrex Benzoin Compound Tincture thru Amazon for $4.70 and $1.77 freight. I just got it and am excited to give it a try!!!...
I had the same thing too. I had my ileo in Aug, and I still daily have a small "poop" of mucus. Nothing to worry about....
Marlo, I had an ileostomy in August. Although I am not what I would call a "high energy" kind of gal; I would say that it took me a couple of weeks to feel like myself again....
Hi Gordon, my numb area (where descending colon & sigmoid used to be) is puffy too. And my operation was 4 months ago, so the area is probably the way it will always be from now on....
It is disconcerting; it sort of feels as though the area is swollen....
Thanks crohnielass. I guess it's good to know that my numbness is normal, but I sure wish it would go away....
Thanks for sharing Alison. I guess I just need to have patience and hope that my body can correct itself....
Hi Pluot, No, the numbness is not near any of the small incisions; but it is in the area where probably most of my internal reconstruction took place (removal & reconnection of remaining colon). The...
Hi everyone, In Aug I had my sigmoid and about 12" of my colon removed due to cancer and an ileostomy put in place. It's now been almost 4 months since surgery and I still have some numbness on my...
Hi Christine, Geez---we all have such different stories but yet in many ways they are similar. I am so glad that you took your health in your own hands and found the correct path for you. And I'm...
Hi figsk8, you said that you had a temp ileo in Sept; does that mean you no longer have the ileo?...
Hi Windy! Thank you for responding. I think for me one of the strongest reasons that I am currently leaning towards the "safer" option of staying with my ileo is because of my IBS. For the past 5...
Kelly, you made the best of a bad situation and it sounds as though you made the right decision and your stoma has served you well. The more I read from you guys who are living it, the more I am...
Simon, thank you for posting and sharing your experience. As you said it is a very personal decision and I wish you the very best with your upcoming surgery. For me, I will be seeing my surgeon this...
To rdm, penny, UCwhat & Liz ---I can't say thank you enough times for responding so quickly and with such honesty!! You all have helped me tremendously and I am sincerely grateful!!!...
To Penny, thank you so much for sharing your experience. I commend you for your bravery in choosing the reconnection. It is because of my past history (5 yrs with IBS with urgent/loose stools) that I...
To rdm - Yes, I do not have UC. My surgeon did not mention that he would be creating a pouch, but that he reconnected the remaining rectum with the remaining colon. I agree with you that I believe...
To Ucwhat and Liz. Thank you so much for responding. I am trying to research, but it seems that the more I read the more confused and scared I get. As Liz mentioned, not having a sigmoid is not a...
Hi all, Recently I came across this site and I am really appreciative of everyone sharing their experiences. I have stage one rectal cancer; this past Aug 27th I had surgery to remove upper rectum,...