In July 2010 I had a subtotal colectomy because of colonic inertia. Before that, the only way I could have a bowel movement was by taking a handful of laxatives. After many tests were done by...
California. I can no longer have foods high in fiber including fresh fruits and veggies, nuts, whole grains, as well as most cooked veggies. Potatoes are the exception so I have baked potatoes often....
July 2010 I had all but seven inches of my colon removed due to colonic inertia. It was a lifelong problem but the last year the only way I could have a bowel movement was by taking a handful of...
About the weight loss . . . I went into the hospital for surgery weighing 98 pounds. Within two weeks I weighed 92 . In time the weight came back. When he is able to eat more normally, I'm sure the...
had to have a colonoscopy? If you have, did you need to modify the prep? My gastro dr. thinks I should go through the same prep as a person with a full colon even though I only have seven inches. The...
After I had motility studies, I went directly to the surgeon of my choice and asked him to do the surgery. I'm wondering if you could benefit from the same surgery I did: a subtotal colectomy. No...
Sunny - It sounds like you are suffering much as I was before surgery. Other than the bowel incontinence. At least I didn't have that problem. I had suffered with constipation all my life. In January...
There was one lady who was 18 when she had the surgery. I think she works at Disney World. She didn't have complications and was back to work quickly. It seems everybody is different in dietary...
Welcome Panda. I had a sub total colectomy almost four years ago and am glad of it. I don't think you will have to worry about weight gain. I weighed about 105 when I had the surgery and weight 99...
It breaks my heart that we lost her. When I first came to this forum she was kind and helpful to me. I tried to keep in contact with her but hadn't heard from her for about two months. Thank you for...
I had a sub total colectomy almost four years ago and I'm very glad I did. Before surgery the only way I had a bowel movement was when I took a handful of laxatives. That would make me sick for an...
Welcome Only. For me, having the surgery changed my life for the better. But my dietary restrictions are many. Other people seem to be able to eat more types of food than I can. My list of do not eat...
It's so good to see you here Rosemary. I know that you must be weak from lack of nutrition. Like Active said, maybe a chest port/tpn would be a good option for you....
Welcome Megamama. I'm one of the members who suffered with colonic inertia. I'm sorry that I can't help with your question but I've never heard of the drug you asked about. I do want to let you know...
From Rosemary: Boston surgery stoma relocation a disaster prolapsed stoma, short gut syndrome, am on TPN 18 hours a day. I cannot get to my computer and blackberry is off and on. I cannot urinate...
Hi and welcome. It's been awhile since I posted here but I do check in now and then. I will try to make this brief. I've had colonic inertia all my life. In about January of 2010 my colon pretty much...
Eva - I was in a similar situation as you are. There were no colorectal surgeons in my area - it was a three hour drive to Los Angeles for the closest one. But there is a surgeon in my city that I am...
Two and a half years ago I had a sub total colectomy for chronic constipation. Back to normal? No. But dealing with the side effects of almost no colon is much better than only going with the aid of...
NG - In July 2010 I had a sub total colectomy for chronic and severe constipation. I'm told that I have seven inches of colon left. My surgery was a success in that I no longer suffer from...
Rosemary - It's been awhile since I was here. What has gone on with your health since the last time I caught up with you is just terrible. Like the others who have posted, I have no advice but I am...
NG - I didn't even know that they were going to do a pathology report. The surgeon didn't say what else the colon was tested for....
Linda - If I go off the white diet I have diarrhea so I usually eat conservatively. Haven't had corn, beans, fresh fruit, etc. since my surgery two years ago because of that. I do treat myself to...
Jackie - You should be able to have sweets right away. At least I was able too. If your surgery is done lap. you should be out and about in about four weeks. Like I said, I was back at work 2 1/2...
Jackie - You will need to be on a low residue diet after your surgery. Saltines, white rice, ramen noodles and such. You will probably be on a morphine drip so the pain won't be too bad while you are...
Jackie - Welcome to the forum. Several of us who have had colectomies or sub total colectomies have posted on the thread "Colonic Inertia". Please come join us. I had a sub total done...
Question for those who have had a subtotal colectomy: How much colon did your surgeon leave? I've got seven inches. The reason I ask is that I'm having trouble when I eat fruits, veggies, etc. and...
Dusti - I love your siggy. Thank you for sharing your contact information on Facebook, Hodaya. If any of you would like to contact me, my Facebook name is Valda Steiber....
Karen - Thinking of you and praying for you. I sent you an e-mail. Hopefully you will receive it when you get home from the hospital. Sending hugs your way. Rosemary - It's good to see you here! But...
Oh Karen, I'm so sorry that your surgeries haven't worked out for you. You are still having the inertia problems? Or have the surgeries caused other problems? July 3rd is almost here. Please keep us...
Janie - I remember you very well and am glad that you still visit the site here. It's wonderful that Miralax is working for you and hope that it continues to. It seems that we all have to adjust to...
It's been almost two years since I had a subtotal colectomy so I thought that I would check in on the progress of anybody else who has had the surgery for colonic inertia and to reach out to anybody...
That is great news! I had my sub total colectomy for colonic inertia almost two years ago. Although there are a different set of problems I deal with now, things are much better than before the...
Saying prayers and sending hugs Ali. Please keep us updated as you can. Val...
Thanks for the update. Like I said, if you have any questions please let me know. Having the surgery has improved my life tremendously. Val...
Please keep us posted. will you?...
Hi Montana and welcome. I haven't posted here in maybe a year but had a feeling I should visit today. So glad that I found your message. I had a subtotal colectomy in July 2010 for colonic inertia....
Hodaya - How awesome that you and Rosemary were able to spend some time together. Must have been wonderful. Thanks for sharing pics with us - you are truly lovely. Is Rosemary the one with white hair?...
It's been a long time since I visited the forum. Nancy, I've been catching up with your situation and am praying for your healing. I'm so sorry that you are having such a hard time post surgery. Last...
Boat - I asked my surgeon for a total colectomy but he insisted on leaving the two inches of colon because he said that I would need a storage area - otherwise the waste would whoosh through me. I...
Boat - Two more days!! I'm praying for you. Val...
Teddy - Last summer I had a sub total colectomy. The morning of my surgery I weighed 100 pounds, a week after surgery I weighed 92. Since then I have been unable to regain al the weight I lost and...
Welcome Beautiful. Please don't live the rest of your life in misery. The surgery can be relatively simple and recovery quick. Last summer I had a subtotal (asked for a total but my surgeon said that...
Congratulations Boat! Have you got a surgery date yet? My surgeon left 2 inches of colon as well as the rectum. That's what he calls a sub total. Because my surgeon was not a preferred provider, I...
Boat - The gastroenterologist did a colonoscopy and sitz marker study then referred me to Cedar Sinai in Los Angeles for further testing. Over a two day period they did a breath test for methane gas,...
Hi Boat. Welcome to the forum. As you have already found out, the members here are very knowledgeable and supportive. Last summer I had a sub total colectomy for colonic inertia and am still...
Hi everyone. I just want you to know that I'm keeping up (though not posting) with all of you and that I keep you in prayer. Not much new with me - I'm still very happy with surgery but cannot eat...
Snuggle - So glad that you are home. Your time in the hospital sounds awful! For the first week or so after surgery I had very few bowel movements. Perhaps because I wasn't eating much. The first or...
Ciara - Please forgive me - I wrote Miralax but I meant to write Maalox. Maalox is an over the counter med that is used for heartburn. I've never heard of it being habit forming. Honestly, I don't...
Welcome new members. As Tracy said, those of us with colonic inertia usually post in the thread "Total Colectomy Part 35". I'm 3 1/2 months post op - subtotal colectomy (only 2 inches of colon left)...
Tasha - It sounds like you are doing very well. I couldn't even have water until the third day. Keep walking - it helps! Valda...