I think the fissures are symptoms of the Crohn's itself, they are a manifestation of it, rather than diarrhea or constipation. Mine seemed to get better as the Crohn's got under control, though other...
I doubt it's the Entocort for you, at this point, because it takes hair 3-4 months to fall out after trauma to the body, whether it be by medicine, surgery, or disease. If you have been taking...
I wish I could use it, but I'm allergic to sulfasalazine. Had a horrible reaction not that many years ago....
The only time my arthritis changed really was when I had a serious infection. The pain became much worse and centered more in certain areas, such as my hips. Is this joint pain a new thing for you,...
I have arthritis in all of my joints due to Crohn's, or at least I think that's the cause. Prednisone got rid of all the pain when I took it some time back, but of course that can't be an ordinary...
It's been a long time since I've been here. Last time I was here, I was very ill and had had two surgeries, one for a bowel resection, and the other to fix the infection caused by that resection 7...
I know that Pentasa and Asacol are looked upon quite poorly by the medical community, but there are some GIs who have found their patients get better with it. I believe I am one of them. I was...
I hope that if another appeal happens, this time it will stick. I, too, had to switch to Asacol because Pentasa was no longer covered by my insurance (Medicaid). I strongly recommend going to...
My last surgery was in July '14, and I take a B12 nasal spray. I hope to know what to do to circumvent this symptom....
I actually think it suggests a side effect of the medication. A burnt sensation as in it feels like the aftereffects of one (sort of numb, taste less), or currently burning, stinging sensation?...
I've heard about dexamethasone and many other drugs giving a metallic taste, but I bet everybody describes it differently. Even if it were ketones, that doesn't automatically mean diabetes. It could...
I'm considering signing this, but I don't know if it's the best solution for what Crohn's and UC patients need. We know that Crohn's can be mild or severe, and we know that crippling flares can...
Since my last small bowel resection which left me with 75% of my small intestine left, I feel strange and fatigued at different times during the day. It seems to be after eating. Shortly after that...
It's all over the news because of the CIA's torture (or treatment?) of prisoners with something called "rectal rehydration." I had never heard of it before. A tube is inserted into the rectum and...
Perhaps you can extend the colonoscopy from 6 months out post-op to a year out. Also, I recommend that you let the physician know not to do anything drastic with your anal tag, if you still have it....
http://en.wikipedia.org/wiki/Phosphoric_acid#Food_additive Phosphoric acid is used for the main soft drinks like Coca Cola. Fifty percent of Crohn's patients have lower-than-normal bone density....
I haven't read the whole thread, but I see no logical reason for you to not be treated for your colitis. After all, you have ulcers and you have diarrhea severe enough that it is bothering you. There...
Because your colon and rectum are removed, it may be difficult to find out the true cause of the problem. It could be that only genetic testing may be able to determine the cause. If it was...
I am trying to qualify for disability, and I'm pretty certain I qualify automatically, considering I was in the hospital for 4 months out of 10 months, with two surgeries and multiple abscess...
I'm happy you got it, and even happier you got the chance to go out with your hubbie. When I was really sick, I looked forward to just being able to go to church. How long did it take before you got...
Thank you both for your replies. I spoke with the second surgeon today, and he said it occurred along a different staple line, and technically not at the anastomosis site. It's basically the same...
Some of you may remember my frequent hospital stays in the last year due to infection. I kept having abscesses, in the same location, apparently next to my reanastomosis (where two resected ends of...
Is it like a dermatofibroma?...
In the last year, I've been to the ER at least 8 times. I was admitted all but one of those times, and would probably have then, too, if I had accepted a CT scan. If you have a fever, I am...
I made an appointment to speak with someone about SSDI and SSI. The receptionist over the phone said I don't qualify for SSDI. After checking with the Social Security website, I have 16 work credits,...
I had another surgery on the Fourth of July, this time done by a different surgeon. The surgeon said my previous surgery had a problem, and this was what caused my repeat infections and abscesses....
I've had a lot of problems with a certain doctor's office. It's poorly managed. Who can I speak to above the office manager, if anyone?...
While I don't know of Imuran or Humira specifically causing mood changes, I wouldn't doubt it if somebody told me they do. And I think you should take these mood changes seriously if you are...
I had constipation for years until just recently, because I had surgery. Doctors and nurses assume Crohn's patients only have diarrhea. And I did have diarrhea in the beginning of the disease, but as...
I'm aware of all the issues mentioned; that is why I brought up the topic. I am just interested in knowing how it may affect me after taken for several months at such a low dose....
Thank you all for the well wishes. My home health nurse took a blood test a few days ago and found my blood sugar to be only 45 mg/dL, which is extremely low. She informed my PCP. They both think I...
I'm having trouble tapering off of steroids. My surgeon foolishly ordered me to to taper down to 5mg every other day, and just yesterday my blood sugar was down to only 45 mg/dL. My nurse freaked out...
I had another surgery on the Fourth of July to drain an abscess and locate any other possible issues. There was some possibility that my recurring infections were due to error during the first...
I'm sorry, I'm a woman, but I still feel I can comment on the issue. I've had chronic cystitis, possibly from a fistula, causing great pelvic pain. I get horrible pain in my, y'know, spot, and I'm...
I get really unpleasant, sudden pains there, but it doesn't last long. It comes and goes, and like with a lot of my pain, if it happens once then it'll happen at least a few more times. I don't think...
Those medications suppress the immune system, which could cause the infection to go out of control. I do not have a GI yet that has seen me outside of the hospital since February, and he is not on my...
My primary pain concerns are my pelvic pain from bladder inflammation (cystitis), abdominal pain, frequent infections, and Crohn's arthritis. I have not been recommended at rheumatologist; I imagine...
How many hours are you currently working? I'll pray for you and hope you get the right accommodations. It's hard to find an employer who will help you. I certainly never have....
I keep having to go to the hospital for abscesses after my bowel resection. I may keep getting fistulas, but the doctors don't say anything definitive. One day they want me to go on Humira, the next...
Thanks for posting here, Williams. I hope you get better. I'm sorry you lost your dad. I lost my mom ten years ago, and I still think about her often. It's so hard to lose a parent. Let people know...
Lisa, just want to let you know those issues you mentioned are due to the Republicans and Rick Scott walling off any federal help for Florida, not Obama himself. Rick Scott certainly does not hide...
Please tell me about how you're doing. How has your pain been lately? What is the severity of your Crohn's? What medicine do you take for your pain, and has it been enough? Have you had difficulty...
My Crohn's has worsened to an extreme in the last half year, and my pain management has been pretty much nonexistent outside of the hospital. I had a pain management doctor that I was seeing for five...
You deserve better than that, Scum. Why would you pick that name for yourself, anyway? You deserve a wife who will be with you forever, in sickness and in health. That isn't too much to ask for. I...
Thank you for the Ostomy forum recommendation. I checked it out, too. There is air coming out of the drain, and it was drained only for the first week, and not while I've been at home. Right now my...
I pray to God that both of you will get through this. I pray that you will stay together. My fiance and I had a very difficult time last year as I was in the hospital. The stress was too much for...
NiceCupOfTea, one merely needs to search for "anemia" and "cold intolerance" to see that yes, feeling cold is a common symptom. http://www.irondisorders.org/iron-deficiency-anemia Having low iron is...
I admit your concerns do seem a bit extreme. There, I said it. Because I myself have Crohn's disease, anemia often, and hypothyroidism. You _can_ take iron with Synthroid, you just have to take it...
If you can't walk much or eat yet, try chewing gum. A study showed that it helps the bowels move again....
Now I don't have an ostomy, but I was recommended this board. I have a JP drain in my lower abdomen, next to where my ileum was resected recently. I keep getting infections, and so far I've had this...