For many people they only tend to manifest alongside a flare. For these people they tend to show up when the rectum, if they still have it, flares up or when their pouch becomes inflamed. For the...
Depending whose figures you believe somewhere between 15% and 50% of pouch patients will suffer at least one episode of pouchitis. That means at least half of people will never suffer it. Pouchitis...
I'm willing to bet your consultant does not think it is pouchitis. In the UK it is pretty standard procedure to prescribe antibiotics before doing a scope when the symptoms indicate pouchitis. He...
@rdm - If the plan is permanent defunction then an end ileostomy is the typical choice. It typically makes for a better stoma, they are not as flat and there is usually a little extra bowel in use...
"I would never recommend an abandoned J be left in place if there is no intent to ever reconnect." In the UK leaving a dysfunctional pouch in place is the standard procedure and removal is only...
I have a perfectly working j-pouch and I can tell you vanity was absolutely not one of my reasons for choosing it. You only need to look at my haircut and fashion sense to know that. Please don't...
Silent Lucidity, given you are in the UK have you been in touch with any of the patient support groups and actually spoken to somebody? Whilst forums like this are fine there is no real substitute...
Surgery deep in the pelvis carries with it a number of risks. A proctectomy requires deep access in the pelvis as does ileo-anal pouch formation, doing this in a single surgery helps to reduce these...
With a loop ileostomy B12 will not be being absorbed as it is absorbed in the terminal ileum. However unless you have had a loop ileostomy for 2-3 years this will not be a problem. The liver stores a...
Depends on your starting point. It might be closing of the temporary stoma. It might be excision of the j-pouch. Reversal is a horrible way of describing it either way. Peter...
It is key to remember that all potential complications are just that, potential complications you may get none or all of them. By the same token do not kid yourself that life with a stoma is a bunch...
The whole issue of fertility and proctectomy (whether restorative or not) is a complicated one and depending on how people spin it it can sound much worse than it is. There have been a number of...
"feels like colitis all over again". I do wish people would not say this, it was so off putting for me when I was debating surgery. Besides the initial high frequency it is absolutely nothing like...
Rob, I am from the UK how many bm's do you have in a typical day? 3 or 4 - though it can be more if I have too much to drink or overdose on leafy veg. is there much urgency? None at all. are you...
I had a really bad cold on the day I went in for my j-pouch surgery and half expected to be sent home. A doctor came along very early to examine me and once they were happy I had no chest infection...
Do enjoy a wide variety of foods Do chew well Do add new foods one at a time Do put aside problem foods for a while Do try them further down the line Don't avoid foods just because you read somebody...
You can find a list of UK suppliers here , I suspect you will recognize a number of the names there. Peter...
[i]-What was the actual surgical experience like? (preparations, post-operation feelings...) As Suebear said [b][i]-What happens after you eat a meal? Much the same that happens for every other...
Sue, I disagree, if SocalJohn has not had a pouch formed then he will not have a loop ileostomy but an end one. If surgery is done as an emergency or that patient is very ill it is common to remove...
Here are a few links you might find useful http://www.ncbi.nlm.nih.gov/pubmed/10768713 http://cat.inist.fr/?aModele=afficheN&cpsidt=3425165 http://www.ssat.com/cgi-bin/abstracts/97ddw/ddw104.cgi In...
1. The simple answer is as soon as you feel ready, for me that was about 3 weeks after surgery 2. I made sure it was empty and taped it down so it didn't flap about when things got vigorous 3. My new...
While what Sue says can be true, it can also be true that you can also pass wind that registers on the Richter scale and could make the 9 o'clock News. Not everybody learns to distinguish between...
Darren, In the UK most public sector employers have targets for the number of disabled people (and an ileostomy classifies you as such according to the DDA) they employ. Declaring your stoma may...
Diaperman, Recovery from this surgery is a very individual thing and anything you get told is a rough guideline. When you can return to work depends on how you feel, the type of work you do and how...
In the UK patients and health care professionals tend to use the terms interchangeably which often leads to confusion. To further mix things up, bags tend to be called pouches - so when somebody says...
Liza This is not uncommon - the bowel naturally produces mucus to lubricate and ease the passage of stool. As there is a lot of manipulation of the anal canal during surgery it is not unusual to have...
3 stages is normally the norm when the initial surgery is done in an emergency. The colon is removed leaving the rectal stump intact and an ileostomy is formed (the end of the rectum may also be...
One difference between a pouch and a bag is that with a pouch the waste stays inside your body for longer, this does give more time for absorption but it's not much and pouchies do have to watch...
Eli, In the UK there is a fabulous organization called IA who can arrange for you to speak to and/or meet people who have trodden the path already, you could do worse than giving them a call or...