Just got back from holiday so going to get in touch again on Monday. See what he says....
Pluot I've just read some of your blog and lots of motivation in there. I'm happy at present with the ileostomy but long to be "back to normal" in 2016. Obviously surgeon made this temporary for a...
Plout Are you happy with yours? I can have surgery in November as surgeon wanted to wait 1 year to let bowel settle....
Thanks for all your replies, I speak to surgeon in October so see what he says then. Living with stoma ain't so bad but think the surgeon did it temporarily for a reason. Again, thanks for all advise...
Also if looking at surgery for next May... would you be considering not going on summer holidays next year and maybe look to go possibly in October 2016?...
Thanks for replies people. So I am looking at 2 more trips for surgery?? How come I have Temp Illeostomy now though? Would I have to have creation of J pouch in one surgery with temp ileostomy still...
Alright people, After some information about J Pouch Surgery. I suffered for 2 years with UC which led to emergency surgery to create temporary illeostomy with view to create J Pouch. I had sub total...
I wear shirt and tie for work. Look at Ostomart website and research the Active Hi Line belts. Works wonders for me...
I had ileostomy 20th November last year and made my cricketing comeback tonight. I bowled 2 balls and the pain was there around my scar and made me feel very uncomfortable and not wanting to risk it...
I'm on pentasa for the last remaining proctitis, works to extent but still need a poo every day. My bowel must be settling tho. Surgeon says won't do reversal for at least 1 year to give bowel plenty...
I'm 33 and a teacher and had sub total colectomy in November with view to j pouch next year. I find the Ostomy bag gave me my life back after months of pain through the UC. It's the last resort but I...
I had Illestomy back end of November 2014 aNd have a poo out of bum every morning. So weird but told its normal.... I suffer from Proctitis and on meds for that but life is good compared to my hell...
I had surgery 7 weeks ago this Thursday and apart from last remaining bit of colitis in my rectum I'm doing and feeling great. Had bad colitis for last 2 years but October - November this year almost...
Ask the nurse about the belts you can get which allows you to dress normally etc. My nurse just ordered me 2 on prescription. Look great and allow me to go swimming and when go back to work where my...
I'm 18 days out of surgery for Illeostomy and now I feel great, still a little colitis in rectum but I have my life back... No more rushing to toilet 30+ times a day!!!! I few tips... • Get up! The...
Thanks Eva Lou, appreciate the reply. Just managed my first outing for family meal and managed to scoff quite a bit scampi and chips plus ice cream. I may suffer later.. I'm gathering the Pred is...
Hi, after 2 years of dealing and struggling with UC I was admitted to hospital on 11th November and hooked up to IV. Bloods came back not responding, frequent visits (a lot less that 30) but still...
I'll have a word, think originally treating me for proctitis but biopsy will show that colitis has spread further which will result in further treatment for something a little more severe than...
I think my Consultant has took the hint of signing off all the changes to my medications over the last week or so as he wants to see me tomorrow to talk to me about my concerns and the biopsy...
Confirmed being moved to 40mg. Let's see how these improve me.......
Just awaiting news of whether im moving to 40mg. Hopefully find out soon. Im on Asacol (mesalazine) x 6 throughout the day. Must be due upturn of fortune soon!...
Looks like nurse is speaking to consultant about increasing dosage to 8 tablets per day. Find out later on.......
I got given on a scale of 1-3 when I went for camera a 2 which the doctor said is moderate. Doesn't feel like moderate!!!...
Right!! Over the last few weeks I've been on all sorts of meds to try and help with this flare. Following getting the camera they found the colitis had spread quite away round the bowel so put me on...
Oral Pred Prescribed... Awaiting collection... Here's hoping my life is on its way back!...
I've asked for the Oral Pred as symptoms not letting up while on the Predsol Enema and the Asacol and seem to be just the same as last week. Awaiting news if I'm allowed them, watch im probably not!...
Hi all, Had the Flex. sig. Yesterday and my colitis has spread further (a lot) so moved my meds to Ascol x 6 per day and steroid enema on evening until remission. Yesterday was just a roller coaster...
I'm book in for the camera tomorrow morning and meds getting changed. Looks like dropping the Salaflax Enema and getting Ascol Melazine Tablets x 6 per day... Wish me luck!...
Hi folks, Thanks for all advice last week. I'm really struggling at moment, still no appetite at all and weight loss still visible. Going to toilet for bloody diahorria poos 15+ all day and even on...
Mind you, I've just demolished an McDonalds burger, chips and coke.... First thing that tasted nice for weeks.... Just hope no after issues......
I'm in the same boat right now StarGirl. Can't eat, the food I do eat tastes disgusting. Starting on Pred. rectum Steriods tomorrow...
I've spoke to nurse who has me booked in tomorrow to see GP to get some Pred. steroid enema or tablets to take in the morning as take the Saloflax Enema at evenings. Been told that I'm basically run...
Had a bad night last night, sweating like a beast and drenched the bed... Is this normal? Stomach is still in bits of pain and generally feel like ****. Lack of appetite is visible and got no...
Been told that if no improvements after 14 days I might be getting something stronger. Symptoms have improved, 6 stools today and all every loose and quick but that's prob down to the enema. It's...
Thanks, I've been told that I have 14 days to test these enemas or its back to the camera. So far they seem to be working, will just have to order more from docs. Costing me a fortune being ill... I...
Mad Martha - how long did it take for you to stop going more than twice a day...
Few things I've noticed since starting on the enemas 2g.... My blood is clearing up slightly, some "visits" have none at all but the enema makes me want to visit lots of times in a morning and...
Took Enema the last two nights and early morning symptoms have improved and blood not as bad early morning, blood does come back during the day but early signs are I must be improving... I've started...
Dralbert, I have a boat load of protein and l-glut in cupboard from when training a few months back....
I'm in UK and just about to start the enemas tonight which is the liquid... Wish me luck...
Thanks Dralbert On the case now looking on Google...
Thanks....
Thanks Garylouisville, appreciate the support. Just need to be more savvy when it comes around next.... I'm so hungry but not sure whats best to eat or drink....
Yeah, tried them the last 3 weeks but no joy so my nurse prescribed me the enema. I was told that when in remission to come off the sups so I did, I should of really took one each week to keep on...
Thanks for that. It's really hit me this week when the last 3 have just been visible blood in stools etc but felt like I've been hit by a truck this last week or so with cramp pains, blood,...
Hi I was diagnosed with UC (Proctitis) June last year after going 6 months not knowing what was going on.... Was in a bad way, I was eventually being prescribed Pentasa suppositories 1G I went into...