Here's a video of the convatec moldable. For me, they were really great. And I think it's quite different from building up a turtleneck with a seal. See what you think... http://youtu.be/b8k3Iex-it0...
Wonderful!...
My ostomy was always quite liquid, so I didn't experience that - but apparently "pancaking" is quite common, and yes, drinking grape juice, wine, or Apple juice can help thin it so it falls to the...
Wishing you well, Sunny13! My experience with the bag and stoma is a lot like Serial Flushers. I do think the YouTube videos helped. (Now, the open stoma-site after my takedown was a slightly...
Hi Wayne, Someone else will be better able to answer your questions, but I just wanted to say it's great to hear life is good for you! :-)...
Hi! When I wrote that, I was 5 weeks into my step 2 of 3. Meaning, I had the pouch created and healing while I had a temp ileo. I think you are right that I was too in my head at that point. And...
^ great image, Tom! :-) I'm just days out of my takedown surgery and my discharge instructions were "resume normal diet". Fortunately, I've been on the UC forum, this one, and now a J-pouch one long...
Are you being sure to top the powder with a skin barrier wipe that you let dry before applying the wafer? If not, powder will prevent proper sticking. Hope that helps....
Is this your first step, or a one-step procedure? If the latter, I'd also recommend bringing a big box of soft flush able wipes and some barrier cream (ilex, Calmoseptine) so you can start protecting...
Hi! Good advice above. I also recommend a quality eye mask. They will give you ear plugs if you ask for them. Also consider downloading a "white noise" sleep sounds app and bring headphones. Maybe my...
You guys are so great. Seriously, where else would I turn but to these forums to get this info? Thank you. I did ask my surgeon today. Bless his heart, he just kinda said, "you tell me." He did say...
Thank you for replying, Keith! Yeah, that's the place that got me wondering... And the responses were all either saying that sex was difficult or were saying sorry that others are having trouble. But...
Hi all, After reading the mesh question posted earlier regarding shifting lady parts, then seeing on another forum women were saying that intercourse was difficult... I just have to ask: Can we still...
I had pain after my step two as well. Somehow I didn't realize that step two is when they go in through that way to do that part of the work. I don't know why I thought that was at step three....
Yay! And you can put a nice cloth pouch cover on it in case you're in a situation where your shirt may ride up, too. :-)...
Eva Lou... I totally relate. After my first surgery, I would ask myself, "should I buy that sweater?" And then think, "sure! I'm not paying $900 a month out of pocket for asacol anymore!" :-) Now, I...
Thanks for the follow up, Kris". Glad it went well. :-)...
Well, scratch that. I just called edgepark and they won't charge until it's shipped, which will be next year; new deductble. Phooey. :-/...
If you've met your 2014 deductible! Y'all probably know that, but I just remembered and am about to call my supplier so I thought I'd share just in case. :-)...
Your surgeon seems very interested in assuring you as well as being proud of her work. Both good things! Hope all goes well!...
Yup. The end ileo gave me a false impression of how easy this could be. My loop sent me experimenting as well. I am a big fan of moldable wafers; no cutting, no sealing, snug fit on stoma. So I...
Hope it went well and you slept with visions of sugarplums dancing in your head, rather than worries of leaks. ;-) If you're still looking for options, Did you get any "panties" from the hospital?...
I go in for my barium enema in Friday. That will be about 6 weeks since j-pouch creation. Should I take pain killers before going in? If so, what would you recommend? No one told me to bring an extra...
It's a normal concern, I'm sure all of us have had this question to one degree or another. I remember staying up all night after my first surgery watching YouTube videos - there's some tremendous...
Yay! I just wanted to report, in case it's helpful info to anyone, that I just did my first bag change since using only BCT as prep with a convex wafer. Skin was happy and when checking the back of...
I just want to give you credit for how strong you are for carrying on under all that you are enduring....
Without going into any "intimate" details, I was reminded last night of another perk of being able to pivot the pouch down the right side (albeit empty and in a pretty pouch) to get it out of the...
That would be weird. Glad it seems all is well....
Aaaaaah! So about an hour later, I feel liquid dripping down my leg! I've had liquid breach the wafer before, but never a true leak! I'm talking, I just had time to get to the bathroom before it's...
Hi Kelly! Based on your recommendation, I am trying a little BCT on the tender skin around my stoma. Then I crusted it a little, and I added Eakins seal. If it gets better, that would be great to...
Lol! No, I definitely wouldn't just burp if I were home. That smell lingers way longer than good old fashioned farts! Yesterday, I was walking on the beach with friends and no bathroom in sight while...
^good points. :-)...
Hi! A two-piece has distinct advantages... One, you can "burp" out air by simply walking to a private location and letting some gas out. Two, you can pivot the bag. So when you are up and about, it's...
Here here!...
You probably already know this, but when you take your wafer off, turn it over and look at the back. Since the stuff puffs when it gets wet, you can easily see how much liquid is moving along (even...
I was never offered a home visit, so learned everything by hours of reading things like this forum. For example, I knew immediately at I wanted a moldable flange and not a cut-to-fit like the...
Pluot, I want you to know that I read every word of your blog when I was up all nights after step one of 3-step. It helped me immensely. Thank you for taking the time to do that. Kelli, I can't...
You're not bragging... You're celebrating! Good news!...
This happy post brought happy tears to my eyes. Thank you for sharing!...
You are a beam of sunshine, Marianne! Thank you for being you. And yay for four years!...
Hi! Just thought I'd mention about the sore shoulders and neck... After my first of three-part surgery, my shoulders, clavicle, and neck were so bizarrely uncomfortable. I later learned that they...
Hi! I am on almost the same schedule as you, so I'm glad you asked. The only tip I read somewhere was a person who said that they filled him too fast. He wished they knew more about pouches and would...
Wow! Good to know about the lanolin! I've been using eucerin cream because it seemed so heavy-duty, but it's lanolin based. I actually had psoriasis 20 years ago (pre-UC), so I have been wondering...
It's wonderful that this story touched you so and that you take action. Very cool. :-)...
Hi everyone, Has anyone else gotten very dry skin after colon removal? I know we can get dehydrated easier, and I'm often thirsty, but I do pee regularly, so I'm not sure that's the issue. I've...
Hi embers glow... Just wanted to say I'm happy for you! Making decisions is tough enough, but even worse if your medical team isn't listening to you. So glad you got resolution! I also wanted to...
Hello! I've had mine for less time than you, so fwiw here's my input. I've never showered with the wafer on, but the bag off (is that what you do?). I love showering with all off. Otherwise, I shower...
Chris, I just wanted to wish you speedy and successful healing. And, isn't it great that Marianne and Liz and others who have walked this path before us share their wisdom!...
That's a great site. :-)...
As recommended by a nurse, I put a dry washcloth in the microwave for one minute, then hold it on while I relax for a bit. It's kind of a soothing ritual at the end of a bag change....