Hi Mike, thanks. I'll hopefully have an ostomy nurse look at it on friday on the latest next tuesday. Hoping it is ok....
Hi people, So I'm two weeks post and I think I made a bad movement on friday and now have a bit of blood in bag and when changed wafer and bag today we saw blood around stoma. Looks like from where...
Glad to read you are post surgery and feeling ok. Hope area heals fast....
i hear you about moving around. and now i have a nice Irish expression in time for St. Patrick's day. thanks :-)...
hi Larasmom and Superblanks, thanks for your replies. its so good to rear your replies and normalize my sensations. Larasmom, if i rest it does feel better, especially if i lie down, as it does not...
Superblanks, hope the same for you too. i understand what you say about being reminded of the ostomy and sugery/illness way too much. I connect it to when there is something bad going on in life and...
Hi nurse said site was ok. Noticed pain was later in day and maybe, maybe more before daily period of higher ostomy output ( which is pasty) that is afternoon and evening especially there is more...
Hi superblanks, Can't add knowledgeable support but sympathetic camaraderie. Awake after midnight here in the usa. Less than 10 days post colectomy. For several reasons I opted for permanent...
thank you everyone. ArPar: today the ostomy nurse will be coming and we'll see what goes under. the thing is, the pain is better at night when i lie down and its not always in the same area around...
thanks. you are always helpful :-) they do pump air in laproscopic surgery. they also used a robot. i have been walking. how much is much? keeping my fluids. i hope to start to feel better soon. i am...
hi everyone, As i posted i am 6 days post total colecomy and ileostomy. As i said, i was released from hospital after two and a half days because they thought i could do better at home. i had one...
Amanda, cant halp you with that but hope you feel better soon. k...
So yesterday i was sent back home after my monday surgery. We had two sessions with ostomy nurse in the hospital from which i dod not remember anything as i was not responding well to the antibiotics...
Thank you guys, I was sent home yesterday evening, as some places just want you out. went home with oxycodone and nausea medicine and two antibiotics hope to finish today. i have taken tylenol this...
So I had the surgery monday morning. In hospital and have pressing question about pain meds. I am on oxycodone plus something that starts with a D but it's controlled and will be discontinued for me...
Amanda, very happy to hear your news. Also post surgery but will post something cause I have a question. Congrats again. K...
wow, Amanda, i am very impressed with you. College and two part time jobs. I could see how standing would be fatiguing and being with kids both fatiguing and possibly harmful to the stoma. its good...
Hi Amanda, Thank you for the good luck wishes. Hope it goes well for both of us. After debate I decided to do permanent ileostomy and not do jpouch. My reasoning is that I have other complications...
Amanda, good luck to you. Cant help you with info because i havent had any surgery yet. I am having surgery the same day. hope this brings a great outcome to us both. K...
hi, thanks for answers i was out of it, due to IBD going crazy in general and on other body parts. Surgery monday. am now making i have all prep stuff as CR secretary did not place an order in...
Hi, I have surgery in week and a half and I was given a demonstration of the appliances. I took some of the Eakins cohesive and put it in my skin for about half an hour then went to shower and took...
Thanks. You too and hope all goes well wit dentist tomorrow :-)...
thanks Larasmom. So i have been am swishing with salt water (:-)), non-alcohol mouth wash and a mix of benadril and maalox which the dentist recommeded. I figure at least one of those will help. I...
sunny 13, i've been reading your posts and glad to hear you are ok after the triple surgery. keep on resting and recovering. Hope you can eat something solid and tasty soon, take care....
thanks guys, So this morning at 7:30 i got a call from dentist to be there at 8:45. At 8 i called the CR surgeon's office letting them know i have to go to dentist and if there is any antibiotic the...
thanks stripey, gosh, can you believe i have always been diligent about dental work, brushing, everything. i am between my bi yearly cleaning appointments. i dont know if its only cavity, or root...
thanks. my dentist is not sure why my surgeon said no. but he wants me to talk to him first. i dont think i can hold a month with this pain which has increased in the last 48 hours. As i said, my...
So, as i said never a dull moment. my surgery is in mid February. So now i am having tooth ache and this is after 4-5 years after NOT having ANY teeth problems, despite prednisone twice in this...
hi Larasmom, your Lara does sound like a smart and perceptive young lady :-) i like your idea about letting her name Lily, i bet it made her feel involved and it is interesting how she wanted to keep...
thanks guys, some great ideas was brought in here. i never thought about dolls. will see if i can find the Shadow dolls from hollister. so right now i am in the waiting game... hope to get a more...
hi Christine. interesting... my surgeon was also trained at CC, the Florida branch. Actually, i did change my GI last may because the one i had in the few years before that was incompetent and did...
Chtistine, please update about your meeting with surgeon. I got an appointment on Friday. Not feeling so well about it... wondering what would be the incentive to leave the rectal stump. I need to...
Eva Lou, i guess I'm both asking and looking for feedback. You gave me excellent questions to ask. My GI said it has to do with what the surgeon is more comfortable doing. but there really is the...
Hi guys, So surgery has been postponed to mid February due to surgeon wanting more than 8 weeks after last simponi shot. This was a bit of a shock because I was prepared emotionally. However, just...
Hi serial flusher, Congratulations on the surgery going well. And for sleeping through the night. I am about a month behind because my surgeon postponed it to mid February. Happy for you and thank...
Serial flusher, I was bumped back to February due to a medication and I guess Secretary error. So i am behind you. Good luck this week. Looking to hear from you....
Bania, well, it is obvious to me :-) having lived with an engineer for the last 22 years. what's that about psychologists marrying engineers? anyway, i'm going to post it but my surgery was postponed...
so sorry to hear how you are doing emotionally? is there someone you can talk to? i assume you are being treated by physicians like GI or hematologists, why dont you and your parents talk to the...
hi guys, Keith, it will be step one and i will see how i do there. Since it in past some GIs said Crohn i dont want to risk it. we'll send the slides to someone good, although i am sure where i am...
Now this is a bit of a travesty. Does the UOAA work to make supply issues better?...
Thank you Keith, Michael, Buckeyechronie, NCOT, trigirl and serialflusher, I don't remember who wrote in the forum sometime ago about the illusion of choice that we have in undergoing this surgery......
Thank you guys, This is along the lines of what i thought. Will talk about the hopital part of getting better. They will not be coming to the hospital but we have Skype. We'll tell the oldest (8) a...
Sfc: I second that!...
Hi, going to surgery. It was supposed to be next month but today they called to see if it can be next week. So... I was wondering how people here who have kids in elementary school told the kids...
Thanks everyone who answered. Michael, I guess you r right about the anecdotal evidenice part vs. Ststistics. Also, if forums are places where you hear about mostly the bad stuff it is good when you...
Keith, thanks again. I had 13 colonoscopies in almost 14 years. Numbers 3 and 6 saw granuloma. However, my GIs (ibd specialists from a renowned clinic ) are not sure what it means since it was during...
Hi. I just posted a queston about ostomy supplies in the long run. I woul be grateful for responses. In addition to being with ibd for the last almost 14 years and having a date for colectomy next...
Thank you Keith. I guess my anxiety has me fearing a situation where I am poor and cannot afford good supplies and everything that ensues. I am in decision between jpouch and ileostomy. I am an...
Will be undergoing colectomy soon. One of the non medical cons of ostomies seems to be having to obtain the ostomy supplies. You can't live without it. My insurance will cover 80 % but insurances can...
i'm Witty.: research shows that anti tnf alpha (remicade, humira, etc) are helpful with that. dont know about why gluten makes people flare but today its very easy to go gluten free. pmedic: if you...