I had the exact same problem. I was great for the first 3-4 weeks after my surgery. Then the leaking got progressively worse, my skin got raw, the bag stopped sticking. I went to the stoma nurse and...
I'm about 6 or 7 weeks post take down. Overall, I'm doing pretty well. It was kind of a trip not having any urgency at all after going so long where whenever I had the urge to go I had to go...
Oh, sorry. It's Ilex with one L. http://www.amazon.com/gp/product/B000QCI2QQ?psc=1&redirect=true&ref_=oh_aui_detailpage_o01_s00 I don't have any urgency or problems holding it. Some days I do have a...
I'm about 5 and a half weeks post take down. I had intense burning, stinging and pain between week three and four. It was miserable, plus I seemed to have pouchitis which I was treated for...
I had pouchitis or possibly cuffitis and this was the reason for the nightime leakage....
What's the difference between a take down and a reversal? I had a temporary loop illeostomy, where one hole led to the pouch and one hole allowed for output into the bag until I was ready to have...
Hey, I'm about a week and a half post take down. I'm doing great during the day, no problems with urgency, cramping ect. However, my nigh time "leakage" is pretty unrelenting. What's everyone else's...
Thanks, yeah I fell pretty well but I'm still concerned. I can't really say I've had any cramping, gas ( with the exception of two times I used the bathroom) or pain whatsoever. It seems like I have...
So I had my reversal Thursday afternoon/evening, today is Saturday. I was on a clear liquid diet Thursday and Friday afternoon, a full liquid last night and a normal diet today. Physically, I've felt...
I assume you are saying reverse it by having a j-pouch type surgery? Obviously they can't put a new large intestine in. Unfortunately, I doubt there is anything that can be done. When they do the...
Okay, so do I dry the ring with the hair dryer before or after I put the bag on over it? Thanks for the info....
Hey all, thanks for the replies. I am hairy, but they shaved the whole area before the surgery and I have kept it shaved since, mostly because I don't want to have any issues with it sticking to my...
I went and worked out yesterday and was surprised to look down and see my ostomy bag had stoped sticking to my abdomen. I think it was the combination of stretching my body and sweating that made it...
Thanks for he replies. I was lucky enough to have my surgery done laproscopically, so I'm guessing my healing time won't be as extensive. I mean, I feel relatively good, aside from the fatigue and...
So I had step one of my J pouch surgery about 8 days ago, and I know this question has to be covered somewhere else in this forum, but how long after surgery did you start to feel somewhat normal,...
Yeah, had ct scan and no infection. I went home with a cath, but am starting to feel like things are less swollen down there and could probably urinate if I had it taken out. I have to wait until...
I'm having a ct scan tomorrow if my white blood cell count doesn't improve...
I had surgery on the fifth and my Catheter was removed three days after. I struggled to pee since then, and this morning I couldn't pee at all, resulting in severe pain and recatherization. I'm still...
I just had my temp illeostomy surgery in preparation for a J pouch 2 days ago on the 5th. I didn't realize how quickly things would go through me, the amount of liquid and how quickly it would fill....
Very cool. Thanks for that....
Haha, that's great! I love it. Meditation is a powerful training tool for the mind. It's funny how we are systematically taught to ignore the background as if it's not important, when in reality the...
I have been using marijuana, normal thc marijuana, to control my symptoms for the last five or six years. It is really, really effective and while it is still hard to achieve complete remission with...
I'm down to 10 mg of prednisone, and I am sooo fatigued also. I hope it's the prednisone, because I have been working off the assumption it's because my body is just in such a weakend state from a...
I have read many posts about people losing their hair from UC medications. Does anyone think that maybe the hairloss is somehow related to the UC and not the medications? My hair started thinning at...
Why not get your colon out? It would probably improve your quality of life. I think if things ever got bad enough that's what I would do....
Have you always had this problem cause I have. I have always sweated more than anyone else and yes it is embarrasing to me too. I will even sweat when I eat non-spicy foods. If I have to walk more...
Scary, only a half dozen times over 25 years? How long where your sessions?...
I had to have a flexable sigmoidoscopy a few weeks ago for humira clinical trial I'm in . It was a very very painful experience. My body ended up shaking uncontrollably through the whole procedure...
Just stumbled across this article today http://www.sciencedaily.com/releases/2009/06/090616122119.htm I wonder if it applies to colitis as well. Any thoughts?...
I wouldn't be worried at all, it is almost certainly due to your flare. I get exactly the same thing and it is because my colon is inflamed. Maybe your current flare is worse than usual. Its good...
I was on the specific carbohydrate diet two times. I followed it to a t. The first time I was on it it worked fairly well. I went from having a bm every 1 to 2 hours to every 8 or 9 hours. The second...
I can't believe how much everyone is freaking out about this. Yeah I know most of us have compromised immune systems and probably should worry more than the general population, but there have been...
How many of you had lots of ear infections/strep throat as a kid. I had three to four cases of strep throat a year and usually at least one ear infections. These were all treated with anti-biotics....
Maybe this will ease your minds just a bit. This is a quote from msnbc.com on why those who have died have been relatively young and healthy. "One theory is that the virus triggers an excessively...
How do explain the dozens and dozens of other immune disorders (rheumatoid arthritis and Hashimoto's disease) where the body's immune system attacks part of the body that have nothing to do with the...
I know its not the most healthy thing, but I gained all my weight back by drinking chocolate milk. Just one of the half gallon bottles has nearly nine hundred calories and even though my stomach...
I have that, its like a mucusy liquid. I usually have a bm with stool every six or seven hours. But every three hours or so I have to pass this mucusy liquid. My guess is because the lower portion of...
I was actually going to post on this very same problem. For the last month or so 2/3 of my stools have been yellow. Also, it smells has a really sour acidic smell just like vomit. I was thinking...
Sorry this probably won't help alleviate your anxiety, but for me the shots have been extremely painful and I have been getting it with a syringe. I've had six injections so far. They haven't let me...
I started a clinical trial for humira two weeks ago and go in for my second round of injections tomorrow. I'm praying that I didn't get the placebo. The injections hurt worse than any shot I have...
They actually gave me all four shots at the same time....
I'm actually in a clinical trial for humira which unfortunately means I could get the placebo. In addition, in the trial they don't have the pens only the syringes. Your lucky the shot didn't hurt...
I just started humira for UC today. But because its not approved for Ulcerative Colitis yet I thought I'd have more luck finding an answer in the CD forum. I had four shots today and they were all...
Just had my first four shots of humira, two in my stomach and two in my thighs. I had expected them to feel like any other shot, but I can honestly say those were the most painful shots I have ever...
Diagnosed in August of 2005, but symptoms appeared many months prior to diagnosis....
When I was on remicade I had no reactions or side effects whatsoever. The worst part was having to sit through a hour and half long infusion. It didn't start working until my third treatment and then...
I'm starting Humira this Friday, well maybe. I got into a clinical trial and the placebo is a fifty percent possibility. However, the study coordinator said that if I don't respond to the drug after...
I don't know if it is necessarily the canasa. I'm not on Canasa or anything for that matter and I get the same Thick White Discharge. I assume it is just mucus that has clumped together....
All the colon does is absorb water from stool. So its possible if you are eating the same amount of calories as before you would not lose weight even with D because the only part of the digestive...
To clarify my original post, I have had all these symptoms since I was a kid, which was long before I got diagnosed with UC. Also, I'm not on any medications for my UC right now. This could explain...